As part of our ongoing educational series, The Cholangiocarcinoma Foundation invites you to join us for two upcoming web-based seminars that feature highlights of biliary tract research from a few of the annual meetings held in 2011.
We kick off August with a review of cholangiocarcinoma research. Dr. Ghassan K. Abou-Alfa from Memorial Sloan-Kettering Cancer Center will lead the discussion, which will include noteworthy updates from the 2011 Gastrointestinal Cancers Symposium and the 2011 American Society for Clinical Oncology Annual Meeting. A question and answer session will follow Dr. Abou-Alfa’s remarks.
At the end of August, The Cholangiocarcinoma Foundation, in partnership with the Primary Schlerosing Cholangitis Foundation, will host a webinar focused on biliary tract diseases. Dr. Sharon DeMorrow, PhD, from the Texas A&M; Health Science Center will lead this discussion, which will include noteworthy updates from the 2011 Digestive Disease Week Annual Meeting. A question and answer session will also follow Dr. DeMorrow’s remarks.
Please join us: August 30, 2011 – 12:00 p.m. Easter Daylight Savings Time (US)
Please keep an eye on our calendar
. Future webinars will spotlight updates on treatment options, as well as highlight active clinical trials available to the bile duct cancer community. If you know of a clinical trial or discussion topic that you would like to see featured, please contact Sara Hinkley at email@example.com
On Saturday, April 16, 2011, numerous bile duct cancer survivors and caregivers gathered in Mountain View, California for the annual Bile Duct Cancer Walk. The Bile Duct Cancer Walk traversed 5 kilometers in beautiful Shoreline Park, and was a great success!
The Bile Duct Cancer Walk began in 2008 after then-4th grader Denny Cmiel had an idea of how he could help after his aunt Levan Gray was diagnosed with bile duct cancer. Denny, along with his mom, Lynn Cmiel, organized the first bile duct cancer walk in honor of Levan Gray and Paul Ernst. Since 2008, this event has grown tremendously and resulted in thousands of dollars being donated to Johns Hopkins for their research in biliary tract cancers. The efforts of the family and friends of Levan Gray have also inspired other families across the US to walk on behalf of their loved ones, resulting in tandem walks being held this year in Sarasota, Florida; Oconomowoc, Washington; Temecula, California; and Ivoryton, Connecticut.
The event also brought together members of the online community here at www.cholangiocarcinoma.org. Marion Schwartz, Director of Advocacy at The Cholangiocarcinoma Foundation, attended and commented that “words cannot describe the powerful feelings we experience with coming face to face with someone we communicate with via our discussion board. With much surprise I met up with Barbara Hartley [who is a cholangiocarcinoma survivor since 2002] and her wonderful husband. It was absolutely terrific.”
Denny’s mom, Joyce Cmeil, provided a moving speech before the walk, thanking everyone for joining in the efforts and welcoming The Cholangiocarcinoma Foundation. The ongoing communications and common efforts between the Bile Duct Cancer Walk and The Cholangiocarcinoma Foundation is inspiring. Marion Schwartz further commented that “when leaving the event, I noticed that several people proudly wore the cholangiocarcinoma.org wristbands, which I believe reenforces our commitment of joining together in the quest of supporting research in order to find a cure for this cancer.”
Full details about the Bile Duct Cancer Walk can be found at www.bileductcancerwalk.org. Please visit the site to find details for the next walk, April 2012 in Mountain View, California, or to enquire about planning a tandem walk. Through this website you can also register to receive updates for next year’s event.
s part of our ongoing educational series, The Cholangiocarcinoma Foundation invites you to join us for the upcoming web-based seminar featuring a review of chemotherapy treatment for bile duct cancer. Dr. Milind Javle from MD Anderson Cancer Center will lead us in this webinar. A question and answer session will follow Dr. Javle’s remarks.
Dr. Javle will focus this discussion on the currently available chemotherapy treatments, as well as highlight some emerging treatment options for bile duct cancer. We encourage participants to submit questions in advance to Sara Hinkley at firstname.lastname@example.org.
Please join us: 12 April 2011 at 12:00 p.m. Eastern Daylight Time.
Future webinars will spotlight additional bile duct cancer treatments, as well as highlight active clinical trials avialable to the bile duct cancer community. If you know of a clinical trial that you would like to see featured, please forward these requests to Sara Hinkley
We would like to thank everyone for joining us in raising awareness for bile duct cancer during Cholangiocarcinoma Awareness Month in February. Thousands of motivated individuals around the world tweeted, baked cookies, socialized, held fundraisers, and contacted local government in an effort to raise awareness. Throughout the month, The Cholangiocarcinoma Foundation also hosted a series of webcasts, including spotlights on the Young Investigator Award, emotional health, and how to organize a local support group.
The fundraising campaign to support the Young Investigator Award raised over $38,000, and we continue to receive donations. Notably, Connie Croce, Valerie Shivers, and Mark Shivers created The Polar Bear Plunge fundraiser to help raise money and awareness for cholangiocarcinoma. This fundraiser was a local event off the coast of New York, where participants braved freezing cold temperatures to jump into the icy Atlantic Ocean. The event has been a huge success, bringing in over $23,000 in January and February. More details about this local fundraiser can be found at The Polar Bear Plunge First Giving site here. Many thanks to everyone that organized and participated in The Polar Bear Plunge! If you would like to organize a local fundraiser in your community, we have resources that will assist you with this endeavor! Please fill out our fundraising form, and once you have submitted the form, you will be able to access a document that provides guidance for leading a local fundraiser.
Our efforts at creating a video highlighting Cholangiocarcinoma are underway, but we still need your help. If you have not already done so, please consider recording a friend or colleague attempting to say “Cholangiocarcinoma” and email the digital video to Rick Pollock at email@example.com.
While the achievements in February have been well received, we know we can still do more. Please take some time to think of other awareness ideas that we can incorporate for the awareness month in 2012. All ideas can be submitted to firstname.lastname@example.org.
Again, thank you all for your continued support, and for participating in raising money and awareness last month. We ask that you please continue these efforts throughout the year, as we have much more work to do before Cholangiocarcinoma is recognized in the general population. Also, please continue checking our calendar for upcoming events!
The Cholangiocarcinoma Foundation is pleased to introduce an informational series focused on helping you get involved in with developing local resources for the cholangiocarcinoma community. Our first webinar is being led by our own Mark Stephens, who successfully built a support program at Winship Cancer Institute of Emory University. This webinar will address how to establish a local cholangiocarcinoma support group in your community, with detailed emphasis on the following issues:
- Definition of a local support group
- Why establish a local support group?
- Who should you enlist to help you establish this group?
- How to recruit attendees for the support group?
- Logistics and communication of establishing a support group
Following the presentation will be a question and answer session.
We welcome the community to forward your local efforts so that it can be featured in future webinars. Please forward details to Sara Hinkley at email@example.com.