Nursing Advisory Board

The Nursing Advisory Board is a group of nursing professionals with expertise in care of patients with cholangiocarcinoma practicing in cancer research centers throughout the US and UK. Their goal is to advance the scientific knowledge of the symptom experience and quality of life of patients with cholangiocarcinoma. This is being accomplished through collaboration with the Medical Advisory Board in the development and publication of Clinical Nursing Practice Guidelines (CNPG’s) for patients with cholangiocarcinoma. The CNPG’s are to include essential content for practice in understandable language and enable the nurse to feel confident to care for patients with cholangiocarcinoma. The Nursing Advisory Board has conducted an extensive literature review to assess the current state of nursing knowledge along with current Medical treatment standards as defined by NCCN national guidelines for cholangiocarcinoma. The CNPG’s model defined utilizes the nursing process: Assessment, Nursing Diagnosis, Outcome Identification, Implementation and Evaluation with literature citations or consensus on current practice if no citation available. The list of CNPG’s currently in process of development are the following:

  • Care of the patient with external biliary drains and internal bile duct stents
  • Care of the patient preparing to participate in a clinical trial and radiation therapy
  • Care of the patient undergoing chemotherapy/management
  • Care of the patient with intractable nausea and vomiting
  • Care of the patient pre and post-transplant surgery
  • Care of the patient on palliative care

There is much work to be done to complete the exhaustive literature review and development of standards for biliary drains and internal bile duct stents for inpatient and in home care settings. Additional standards will need to be developed, however this list was established and prioritized by the group to begin this important contribution to nursing knowledge for the care of patients with cholangiocarcinoma. The manuscript will be submitted to a peer reviewed Journal in the format of a clinical guideline for, “The Care of the Patient with Cholangiocarcinoma.”

Susan Acquisto

Susan Acquisto, DNP, RN, NEA-BC


The Bili Project Foundation

Lorraine Drapek FNP-BC, AOCNP

Massachusetts General Hospital


Elizabeth Bradley

Cambridge University Hospitals NHS Foundation Trust

Karen Driskill, RN, CHPN

Karen Driskill, RN, CHPN

Orange Regional Medical Center


Renuka Iyer, MD

Roswell Park Cancer Institute

Heidi Lowitzer, RN, CCRN

Heidi Lowitzer, RN, CCRN

Buffalo General Medical Center

Natasha Pinheiro, MSN, CNS, OCN, AGPCNP-BC, AOCNS

Natasha Pinheiro, MSN, CNS, OCN, AGPCNP-BC, AOCNS

Memorial Sloan Kettering Cancer Center

Michelle Pratt FNP-C

Salisbury VA Medical Center


Lauren Rosati, BS

Johns Hopkins Hospital


Serena Williams-Torres

Columbia University Medical Center

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