• A study of genetic variations associated with a specific disease like cholangiocarcinoma
  • Involves two groups of participants: people with, and people without, the disease
  • DNA from a small sample of blood is obtained from each participant
  • Results help researchers to develop better strategies for prevention, screening, diagnosis and treatment

Our goal is to have  250  1000 volunteers  participate in the Genome-Wide Association Study (GWAS) during the month of April


Why participate?

Your participation will help scientists to:

  • Inspire progress and find new ways to prevent, detect, diagnose, and treat cholangiocarcinoma
  • Discover important genetic risk factors for cholangiocarcinoma that may affect your family

Who can participate?

  • Everyone!
  • Patients, caregivers, family, friends, co-workers, neighbors – men and women of any age
  • You do NOT need to know someone with cholangiocarcinoma . . . we are looking for ALL volunteers!

How will you participate?

Participants

Thank you…

Patricia C.                   Ross G.                   Heather B.                   Rebecca S.                   Britt C.                   Paul V.                   Jon O.                   Christie S.                   Cheryl C.                   Jenna S.                   Melissa M.                   Hilary C.                   Margaret A.                   David T.                   Stephanie S.                   Domingos F.                   Kathleen W.                   Elizabeth B.                   Mona C.                   Martha M.                   Bobette M.                   Maureen N.                   Jean C.                   Susan I.                   Jen F.                   Amy C.                   Jennifer G.                   Eileen D.                   Patricia W.                   Karen H.                   Miriam E.                   Arlene L.                   Deborah S.                   Barbara K.                   Lynette J.                   Diane D.                   Lee P.                   Gary T.                   John R.                   Marie E.                   Judith R.                   Sheena S.                   Lisann L.                   Lorraine T.                   Kimberly Z.                   Nisha C.                   Deirdre M.                   Kenneth O.                   Ashley R.                   Nicola L.                   Randall P.                   Chelsea R.                   Bonnie T.                   Katie K.                   Jennifer Z.                   Carla D.                   Joseph L.                   Helen B.                   Jenn K.                   Lauren S.                   Friend B.                   Mary C.                   Melinda T.                   Bronwen M.                   Terri O.                   Candida Y.                   Danny V.                   David M.                   Jayne J.                   Karen F.                   Rebecca S.                   Cary E.                   Kristin A.                   Sara D.                   Kathy H.                   Suzanne J.                   Eileen S.                   Debra S.                   Judith H.                   Stacey P.                   Matija J.                   Jacqueline A.                   Wilma H.                   Forrest M.                   Rosalie S.                   Michael C.                   Deborah C.                   Carl S.                   Lorraine C.                   Carolyn N.                   Claudia C.                   Joanna S.                   Manuel C.                   Susan H.                   David V.                   Janet J.                   Chad C.                   Stacie K.                   Susan O.                   Thomas A.                   Chris G.                   Estephanie B.                   Caitlyn H.                   Chawnie R.                   Ronald O.                   Nora M.                   Charles T.                   Cathy S.                   Priya N.                   Tina J.                   Ruth N.                   Lori M.                   Jana S.                   Jennifer H.                   Eileen S.                   Kevin M.                   Barbara V.                   Sarah S.                   Timothy G.                   Kendra P.                   Shannon R.                   John S.                   Kelly R.                   Terri K.                   Liza E.                   Abby R.                   Martin R.                   Jennifer V.                   Rejeana B.                   Rosalie P.                   Debra K.                   Matthew C.                   Kim M.                   Brittney C.                   Thomas C.                   Meghan W.                   Alana C.                   Suanna S.                   Nikole R.                   Abeer Y.                   Jordan S.                   Winnie T.                   Elizabeth Y.                   Amanda S.                   Sue N.                   Amy B.                   Gretchen J.                   Rhonda S.                   Jeff S.                   Debra L.                   Michael L.                   Olivia L.                   Lauren R.                   Bethany L.                   Amy H.                   Linda F.                   Erica B.                   Elise G.                   Bonnie D.                   Amy A.                   Theresa B.                   Dai L.                   Jennifer P.                   Gemma C.                   Philip S.                   James H.                   Gary A.                   Caroline F.                   Michael C.                   Lorri C.                   Dorothea B.                   Melissa B.                   Kimberly S.                   Robbie V.                   Christine D.                   Nora M.                   Linda V.                   Kathy M.                   Laura L.                   Navdeep R.                   Sarita V.                   Jessica R.                   Elizabeth H.                   John S.                   Charissa R.                   Betsy P.                   Nicole S.                   Leanne M.                   Deborah S.                   Ann F.                   Margaret T.                   Delia H.                   Genelia D.                   Janet C.                   Megan B.                   Lindsay F.                   Randi B.                   Stefanie S.                   Robert L.                   Lindsey M.                   Rose T.                   Charles O.                   Bernie P.                   Maggie C.                   Sonia J.                   Susan S.                   Charlie H.                   Tom M.                   Peter E.                   Barbara L.                   Pamela H.                   Mary T.                   Tiffany D.                   Bill R.                   Anna H.                   Beth L.                   Peggy K.                   Barbara M.                   Jill R.                   David K.                   Betta R.                   Thomas S.                   Gwendolyn A.                   Maria V.                   Milena R.                   Janice K.                   Ron S.                   Megan R.                   Kerrie A.                   Craig L.                   Maricela M.                   Amy R.                   Maria G.                   Gabriella S.                   Sevil M.                   Courtney J.                   Caitlin D.                   Stephanie B.                   Misty M.                   Cecil A.                   Margaret C.                   Jill A.                   Lucy M.                   Melissa T.                   Matt S.                   Stacey M.                   