Chief Advocacy Officer, San Francisco, California
Marion, Research and Patient Advocate, joined the Cholangiocarcinoma Foundation in 2006 and served on the Board of Directors from 2007 to 2016. She is Moderator of the Cholangiocarcinoma Foundation Global Discussion Board, Member of the ASCO TAPUR Molecular Tumor Board, Mayo Clinic Hepatobiliary SPORE, and previous Advocate for the NCI Task Force for Hepatobiliary Cancer (2008- 2015.) A 2011 Patient Advocate Fellowship Alumni, Marion was also a 2012 DIA “Engaging Investigators and Patient Advocacy Groups” Guest Speaker.
Her passion for the Cholangiocarcinoma Foundation evolved in 2006 with her husband’s cholangiocarcinoma diagnosis and his subsequent passing in 2007. Marion holds a BS in Psychology from the University of Bonn, Germany. She lives in Marin County, California.