Advocacy

Volunteers continue to provide the backbone of our organization. Their selfless contributions enable us to increase our outreach within the medical community as well as provide informational education for patients and caregivers alike. From our humble beginning back in 2006, we have been able to participate in a wide variety of conferences such as:

  • GI ASCO
  • Partners in Clinical Trials Conference
  • World Orphan Drug Conference
  • ASCO Annual Conference
  • Biliary Tract Cancer Collaborators Meeting
  • Specialized Programs of Research Excellence (SPORE) Meeting

Marion Schwartz, CCF Chief Advocacy Officer (center), joined a Rare Disease Legislative Advocate meeting with Senator Barbara Boxer’s Office on August 13th.