Matthew G.                   Lisa B.                   Delise B.                   Anne B.                   Judy R.                   Carleen B.                   Eric B.                   Michelle K.                   Paul G.                   Kortney R.                   Lucerp H.                   Jane B.                   Amanda C.                   Melissa M.                   Elizabeth H.                   Hugh T.                   Rick P.                   Elizabeth M.                   Katherine W.                   David S.                   Magnin D.                   Mary R.                   James B.                   Lindsay V.                   Teresa R.                   Barbara T.                   Dawn P.                   Brandi L.                   Patrick R.                   Leah S.                   Jennifer H.                   Monique K.                   Carolyn V.                   Jani B.                   Laure L.                   Lauren F.                   Bruce N.                   Penny D.                   Suzanne U.                   Judith D.                   Jason D.                   Meg K.                   Amy D.                   Joan S.                   Jessica P.                   Bridget C.                   Ellen F.                   Linda N.                   Carlyn B.                   Daniel P.                   Julie W.                   Tonya M.                   Melissa P.                   Megan F.                   Jennifer G.                   Tina S.                   Christine H.                   Sara H.                   James P.                   Laina S.                   Gretchen J.                   Thomas S.                   Alysa A.                   Elizabeth H.                   Renee B.                   Laura P.                   Tim L.                   Martin R.                   Brian T.                   Susan B.                   Michelle M.                   Colleen P.                   Jo H.                   Sara B.                   Wayne C.                   Doreen D.                   Angela M.                   Melody B.                   Mary B.                   Kim B.                   Jill N.                   Jane L.                   Pamela H.                   Mary N.                   Tania P.                   Thelma B.                   Gary R.                   Britt C.                   Marni C.                   Jeannine H.                   Patricia Z.                   June A.                   Ronald P.                   Veronica B.                   Sharon N.                   Lesly M.                   Marlene N.                   Jennifer H.                   Ceceelia C.                   Gina A.                   Kristen D.                   Charlotte O.                   Heather R.                   Thomas D.                   Jeanne K.                   Elizabeth H.                   Michael G.                   Eileen D.                   Suzanne T.                   Kayla K.                   Kerri S.                   Lisa B.                   Lisa J.                   Lisbeth G.                   Kami R.                   Rhea F.                   Merrideth Z.                   Rhoda R.                   Janice C.                   Greg R.                   Annemarie W.                   Lauren P.                   James E.                   Darlene E.                   Shannon G.                   Donna W.                   Sagar K.                   Lyman J.                   Phyllis C.                   Katarzyna S.                   Jacquline C.                   Alison E.                   Caren W.                   Annette G.                   Jeff S.                   Sandra G.                   Lori W.                   Michi W.                   Maria F.                   Julie G.                   Sandra J.                   Kumari E.                   Chelsea H.                   Lori W.                   Elizabeth W.                   Denise W.                   Paul W.                   Walter J.                   Susan J.                   Elizabeth J.                   Alison P.                   Brenda K.                   Jason J.                   Wendy B.                   Allan L.                   Marcella L.                   Pragya S.                   Sandra R.                   Kelli M.                   Meghan S.                   Laura M.                   Michelle S.                   Yoshauna G.                   Kay K.                   Jesse W.                   Mary M.                   Jenny W.                   Rebecca D.                   Kris F.                   Martina M.                   Neeru P.                   Monica M.                   Anastasia C.                   Becky P.                   Suzanne K.                   Robert M.                   Connie R.                   Nancy M.                   George C.                   Richard F.                   Maria C.                   Desiree S.                   Carol T.                   Margaret J.                   Sittisak P.                   Benjamin L.                   Kevin L.                   Austin L.                   Lisa W.                   John R.                   Darin L.                   Susan L.                   Stephanie L.                   Sharon S.                   Dawn S.                   Sara Q.                   Jennifer W.                   Erica K.                   Serena K.                   Meredith B.                   Nancy D.                   Saroj C.                   Laura J.                   Phil C.                   Patrick R.                   Melissa S.                   Elizabeth R.                   Alisa H.                   L'Erin C.                   Missy R.                   Wendy H.                   Madeleine O.                   Rachael B.                   Iris M.                   Deborah F.                   Thomas F.                   Michelle C.                   Kimberly K.                   Patricia B.                   Mark V.                   Tracey B.                   Patrick C.                   Anthony F.                   Amanda L.                   Sandra V.                   Donna M.                   Art T.                   Nancy R.                   Patricia R.                   Magaly R.                   Donella L.                   Barbara K.                   Keri H.                   Cheryl M.                   Anne W.                   Kathy B.                   Leanne P.                   Carly C.                   Brandon F.                   Candice W.                   Cynthia B.                   Heather S.                   Debra F.                   Patricia C.                   Rosemarie C.                   Vicky J.                   Heather L.                   Paul W.                   Sherrie P.                   Michelle B.                   Sharon R.                   Dawn D.                   Kelly W.                   Rachael T.                   Sarah B.                   Matthew R.                   Jelly R.                   Joanna S.                   Melinda B.                   Susan B.                   Helen P.                   Dawn P.                   Lourdes R.                   Jennifer B.                   Kelly L.                   Gregg H.                   Kathleen S.                   Rebecca S.                   Christa W.                   Wendy H.                   Stephanie M.                   Ashley H.                   Jennifer E.                   Nancy U.                   Nikia S.                   Jennifer C.                   Michael D.                   Elizabeth P.                   Conor R.                   Jamie H.                   Thomas H.                   Andrea G.                   Heather H.

