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#1 DATE POSTED: Thu, 08 Jul 2010 08:23:24

Pam
Member
Registered: Fri, 11 Jun 2010
Posts: 35

Chemo

My dad will begin chemo soon.  The oncologist has prescribed gemzar only.  She believes the two drug combo would be too hard on him.  He will have a port put in next week and then begin the week after.  We are concerned that the one drug will not be beneficial enough.  We know this is a pallative chemo regiment.  Any thoughts on this?

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#2 DATE POSTED: Thu, 08 Jul 2010 09:10:20

Lalupes
All-Star
From: London
Registered: Fri, 28 Aug 2009
Posts: 636
Website

Re: Chemo

I'm sorry I can't answer your question, Pam, but I wanted to send you & your dad my very best wishes for his treatment.

I'm sure someone else will be able to give you some thoughts on the gemzar alone.

Julia


Sister & Caregiver

"When it gets dark enough, you can see the stars" - Lee Salk

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#3 DATE POSTED: Thu, 08 Jul 2010 09:59:50

devoncat
Moderator
From: Kalmar, Sweden
Registered: Sun, 20 May 2007
Posts: 1816

Re: Chemo

Pam,
I had gemzar and cisplatin and for me it was a very, very easy regime. But then I am only 35 with no other health problems. You could ask the doctor to start your father on both and if it is too much, he can drop one. Cisplatin is very hard on the kidneys so perhaps that is the reason they are holding off. The chemo combo also takes about 6 hours to administer so that also might be a factor.

I am determined to take the most aggressive approach, but  I am young and relatively healthy. There is always the decision between quanitity and quality. Perhaps you and your dad need to have this discussion before talking to the doctor.

I am sure your dad and doctor will make the right decision.

Kris


Cancer is a word, not a sentence.

35 year old patient with buckets of hope

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#4 DATE POSTED: Thu, 08 Jul 2010 11:38:58

marions
Moderator
Registered: Fri, 12 May 2006
Posts: 3292

Re: Chemo

Pam.....If it were me I would have a conversation with the oncologist addressing a few issues:
Your Dad has other, major health issues.
He has vascular involvement
What is to be excepted from the Gemzar treatment?
How will this treatment effect his quality of life?
I agree with Kris in that the patient needs to be fully informed before undergoing treatments of any kind.  An open discussion will lead to much clarification. 
Once a conclusion has been reached I believe, the right decision will be made.
I am sending my best wishes your way,
Marion

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#5 DATE POSTED: Thu, 08 Jul 2010 20:38:31

Pam
Member
Registered: Fri, 11 Jun 2010
Posts: 35

Re: Chemo

Thanks for the posts....to answer a few questions....my dad is 75 with multiple health problems.  The oncologist he is seeing is well recommended.  She has viewed all operating notes from my dads attempted surgery.  I believe she has chosen gemzar only because she believes it will give him quality time.  I guess I wanted to know if there is anyone out there who has had gemzar only and what has been the result?  Ex: how was it tolerated?did it keep biliruben levels down?  Did it manage pain well?  Extend life?  Etc....

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#6 DATE POSTED: Thu, 08 Jul 2010 21:03:43

marions
Moderator
Registered: Fri, 12 May 2006
Posts: 3292

Re: Chemo

Pam....I had been told that Gemzar slows the progression of the disease and (generally) it is easy to tolerate.  There must be other reasons though, because several times  I have read that it has been recommended for as you have mentioned, quality of life.  Hopefully, someone will come forward and enlighten us.
I am sending all my best wishes your way,
Marion

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#7 DATE POSTED: Fri, 09 Jul 2010 04:03:20

Lainy
Moderator
From: Phoenix AZ
Registered: Fri, 13 Jan 2006
Posts: 2569

Re: Chemo

Dear Pam, Teddy is going to be 78 and I tell you "to chemo or not to chemo" even Palliative was the most agonizing decision he has had to make. He decided he didn't want any chemo and opted for quality of life. No one could promise no side effects from the chemo and he felt he had, had enough. We were told by 2 doctors it would only MAYBE give him an extra month or 2 and that was not good enough to him. I will tell you this, once the decision is made there is a relief either way because the unknown is over. And once the decision was made  the doctors and the family let him know they understood and agreed. I can fully understand your what you are going through right now but stay strong and soon you have to make the decision and then get on with the living for dad.  Either way. It is such a personal decision. I have always told my kids when in a quandry, to make a list of pros and cons and see which side is longer.
Much luck in the decision.


"ATTITUDE is EVERYTHING!"   How can a short man stand so tall?
Lainy: Wife & Caretaker to Teddy (77)

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#8 DATE POSTED: Wed, 21 Jul 2010 12:41:21

Pam
Member
Registered: Fri, 11 Jun 2010
Posts: 35

Re: Chemo

Well my dad was suppose to begin his chemo tomorrow, but I had to call a cancel his appointment.  He is in the hospital with a blood infection.  The doctors are now trying to determine if it is an infected port or an infection Of his GI tract.  They took a blood sample from the port for culture growth.  If it comes back positive the port has to come out.  If not, which we are praying, the infection will be treated with cipiro for two weeks.  They will then draw cultures to make sure the infection has been killed.  We are still unsure if he will be able to get a chemo treatment while being treated for the infection.  One doctor says no chemo until infection is gone.  Another says chemo can begin once the infection is under control.  It was really difficult to cancel his appointment.  He is taking everything pretty well considering.

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#9 DATE POSTED: Thu, 22 Jul 2010 07:16:35

Lalupes
All-Star
From: London
Registered: Fri, 28 Aug 2009
Posts: 636
Website

Re: Chemo

This must have been a nasty blow to you all.  I'm sending loads of best wishes for a swift recovery from the infection & for the rest of his treatment.

Julia


Sister & Caregiver

"When it gets dark enough, you can see the stars" - Lee Salk

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#10 DATE POSTED: Wed, 11 Aug 2010 14:13:09

Pam
Member
Registered: Fri, 11 Jun 2010
Posts: 35

Re: Chemo

My dad had his first dose of gemzar on Monday.  Yesterday was one of his best days and today is one of his worst days.  He is just not feeling well.  No energy and has been in bed most of the day.  He is also really down because his brother was not able to come visit him from out of town as planned today.  He is noy coping well today at all.  It hurts to see him so miserable.  I would do anything for him to feel a bit better.  Bummer.

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#11 DATE POSTED: Fri, 13 Aug 2010 12:20:57

John Thomas
New member
From: Capitola,California
Registered: Wed, 11 Aug 2010
Posts: 4

Re: Chemo

Hello Pam,

        I completed nine rounds of Gemzar (gemcitibine) in March,2010.  Fatigue,evening fevers,some nausea and lack of appetite were my primary complaints. My wife made smoothies daily, papaya and pineapple were my favorites. Gemzar was chosen as a conservative, palliative measure.  I believe Gemzar afforded me the best opportunity to live the life I choose.

Best wishes,
 
  John Thomas

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