Posts by Dawn Lyon

Research Grant Webinar – Monday, February 11th

Posted by on Feb 6, 2013 in Uncategorized | 0 comments

Webinar on Hepatobiliary Neoplasia Registry and Biorepository

Join us on Monday, February 11 at 12:00 p.m. eastern (9:00 a.m. pacific) for a presentation by Dr. Lewis R. Roberts from the Mayo Clinic in Rochester, MN on the three main types of studies he is performing regarding cholangiocarcinoma (bile duct cancer). Included will be details on the:

Research Plan
: The collected samples will be used for three main types of studies:

1. DNA samples from patients with cholangiocarcinoma will be used for a genome-wide association study to determine the genetic variants that confer risk for cholangiocarcinoma.

2. Serum samples from patients with cholangiocarcinoma will be used to validate new biomarkers for early detection and diagnosis of cholangiocarcinoma.

3. Tissue samples obtained at surgical resection will be implanted into immunodeficient mice to create patient derived xenografts and will also be snap frozen in liquid nitrogen for future comprehensive genome-wide molecular analyses such as is performed by the National Cancer Institutes Cancer Genome Atlas Project (TCGA).

Click here to register and attend this FREE webinar. 

This is one of four research grants funded in 2012 by the Cholangiocarcinoma Foundation. Thank you to everyone who supports us. We could not do it without you.

More research grant webinars are scheduled for later this month. Check back for more details soon.

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The Cholangiocarcinoma Foundation Announces Executive Director

Posted by on Feb 5, 2013 in Uncategorized | 0 comments

We would like  welcome Kim Crittenden, the new Executive Director for the Cholangiocarcinoma Foundation. Kim brings more than 20 years of experience as an administrator, program manager, volunteer and board member serving the non-profit sector. She will help direct the foundation for the coming years as it continues to grow in its support of those who are suffering with bile duct cancer, as well as lead the effort to fund research for a cure.
In her professional life she specializes in small, start-up, and growing non-profit organizations with experience in non-profit administration, program development and evaluation; volunteer recruitment and management; conference and special event planning; as well as grant writing and fundraising. She earned dual bachelor degrees in Sociology and Behavioral Science and Health from the University of Utah. Currently, she is finishing a Masters of Public Administration with an Executive Cohort at the University of Utah. She resides in the beautiful Heber Valley east of Salt Lake City with her son and cocker spaniel.
Welcome Kim. We look forward to a great 2013.
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February is Cholangiocarcinoma Awareness Month

Posted by on Feb 1, 2013 in Uncategorized | 0 comments

February is cholangiocarcinoma awareness month, and The Cholangiocarcnoma Foundation will be leading numerous events in February to help raise awareness of this rare cancer. Events includefundraising for 2013 research grants, awareness drives on Facebook and Twitter, spotlight webinars on research efforts, and much more.

 “February gives our community a dedicated month-long opportunity to focus their energy to educate the general public about cholangiocarcinoma (bile duct cancer) and the challenges associated with diagnosis, living with this cancer and finding a cure,” said foundation president, Stacie Lindsey. She added, “Similar to last year’s effort, we’ll be offering engaging and informative activities based on our mission of Collaboration, Understanding, Research and Education to assist with directing our efforts.” To participate or learn more visit the foundation’s web site at:

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Annual Board Meeting

Posted by on Oct 15, 2012 in Uncategorized | 0 comments

The Cholangiocarcinoma Foundation annual board meeting took place October 12, 2012. Plans for 2013 were approved as we continue to work toward the foundation’s mission of CURE – Collaboration, Understanding, Research and Education. During the meeting, the board voted in a new President, Stacie Lindsey. Stacie has been volunteering since the foundation’s inception and on the board for the past five years. Also added as the board’s Treasurer is Lawrence Goodfield. Lawrence is a Senior Manager with PricewaterhouseCoopers, LLP in Philadelphia. We look forward to his contribution. Find out more about the Foundation’s mission and board members at: and look for more details on the 2013 plans in the next few weeks.

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TheTim Hargis Race to Cure Cholangiocarcinoma

Posted by on May 29, 2012 in Uncategorized | 0 comments

Just a reminder about theTim Hargis Race to Cure Cholangiocarcinoma on June 9 at Coldstream park in Lexington KY. (right off I-64 and I-75).. Registration starts at 8 am, but pre-registration is available at and encouraged. The one mile fun walk starts at 9:30, 5k run and walk starts at 10 am. No registration fee; donations only and 100% of donations go to the Cholangiocarcinoma Foundation. There is also a trike a thon for kids 6 and under. Email for more information

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