FAQs

  • After you Submit your Contact Information Form, a Study Coordinator will contact you within a few days
  • A kit with instructions will be mailed to you
  • There is no charge to participate – any costs for drawing the blood will be reimbursed
  • The blood sample can be drawn by your family doctor or anywhere in your community; you do not need to go to the Mayo Clinic or any of the other participating institutions
  • GWAS participants are not required to provide urine or stool samples or any future blood samples
  • Original signatures are required on the Consent Form (only pages 12 & 15 need to be mailed back to the Study Coordinator)
  • We will be very happy to answer ALL of your questions by e-mail or phone:

    Nasra Giama, DNP, RN, PHN
    GWAS Study Coordinator
    Phone: 507-538-0097
    Fax: 507-266-0350
    Email: giama.nasra@mayo.edu


gwas-smallThere is a critical need for cholangiocarcinoma research.

Dear Cholangiocarcinoma Foundation Patient Community,

I write today to ask for your help.

Although this is thought to be a rare disease, cases of cholangiocarcinoma are rising in the US and worldwide. Scientists do not know what causes cholangiocarcinoma or how it can be treated effectively. Researchers are trying to find individuals who might have a high risk for developing cholangiocarcinoma so they can identify new ways to detect, diagnose, and treat it.

Mayo Clinic is one of many institutions participating in a Genome-Wide Association Study (GWAS) for cholangiocarcinoma. We compare DNA from small samples of blood from two groups: people with the disease (you) and people without (your family members or friends). This helps us to identify important genetic risk factors for cholangiocarcinoma.

There is no cost to you and it is easy to participate by donating a small sample of blood and completing a medical history questionnaire.

Sincerely,

Lewis R. Roberts, M.B. Ch.B., Ph.D
Mayo Clinic, Division of Gastroenterology and Hepatology

Submit your Contact Information Form now. The Study Coordinator will follow up within a few days.


Participating Institutions

Mayo Clinic Rochester (USA)
Dr. Lewis Roberts

Oncóloga Médico-Instituto Nacional del Cáncer (Chile)
Dr. med. Bettinna Muller

University of Manchester (U.K.)
Dr. Juan Valle

The University of Hong Kong, Hong Kong, China
Dr. Thomas Yau

Alberta Health Services (Canada)
Dr. Oliver Bathe

University Mainz, University Medical Center of the Johannes Gutenberg (Germany)
Dr. Peter Galle and Dr. Arndt Weinmann

Mayo Clinic Arizona (USA)
Dr. Mitesh Borad

Universitätsklinikum des Saarlandes
Dr. Vincent Zimmer and Frank Lammert

Massachusetts General Hospital
Dr. Andrew Zhu and Dr. Nabeel Bardeesy

Imperial College (UK)
Dr. Shahid Khan

Biodonostia Research Institute  (Spain)
Dr. Jesus Banales

University Health Network, Toronto, Canada
Dr. Sean Cleary

Johns Hopkins, Baltimore, Maryland
Dr. Stephen Meltzer and Dr. Florin Selaru

Mayo Clinic Florida (USA)
Dr. Tushar Patel

MD Anderson Cancer Center (USA)
Dr. Manal Hassan

University of California, San Francisco (USA)
Dr. Kate Kelly

National Cancer Institute
Dr. Jill E. Koshiol

Baylor College of Medicine
Dr. Prasun Kumar Jalal

Harvard Cancer Center
Dr. Rebecca Miksad

Mayo Clinic, Rochester, MN (Cancer Center and Pancreatic Cancer Research)
Dr. Gloria M. Petersen

Liver Associates of Texas
Dr. Ankoma-Sey

University of Rochester in Rochester, New York
Dr. Aram Hezel

Karolinska Institutet at Karolinska University Hospital, Huddinge
Dr. Bengt Isaksson and  Dr. Weimin Ye

University of Puerto Rico, School of Medicine
Jose Rivera
Esther A. Torres
Dr. Irene Villami

Loyola Medicine
Dr. Steve Scaglione

University of Virginia
Dr. Osama Rahma

University of San Diego, CA (UCSD)
Robert Gish
Yuko Kono

                                                                                                                                                                                                                                                                                                                                                                                                                             


gwas

GWAS Action Alert
Contact Information Form



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