Cholangiocarcinoma Foundation Privacy Policy for Application

Privacy Policy
| Print |

Welcome to the ___ application (the “Application”), operated by the Cholangiocarcinoma Foundation (“CCF”). This Privacy Policy addresses CCF’s practices regarding information collected from users of the Application and only addresses information collected directly through or from the Application – it does not address or govern any information-gathering, use, or dissemination practices related to information collected from a user (sometimes referred to as "you" or "your") other than directly through or from the Application, such as from telephone, facsimile, postal mail, personal delivery, or other or additional offline means or media.

This Privacy Policy is incorporated into CCF's Terms and Conditions for the Application by reference, as if set forth fully therein, which must be reviewed and accepted by you. The Application is not intended for children under the age of 18. It does not knowingly collect personal information from users in this age group.

If you have any questions concerning this Privacy Policy, please email CCF at

1. Collection of Personal Identifiable Information from Users.

The Application obtains the information you provide when you download and register the Application. Registration with us is optional. However, please keep in mind that you may not be able to use some of the features offered by the Application unless you register with us. In addition, we collect any information that you enter into the Application, which may include sensitive health information about you.

2. Use of Personally Identifiable Information Collected.

We may use personally identifiable information to deliver the Application to you, to communicate with you about your use of the Application, and to respond to your inquiries or requests. We may also use information that we collect to improve the Application, for our analyses, market research, project planning, troubleshooting problems, enforcing our Terms of Use, and detecting and protecting against error, fraud, or illegal or criminal activity. We may use information as necessary to enforce our rights against you or in connection with a breach by you of CCF’s Terms of Use. We may remove the elements of your information that could identify you, and may use and disclose the resulting “de-identified” information without restrictions. For example, CCF may create de-identified, statistical, and aggregate data to prepare reports about the Application that do not identify any individual users. From time to time, we may also ask for express consent to use your information for other purposes specified in such consent.

We may allow users to subscribe to e-mail newsletters and, from time to time, we may transmit e-mails promoting CCF or third-party goods or services. If you subscribe to these communications and choose to receive them via your personal e-mail, you should be aware that e-mail between you and us may not be secure.

3. Disclosure of Personally Identifiable Information to Third Parties

We may disclose Personally Identifiable Information to third parties as follows:

  • to Boston Scientific Corporation, who may use personally identifiable information for purposes of providing services on behalf of CCF as described in this Privacy Policy, and Boston Scientific may also de-identify personally identifiable information and conduct research and analyses using such de-identified information;
  • as required by law, such as to comply with an investigation, a subpoena, or similar legal process;
  • when we believe in good faith that disclosure is necessary to protect our rights, protect your safety or the safety of others, investigate fraud, or respond to a government request;
  • with our service providers who work on our behalf and who we have contractually required to process personally identifiable information as described in this Privacy Policy .
  • in connection with the sale, assignment, or other transfer of CCF’s business, we may transfer the information about you to the buyer, in which case we will require any such buyer or acquiring party to agree to treat the information in accordance with this Privacy Policy.

4. Protection of Your Information

We  will use commercially accepted methods to protect the security of personally identifiable information about you collected through the Application. You should keep in mind, however, that no internet transmission is ever 100% secure or error-free. Where you use passwords, ID numbers, or other special access features, we encourage you to take special care to safeguard them.

Users should consider the safety and privacy of their data before utilizing the export feature of the Application if they have concerns about their privacy and data safety.  Users should refrain from exporting data unless they are certain that the receiving email address is authorized, credible, and secure. Users should understand that anyone can view the data entered into the Application if their smartphone is outside of the user’s immediate control. We urge you to recognize and fulfill your responsibility to protect the privacy of your data by keeping your smartphone secure at all times. Your personal information will remains on your smartphone at all times and is synchronized and stored in fully encrypted database servers.

5. Automatically Collected Information

The Application may collect certain information automatically, such as the type of mobile device you use, your mobile devices unique device ID, the IP address of your mobile device, your mobile operating system, the type of mobile Internet browsers you use, and information about the way you use the Application.

6. Links to Other Applications

The Application may contain links to other web applications that are not under the control of CCF and, as such, we are not responsible for the privacy practices or content of such other web applications. This Privacy Policy applies solely to information collected on or submitted to the Application.

7. Children under the Age of Eighteen (18)

In order to comply with the Children's Online Privacy Protection Act, no part of the Application is directed at or intended for persons under the age of eighteen (18). By providing personal identifiable information through the Application including, but not limited to, your name and email address, you represent and warrant that you are at least eighteen (18) years of age and that you agree to comply with the Privacy Policy. If, at any time, CCF learns that personally identifiable information has been collected from persons under the age of eighteen (18) without verified parental consent, CCF will take the appropriate steps to delete such information.

8. Notification of Changes

You should review the Privacy Policy whenever you use the Application in order to be aware of the ways that your information is used. CCF reserves the right to change the Privacy Policy at any time, without prior notice. You may direct any questions or concerns in regards to the Privacy Policy or changes to it, to

9. Withdrawal of Information

Users are free to stop using the Application at any time. If a user chooses to delete the Application from their smartphone, their data will also be deleted from their smartphone. The data collected up until the date of deletion will remain on CCF’s servers.

10. Agreement

You must read and agree to this Privacy Policy in its entirety, prior to using any portion of the Application. By establishing an account on the Application, you agree to all the terms of the Privacy Policy. You are consenting to our processing of your personally identifiable information and Automatically Collected information as set forth in this Privacy Policy now and as amended by us. "Processing,” means using cookies on a computer/hand held device or using or touching information in any way, including, but not limited to, collecting, storing, deleting, using, combining and disclosing information, all of which activities will take place in the United States. If you reside outside the U.S. your information will be transferred to the U.S., and processed and stored there under U.S. privacy standards. By using the Application and providing information to us, you consent to such transfer to, and processing in, the US.

If you do not agree with the terms of this Privacy Policy, you may not use any portion of the Application.

CCF respects your privacy and has written the Privacy Policy so that you are aware of and understand that all of the information collected from you, is protected as well as how it is or may be used. If you have any questions, concerns or comments regarding the Privacy Policy, please contact info