Volunteer Opportunities

“Never think that a small group of committed individuals can’t make a difference . . . indeed it is the only thing that ever has!”

-Margaret Mead

If you’ve come to this section of the website:

  • You may want to do something but might not know exactly what that would be
  • You may only have a limited amount of time
  • You may want to help but don’t feel that you have the necessary skills
  • You may feel a little disconnected after the loss of someone you cherished but want to stay involved
  • You may want to do something but are concerned about a long-term commitment

You may have a lot of reasons to hesitate before deciding to volunteer, but let us give you some great reasons to jump right in…

We need you. We want you. We can train you. Or . . . you can train us.

There is an opportunity for everyone to do something in the Cholangiocarcinoma Foundation. This is a great way to channel your energy into something positive, this is a wonderful way to branch out and do something you may not have considered before.

Every person involved in this foundation is a volunteer. Our philosophy is “family first” because our families came first when we were heavily involved in caring for our loved ones and they still come first. If you have time, interest & enthusiasm or skills we would love your help.

Here are some of the opportunities we currently have available:

Fundraising Volunteer

Position: Fundraising Volunteer

Type: Volunteer Position

Location: Virtual

Time Commitment: 4-8 hours/week

Position Description: The Cholangiocarcinoma Foundation (CCF) is looking for a volunteer who will assist with the fundraising activities of the Foundation.

Job Duties & Responsibilities:

  • Play an essential role in the Foundation’s fundraising efforts
  • Serve as liaison between the Foundation and volunteers holding local fundraising events
  • Effectively promote local events on the Foundations calendar and social media sites.
  • Provide post-event support; collect results of attendance, amount raised, comments, photos, publicity
  • Maintain up-to-date online files of fundraising activities and correspondence
  • Participate in teleconferences related to fundraising activities
  • Prepare and submit reports in a timely fashion
  • Conduct other duties related to successful fundraising development

Qualities and Skills:

  • The successful candidate will be able to build relationships with local fundraising volunteers
  • Excellent organizational and people skills
  • Self-motivated, detail-oriented, and highly-organized
  • Ability to manage multiple projects, take initiative, and work independently
  • Ability to meet deadlines while also paying close attention to details and accuracy
  • Intermediate computer skills, including Microsoft Office
  • Flexibility and strong commitment to collaboration
  • Ability to maintain confidentiality and commitment to professional ethics
  • Fundraising experience preferred
Grant Writer

Position: Grant Writer

Type: Volunteer Position

Location: Virtual

Time Commitment: 4-8 hours/week

Position Description: The Cholangiocarcinoma Foundation (CCF) is looking for a Grant Writer who will be primarily responsible for developing and writing grant proposals to foundations and other grant-making organizations and will persuasively communicate our mission and programs to potential funders. The Grant Writer will research, write, and prepare grant proposals and reports that align with CCF’s mission and vision.

Job Duties & Responsibilities:

  • Research, write, and submit compelling and timely letters of inquiry and grant proposals to foundations, corporations, and other entities.
  • Work with teams as needed to develop project descriptions, timelines, evaluation plans, and budgets.
  • Develop appropriate relationships with pharma/foundations/advocacy groups and other potential funders.
  • Prepare and submit internal and external reports and updates in a timely fashion.
  • Support research of new funding prospects for different programs offered by our organization.
  • Maintain up-to-date online and physical files of all grant-related content and correspondence.
  • Attend teleconferences, trainings and webinars related to grants and fund development.
  • Conduct other duties related to successful grants and fund development.

Qualities and Skills:

  • The successful candidate will be able to craft funding proposals in a clear and compelling manner
  • Excellent writing skills
  • Self-motivated, detail-oriented, and highly-organized
  • Ability to manage multiple projects, take initiative, and work independently
  • Ability to meet deadlines while also paying close attention to details and accuracy
  • Intermediate computer skills, including Microsoft Office
  • Flexibility and strong commitment to collaboration
  • Ability to maintain confidentiality and commitment to professional ethics
  • Grant writing experience preferred
Patient Advocate Volunteer

Position: Patient Advocate

Type: Volunteer Position

Location: Virtual

Time Commitment: 4-8 hours/week

Position Description: The Cholangiocarcinoma Foundation (CCF) is looking for a volunteer who will be primarily responsible for the patient advocacy activities of the Foundation.

