ADVOCACY

“Team CCF” takes over the booth at the ASCO Conference in June From left to right: Stella DEgidio Linda McGovern Rob Mignogna Marion Schwartz Donna Mayer Karen Driskill

“Team CCF” takes over the booth at the ASCO Conference in June.
From left to right: Stella Degidio, Linda McGovern, Rob Mignogna, Marion Schwartz, Barbara Dupont, Donna Mayer, Karen Driskill and Stacie Lindsey

Volunteers continue to provide the backbone of our organization. Their selfless contributions enable us to increase our outreach within the medical community as well as provide informational education for patients and caregivers alike. From our humble beginning back in 2006, we have been able to participate in a wide variety of conferences such as:

  • American Association for the Study of Liver Disease Meeting
  • Americas Hepato-Pancrato-Biliary Association Annual Meeting
  • American Society of Clinical Oncology Annual Meeting
  • CanLiv
  • FasterCures
  • Gastrointestinal Oncology Conference
  • Gastrointestinal Cancer Symposium
  • World Orphan Drug Congress

The highly anticipated American Society of Clinical Oncology Palliative Care Symposium being held in Boston at the end of October will assist our Nursing Advisory Board members in the development of a template for evidence-based standards. The newly obtained information will be utilized and reviewed in conjunction with the key protocols set forth by NCCN, AHRQ, ASCO, and ONS. The final deliverable will be presented at the Cholangiocarcinoma Foundation Annual Conference in February 2015.

Web Chat

runnerbannerOn September 29, CCF held its first web chat with guest speaker Bill Merriam. Bill recently created a new video for the Foundation to share his perspective on cancer. Participants were able to submit questions in advance and join the web chat to hear directly from Bill.

Bill is the father of 6 and grandfather of 13.  He was diagnosed with cholangiocarcinoma in 2009.   In this inspirational video, he shares his “story” and perspective on cancer from a marathon runner’s point-of-view.

View the video now: My Toughest Marathon: A Runner’s Perspective on Cancer

“I have cancer but I am not going to let it stop me from being a participant in the most active way that I can as a father, spouse, and as a family-head so it becomes the new normal . . . I have a disease,   the disease doesn’t have me.”

Bill Merriam

“Bill is an inspiration to anyone struggling with a harder side of life.  This web chat portrayed his value in family and he illustrated that as a great example of the kind of motivation everyone needs to make it through a difficult time. I admire his outlook and hope to embody it in my own way through my own struggles.”

Mary