New Intrahepatic Cholangiocarcinoma Clinical Trial from Cholangiocarcinoma Foundation on Vimeo. Intrahepatic cholangiocarcinoma affect approximately 2000 people a year in the US. Many patients are not able to have an operation to remove the bile duct cancer. We are preparing to enroll patients in a clinical trial which includes patients who can have an operation and…

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Feeling Guilty for Having Cancer from Cholangiocarcinoma Foundation on Vimeo. No one asks for cancer, but when the diagnosis is confirmed some patients feel guilty for being sick! In this informative webinar, Dr. Geret Giles discusses the phenomena of Patient Guilt and what we can do about it–for ourselves and for the ones we love.

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Grant Recipient Reports on Research Progress from Cholangiocarcinoma Foundation on Vimeo. Surbpong Tanasanvimon received a LIFe recipient grant from The Cholangiocarcinoma Foundation in 2012 this grant was awarded through the Conquer Cancer Foundation (which is the non-profit arm of ASCO). He recently had the opportunity to present his research at the 2013 GI Symposium.

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Tiffany asks: Dr. Giles: I’m fighting CC. I have a friend named Liza that is also fighting cancer (liver). She and I were friends before cancer. She is only 24, and I’m 30. Liza isn’t doing good. In fact she is about to die. How to I protect myself while show support to her family?…

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Dr. Lewis Roberts from The Mayo Clinical will highlight details about the patient registry at The Mayo Clinic, and how this registry can assist with efforts in advancing research of bile duct cancer.

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Cindy asks: My mother was diagnosed with cholangiocarcinoma in June 2007. She has surgery to remove a tumor the size of an orange in the right lobe of her liver. She then underwent 9 chemo treatments. In June of 2011 she was diagnosed with stage 4 cholangiocarcinoma that metastized to her lungs and lymph nodes,…

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Angela asks: Our offers to help our brother-in-law and his family seem empty but very much appreciated by them. We live an hour away, so its difficult to assist with coordinating meals, errands, and pick-up/drop-off for their daughter. We’ve hosted mass intentions for him, but feel that’s about all we can do. What emotional support…

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Beth asks: Hello, I am a 34 yr old caregiver to my husband who is also 34. Recently there is talk from our Dr.s that they might not be able to continue treatment. I’m sad. We have a 5 year old daughter and I don’t know how I will move on. My husband is obviously…

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Anjie asks: My brother was recently given his “expiration” date and it is really the elephant in the room disease.  It is very difficult to talk about which is the way our family has always been.  My question is more medical in nature, but don’t know who to go to.  He is beginning to be…

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Benjamin asks: My mother was just dx with Cholangiocarcinoma 3 weeks ago and my family and I are trying to get our heads around it. My Mother is 54 and wasn’t feeling good since December, she started having abdominal pain and losing weight. My mother is scared about the pain and is on the fence…

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Kate asks: Hi.  My partner has unexpectedly gotten through a whipples, and has now completed a round of chemo. Great, but she has now signed a non-intervention document, and is emptying the house of her belongings.  Our relationship is great, and I accept her right and choice, and while I am finding the emptying on…

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Have you found the clinical trial process confusing? Or are you looking for additional information on the available bile duct cancer clinical… posted: Feb. 19, 2010

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Cheryl asks: How can I be dying when I feel so good? Diagnosed with cholangiocarcinoma, Sept. 11 2009, have had Sir-Sphere treatment and many chemo treatments. Sometimes I feel ill, but generally I feel normal, happy and thankful. If I felt bad maybe I could come to grips with this disease that is killing me.…

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Melanie writes: Hey Doc, I’m the caregiver, and he’s so sick..so miserable. Nobody really seems to know anything about this disease. As the care giver? S.O., I’m overwhelmed. I think I’m starting to have panic attacks myself. I’ve been taking some homeopathic stuff for a week or so, seems to help a little, sometimes. I…

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George writes: Can you recommend a book that will guide me through preparing to succomb to cancer, one that will list some steps I need to do for my family. For example I’m getting around to finally doing a will etc. Thanks George, My friend Marion shared this link to a resource of the National…

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Joan writes: My husband & I have been married 7 years and he has 5 grown kids (27-36 yrs old) from a previous marriage. Recently, after being diagnosed (8/07) with cholangiocarcinoma we retired & moved to from NJ where all his kids live to our “dream” island of Hilton Head, SC. My husband is now…

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Charlene writes: My husband died 1 week and 1 day ago. We fought this cancer for 3 long years. How do I go on? My soul is dead. All I feel is agony every waking moment. I don’t know how to verbalize what is happening to me. My family just tells me to be strong,…

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