Here’s how it works

If you would like to be connected, please provide us your contact information by clicking the REQUEST A MENTOR button below. The Program Manager will respond to your request by emailing you a profile questionnaire to get an idea of your personal experience with cholangiocarcinoma. All information will be kept confidential.

Once you return the questionnaire, the Program Manager will connect you with a mentor from our network who shares a profile similar to yours. Mentors will make the initial contact with the patient or caregiver and begin discussions either over the phone or through email.

If you are contacting CholangioConnect for a friend or family member, please ensure you have received permission from the patient or caregiver prior to contacting us on his/her behalf.

About CholangioConnect mentors

CholangioConnect is comprised of patients, caregivers, and mentors experienced in cholangiocarcinoma. Through CholangioConnect, patients have the opportunity of connecting with other patients and caregivers with similar circumstances.

The service is free. The program is not intended to give medical advice.

FAQs

What is CholangioConnect?
CholangioConnect offers patients, caregivers, family members and friends the opportunity to ask questions and receive support from mentors who volunteer.

Who are the mentors?
A diagnosis of cholangiocarcinoma (bile duct cancer) can be both stressful and confusing.  Mentors volunteer their time to help callers.  Volunteers are cholangiocarcinoma survivors, patients, caregivers, family members or friends of a cholangiocarcinoma patient.

Do mentors give medical advice?
Mentors may share their personal diagnosis and treatment experiences if asked by a caller. However, the volunteers will not give medical advice or assist patients in contacting medical professionals.

Information shared between mentors and patients concerning treatments, medications or therapies should be discussed with a physician.

My loved one passed away.  Can I still be a mentor?
Our mission of supporting the cholangiocarcinoma community does not stop when patients lose their battle with this disease.  CholangioConnect has a group of volunteers who have lost a loved one to cholangiocarcinoma and are willing to offer support.

How does CholangioConnect work?
Patients or caregivers request a mentor by completing a questionnaire on the CholangioConnect web page.

The Program Manager will respond to requests, then begin the process of connecting patients with a mentor experienced in cholangiocarcinoma who shares a similar profile.

Once you return the questionnaire, the Program Manager will arrange for a telephone or video conference call with you.

Will my personal information remain confidential?
Yes.

I’d like to request a mentor.  What is the next step?
Please provide us your contact information by clicking a REQUEST A MENTOR button below.