Board of Directors
Salt Lake City, Utah
Kim brings more than 20 years of experience as an administrator, program manager, volunteer and board member serving the non-profit sector to The Cholangiocarcinoma Foundation. In her professional life she specializes in small, start-up, and growing non-profit organizations with experience in non-profit administration, program development and evaluation; volunteer recruitment and management; conference and special event planning; as well as grant writing and fundraising. She earned dual bachelor degrees in Sociology and Behavioral Science and Health from the University of Utah. Currently, she is finishing a Masters of Public Administration with an Executive Cohort at the University of Utah. She resides in the beautiful Heber Valley east of Salt Lake City with her son and cocker spaniel.
Stacie's brother, Mark Clements, was diagnosed and ultimately passed away from Cholangiocarcinoma in 2005. Stacie advocated for her brother, extensively researched treatment options and began networking with other patients, researchers and healthcare professionals. From this experience, the Cholangiocarcinoma Foundation was born. Stacie is a founding member and has served on the board of directors since its inception. Stacie resides in Salt Lake City, Utah, where she is the mother of five small children. She holds a Bachelor of Arts degree in Psychology from Brigham Young University, and is an active member in her church and community.
Dawn Duchene Lyon
Secretary & Director of Communications/Public Relations
Dawn has over 10 years experience in marketing with top agencies. As Senior Account Director for Crossbow Group, she directs marketing strategy, tactics and execution to build customer relationships and deliver measurable results. She holds a B.S. in Advertising from the SI Newhouse School of Communications at Syracuse University and an M.B.A. from The University of Connecticut. Her mother was diagnosed with cholangiocarcinoma in June 2008.
Larry is a senior manager with over eleven years of experience at pwc, a professional services firm. He provides assurance and advisory services to clients in the financial services industry, including investment funds, investment advisors, operators, real estate investment trusts and homebuilders. Larry serves both Philadelphia and New York clients. He has a bachelors of science in accounting from the Pennsylvania State University. Larry joined The Cholangiocarcinoma Foundation shortly after his father, Lawrence (Larry) Goodfield, was diagnosed with cholangiocarcinoma in February 2011.
San Francisco, California
Marion serves on the Board of Directors and functions as moderator on the discussion board. She attends international and national conferences, as well as FDA, NIH and NCI meetings. Marion obtained her research advocacy training by attending numerous medical and scientific symposiums, the Coalition of Cooperative Groups Workshops, Research Advocacy Network tutorials, and through her engagement with the NCI Disease specific Task Force for Hepatobiliary Cancer.
She received her BS in psychology from the University of Bonn/Germany and is bilingual, fluent in English and German. A 2012 DIA Patient Advocate Fellowship Alumni and guest speaker she also is a member of the Alliance to build a stronger FDA.
Her passion for the Cholangiocarcinoma Foundation evolved after the diagnoses and subsequent passing of her husband in 2007. Marion lives in Sonoma County, California.
Sean Turbeville, PhD
San Francisco, California
Sean Turbeville, PhD, is the Global Director of Medical Information at Onyx Pharmaceuticals, Inc. He has overseen development of global medical information services for products treating orphan metabolic disorders and oncology, developing custom infrastructures to support these unique products from pre-launch to post-marketing initiatives. With an in-depth knowledge of global medical affairs, clinical drug development, lifecycle management and post-marketing studies, Sean has supported the launch and commercialization of products in North and South America, the European Union, Eastern Europe, Asia Pacific, and the Middle East.
Sean completed his PhD in Epidemiology from the University of Oklahoma Health Sciences Center where he went on to be an Adjunct Associate Professor of Epidemiology. Sean acts as peer reviewer for several scientific journals and has a vast array of scientific interests including sports injury prevention in young athletes. His list of publications includes numerous research and review articles, as well as publications discussing current issues facing medical information departments, including challenges medical information departments face with the globalization of the pharmaceutical industry.
Stansbury Park, Utah
Rick owns a website/print/graphic design firm (435 Design) and has 15 years' advertising experience with an international media buying firm and the broadcast industry. He has been designing and programming websites independently since 1998 and designing print materials since 1995. In spring 2001, he was offered, and accepted, a unique opportunity to coordinate activities at the Athletes' Village for the 2002 Olympic Winter Games in Salt Lake City.
He's active in local politics and is currently the Vice-Chair of his county's Democratic Party. He has a bachelor's degree in Mass Communications from the University of Utah and enjoys photography as a hobby. Rick's brother-in-law, Mark, was diagnosed with cholangiocarcinoma in October of 2005 and passed away in January of 2007.
Sara Hinkley is a patent attorney for an oilfield services company in Houston, Texas, USA, where she oversees patent preparation and prosecution of chemical-related cases. Sara has over 10 years of industry experience, and 5 years legal experience. Sara joined The Cholangiocarcinoma Foundation as Secretary after her childhood friend, Kelly Lester, was diagnosed with cholangiocarcinoma in November 2005.
Mr. Anaipakos is a partner in the law firm of Ahmad, Zavitsanos & Anaipakos, P.C. Specializing in employment, commercial and catastrophic personal injury litigation, its attorneys have obtained numerous plaintiffs’ judgments in excess of one million dollars as well as take-nothing defense verdicts in cases where plaintiffs sought millions of dollars in damages. Mr. Anaipakos best friend and fellow law student at Stanford was diagnosed with cholangiocarcinoma in October of 2005.
Dr. Rudolph Peña
Dr. Peña is an orthopedic surgeon. He currently practices in Victoria, TX. He has served on several medical boards and committees. Dr. Pena currently works with the M.D. Anderson network to educate and counsel patients with cholangiocarcinoma nationwide. Dr. Pena is a member of the Angel Flight South Central and Houston Ground Angel Flight programs, where he flies patients to or from cancer centers. Dr. Peña was diagnosed with Cholangiocarcinoma in June of 2000.
C. Ray Clements
Salt Lake City, Utah
Mr. Clements is the founder and CEO of the Clements Group (CG), a professional institutional advancement and resource development counseling and consulting firm. He has managed or supervised hundreds of major gifts campaigns, planned giving programs, and other fundraising activities over a 20-year period. His clients have included community colleges, vocational-technical schools, K-12 school districts, universities, hospitals, arts organizations, community foundations, Boy Scouts of America, United Way, and other nonprofit organizations. Mr. Clements son was diagnosed with cholangiocarcinoma in 2005.
Ms. Craighead is the Owner/President of two real estate development companies. Her companies have completed over $30 million in projects in Kansas, Iowa and Nebraska. She is also an associate broker for Prudential Ambassador Real Estate in Omaha, Nebraska. Joni earned a Bachelorís degree in Medical Technology from the University of Nebraska Medical Center and a Masterís degree in Public Administration from Kansas University. She is a nationally recognized public speaker. Mrs. Craighead is also a published author, an avid political volunteer and very active in the local community. Mrs. Craighead’s husband, Michael was diagnosed with cholangiocarcinoma in January, 2006 and crossed over to Heaven with a smile on his face on April 27, 2007.
Salt Lake City, Utah