The Cholangiocarcinoma Foundation Board of Directors

Lillie Chen

Board Member, Lambertville, New Jersey Lillie Chen is a principal partner at P2P MedCom, a medical education firm located in Lambertville, NJ. Prior to a career in medical education, Lillie worked as an ophthalmic photographer/technician and then later as director of marketing for a national ophthalmic ambulatory surgery management firm, Vision 21. In that position, she was responsible for professional recruitment and development of the clinical and surgical team. She has a lifelong commitment to improving patient outcomes through physician and patient education. In conjunction with her work in ophthalmology she has served as a board member and surgical technician for “Luz Para Los Ojos”, a non-profit foundation that provides free ophthalmic care and surgeries to underserved countries. Lillie lost her brother, Thomas Ashe to...

Dawn Duchene Lyon

Secretary & Director of Communications/Public Relations, Trumbull, Connecticut Dawn has over 10 years experience in marketing with top agencies. As Senior Account Director for Crossbow Group, she directs marketing strategy, tactics and execution to build customer relationships and deliver measurable results. She holds a B.S. in Advertising from the SI Newhouse School of Communications at Syracuse University and an M.B.A. from The University of Connecticut. Her mother was diagnosed with cholangiocarcinoma in June...

Lawrence Goodfield

Treasurer, Philadelphia, Pennsylvania Larry is a senior manager with over eleven years of experience at pwc, a professional services firm. He provides assurance and advisory services to clients in the financial services industry, including investment funds, investment advisors, operators, real estate investment trusts and homebuilders. Larry serves both Philadelphia and New York clients. He has a bachelors of science in accounting from the Pennsylvania State University. Larry joined The Cholangiocarcinoma Foundation shortly after his father, Lawrence (Larry) Goodfield, was diagnosed with cholangiocarcinoma in February...

Stacie Lindsey

President, Herriman, Utah Stacie’s brother, Mark Clements, was diagnosed in 2005 and ultimately passed away from Cholangiocarcinoma on January 19, 2007. Stacie advocated for her brother, extensively researched treatment options and began networking with other patients, researchers and healthcare professionals. From this experience, the Cholangiocarcinoma Foundation was born. Stacie is a founding member and has served on the board of directors since its inception. Stacie resides in Salt Lake City, Utah, where she is the mother of five small children. She holds a Bachelor of Arts degree in Psychology from Brigham Young University, and is an active member in her church and...

Jason Scott, PhD

Board Member, Los Altos, CA Jason is the Managing Director of the Retiree Research Center at Financial Engines. Financial Engines is America’s largest independent Registered Investment Advisor working with more than 750,000 individual clients and managing over $90 billion in assets. The Retiree Research Center is dedicated to helping retirees plan and adjust to an uncertain retirement characterized by an unknown lifespan, unknown health level and unknown investment returns. Jason has published a number of journal articles in the area of retirement economics. His research has focused on optimizing investment strategies in retirement, behavioral biases in decision making, and optimal mortality-contingent insurance contracts. Jason received a B.S in economics from Texas A&M University and a Ph.D. in economics from Stanford University. Jason began working...

Sean Turbeville, PhD

Board Member, San Francisco, California Sean Turbeville, Ph.D. has 12 years of biotechnology experience and has worked extensively in Global Medical Affairs. His expertise is in orphan drug products and is responsible for setting up systems to support the launch of new therapies in the United States, Latin America, European Union, Asia Pacific, and the Middle East. Sean has worked closely with patient advocacy groups and ministries of health in an effort to make drug therapies available to patients with no alternative treatment options. Sean lives in San Francisco with his wife and daughter and joined the Foundation shortly after the death of his step-father, Bruce Schwartz from...

Emeritus Members

  • Demetrios Anaipakos, 2006-2010
  • Ray Clements, 2006-2010
  • Joni Craighead, 2006-2008
  • Sara Hinkley, 2006-2012
  • Mark James, 2006-2008
  • Dr. Rudolph Pena, 2006-2009
  • Rick Pollock, 2007-2012