Posts made in March, 2010

Board Member Changes

Posted by on Mar 26, 2010 in Uncategorized | 0 comments

We are very pleased to announce the addition of a new board member, Dawn Lyon. Dawn has over 10 years experience in marketing with top agencies. As Senior Account Director for Crossbow Group, she directs marketing strategy, tactics and execution to build customer relationships and deliver measurable results. She holds a B.S. in Advertising from the SI Newhouse School of Communications at Syracuse University and an M.B.A. from The University of Connecticut. Her mother was diagnosed with cholangiocarcinoma in June 2008. Dawn is amazing and we feel blessed to have her join us.

Sara Hinkley is now serving as the President of the foundation. Sara, has been with the foundation from the beginning. Her direction, insight and expertise will continue to move us toward our goals.

Ray Clements, former President will continue serving as a board member, we want to thank him for his time at the helm of the foundation.

I want to thank all of the board members, past and present. They have given of their time and talents to make a difference and move our efforts forward. Thank you so much!

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Spotlight on Clinical Trials: Capecitabine, Gemcitabine, and Radiation Therapy in Treating Patients With Cancer of the Gallbladder or Bile Ducts

Posted by on Mar 10, 2010 in Uncategorized | 0 comments

As part of our ongoing Spotlight on Clinical Trials series, The Cholangiocarcinoma Foundation invites you to join us for the upcoming web-based seminar featuring the active cholangiocarcinoma clinical trial entitled, “Capecitabine, Gemcitabine, and Radiation Therapy in Treating Patients With Cholangiocarcinoma of the Gallbladder or Bile Duct.” Principal Investigator Dr. Edgar Ben-Josef of the University of Michigan will lead the discussion of this clinical trial. A question and answer session will follow Dr. Ben-Josef’s remarks.
Please join us: March 23rd, 2010 – 11:30 a.m. Eastern Daylight Time
This clinical trial was developed by the Southwest Oncology Group, and is a multi-center phase II clinical trial studying how well giving capecitabine together with gemcitabine followed by capecitabine and radiation therapy works in treating patients with cancer of the gallbladder or bile duct. In this trial, participants receive oral capecitabine every 12 hours on days 1-14, and gemcitabine hydrochloride IV over 30 minutes on days 1 and 8. Treatment repeats every 21 days for 4 courses in the absence of disease progression or unacceptable toxicity. After the 12 week cycle concludes, participants begin receiving oral capecitabine every 12 hours on days 1-7, and undergo concurrent three-dimensional or intensity-modulated radiotherapy on days 1-5. Treatment repeats weekly for 5-6 weeks in the absence of disease progression or unacceptable toxicity.
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Creative Confections for Cholangiocarcinoma Awareness!

Posted by on Mar 9, 2010 in Uncategorized | 1 comment

Direct from Sweden, our very own Kris and Hans Jurgens helped raise awareness of bile duct cancer through discussion and creative confections! Kris and Hans made dozens of cookies, decorating them with the trademark Cholangiocarcinoma Foundation colors of green and white. Hans then took them to work, where he shared them with coworkers during a coffee break. Hans took time to explain Cholangiocarcinoma Awareness Month, and handed out bile duct cancer awareness bracelets to all his coworkers. While the incidence of bile duct cancer is low, bile duct cancer is of particular impact to Hans’ colleagues because in addition to Kris having bile duct cancer, one of Hans’ coworkers lost her mother to bile duct cancer last year.
Extremely discerning palates revealed that Kris and Hans are quite the chefs. Not only do these cookies look delicious, but they taste delicious as well! As Kris reported, one of the coworkers brought extra cookies home to his daughter. His 3-year-old daughter loved the cookies so much that she began crying when they were gone. She then phoned Kris and Hans to proclaim, “I like cookies. Can I have some more?” Yes, please! More cookies, and more awareness. Thank you Kris and Hans for finding such positive and creative ways of increasing awareness of bile duct cancer in your local community!
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Become a Fan of the Cholangiocarcinoma Foundation

Posted by on Mar 9, 2010 in Uncategorized | 0 comments


Hey everybody, thanks for being a part of the Cholangiocarcinoma Foundation family.

As some of you know, last week I was offered a challenge by a member of our discussion group and I accepted it.

The challenge? To get 2,500 fans on our new Facebook page by the end of March.

If we do, then I agreed that I’d become our “Miss Cholangiocarcinoma Pin-up Girl” for some pics and I’d subject myself to all of the trappings that would come with that. (YIKES!)

So click here, sign-in and click on “Become a Fan,” then get your friends to join and tell them to get their friends to join, and let’s see if we can stop at 2,499? K? Please? :)

Thanks,
Rick Pollock (the web guy)

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