Job Duties & Responsibilities:

  • Play an essential role in the Foundation’s patient advocacy efforts
  • Establish relationships with stakeholder groups including patients, caregivers, families and representative of other advocacy organizations
  • Represent CCF at conferences, lectures and other events
  • Distribute educational materials at conference booths and other venues
  • Maintain up-to-date online files of all patient advocacy activities and correspondence
  • Participate in teleconferences related to patient advocacy activities
  • Prepare and submit reports in a timely fashion
  • Conduct other duties related to successful patient advocacy development

Qualities and Skills:

  • The successful candidate will be able to build relationships with various stakeholder groups
  • Excellent verbal communication and people skills
  • Self-motivated, detail-oriented, and highly-organized
  • Ability to manage multiple projects, take initiative, and work independently
  • Ability to meet deadlines while also paying close attention to details and accuracy
  • Intermediate computer skills, including Microsoft Office
  • Flexibility and strong commitment to collaboration
  • Ability to maintain confidentiality and commitment to professional ethics
  • Patient advocacy experience preferred
Public Policy Advocate Volunteer

Position: Public Policy Advocate

Type: Volunteer Position

Location: Virtual

Time Commitment: 4-8 hours/week

Position Description: The Cholangiocarcinoma Foundation (CCF) is looking for a volunteer who will be primarily responsible for the public policy advocacy activities of the Foundation.

Job Duties & Responsibilities:

  • Play an essential role in the Foundation’s legislative efforts by taking political action in support of our cause
  • Engage in a variety of public policy activities such as e-mailing, calling or writing legislators
  • Attend public policy conferences and Capital Day events
  • Visit legislators or staff in home district offices to build rapport and request action on the Foundation’s legislative priorities
  • Maintain up-to-date online files of all public policy content and correspondence
  • Participate in teleconferences related to public policy activities
  • Prepare and submit reports in a timely fashion
  • Conduct other duties related to successful public policy development

Qualities and Skills:

  • The successful candidate will be able to building relationships with legislators and their staff
  • Desire to share your story and have your voice heard by your elected officials
  • Excellent verbal communication skills
  • Self-motivated, detail-oriented, and highly-organized
  • Ability to manage multiple projects, take initiative, and work independently
  • Ability to meet deadlines while also paying close attention to details and accuracy
  • Intermediate computer skills, including Microsoft Office
  • Flexibility and strong commitment to collaboration
  • Ability to maintain confidentiality and commitment to professional ethics
  • Public policy experience preferred.
Public Relations Volunteer

Position: Public Relations

Type: Volunteer Position

Location: Virtual

Time Commitment: 4-8 hours/week

Position Description: The Cholangiocarcinoma Foundation (CCF) is looking for a volunteer who will be primarily responsible for the public relations activities of the Foundation.

Job Duties & Responsibilities:

  • Research, write, and submit press releases
  • Serve as the liaison between the Foundation and media outlets
  • Maintain up-to-date online files of all public relations content and correspondence
  • Participate in teleconferences related to public relations activities
  • Prepare and submit reports in a timely fashion
  • Conduct other duties related to successful public relations development

Qualities and Skills:

  • The successful candidate will be able to craft press releases in a clear and compelling manner
  • Excellent writing skills; problem solver and innovative thinker
  • Self-motivated, detail-oriented, and highly-organized
  • Ability to manage multiple projects, take initiative, and work independently
  • Ability to meet deadlines while also paying close attention to details and accuracy
  • Ability to work collaboratively with others
  • Ability to maintain confidentiality and commitment to professional ethics
  • Intermediate computer skills, including Microsoft Office
  • Public relations experience preferred