Posts by Allison Deragon
Five for Friday – 5 ways you can join Annual Conference fun
Our conference is jam-packed with fun games, trivia and more. We’ve created several ways for you to feel involved and connect with other CCF friends.
Read MoreCholangiocarcinoma Foundation partners with Japan Cholangiocarcinoma Association to Increase Global Advocacy for Bile Duct Cancer
CCF has partnered with the newly formed Japan Cholangiocarcinoma Association to serve patients, raise awareness, fund and create a network for research and healthcare providers in Japan and throughout Asia.
Read MoreFive for Friday – 5 patient-friendly videos
We teamed up with Mill Pond Communications, with support from QED Theraputics and Bayer to create several patient-friendly videos explaining important topics about CCA.
Read MoreFive for Friday – 5 ways that you can participate in World Cholangiocarcinoma Day
World Cholangiocarcinoma (CCA) Day is an international effort to raise much-needed awareness of CCA. This disease is increasing in incidence globally and we believe collaboration is crucial to move forward towards a cure.
Read MoreFive for Friday – 5 ways you can get involved in Awareness Month
This month, we invite everyone to participate in Cholangiocarcinoma Awareness Month. Let’s work together to raise much-needed awareness by shining a light on CCA throughout the world.
Read MoreFive for Friday – 5 clinical trials presented at GI ASCO
The American Society of Clinical Oncology Gastrointestinal Cancers Symposium (GI ASCO) recognizes the important role clinical trials play in cancer advancements, especially GI cancers.
Read MoreCholangiocarcinoma Foundation Celebrates 15th Anniversary Milestone
In 2021, the organization will celebrate its rich history and the many individuals and organizations who have contributed to the organization’s growth and the impact it has made in the cancer community.
Read MoreFive for Friday – 5 takeaways from GI ASCO
GI ASCO is a global symposium that delivers the latest and most innovative science, research, and multidisciplinary educational content in the GI cancers field.
Read MoreCholangiocarcinoma Foundation Launches Trusted Partners Program
Collaboration is a core value at CCF and is fundamental to the Foundation’s growth and ability to provide high-quality programs and services to the CCA community.
Read MoreFive for Friday – 5 reasons why you should participate in research with Ciitizen
You are the future of research, and we want you to know that your validated data matters. When you request your health records and share your data with Ciitizen, you are helping us find a cure for cholangiocarcinoma (CCA).
Read MoreFive for Friday – 5 events to add to your calendar as we begin the new year
We hope you had a Happy New Year! Exciting things are happening at Cholangiocarcinoma Foundation (CCF) this year, including celebrating our 15th Anniversary and more.
Read MoreFive for Friday – 5 impactful ways you can make a year-end gift
As 2020 comes to a close, there are a number of opportunities to support the work of the Cholangiocarcinoma Foundation. Your Year-End Giving can make a long-term impact.
Read MoreFive for Friday – 5 ways you can get involved with the 2021 Annual Conference
There is a lot of planning that goes on behind the scenes and we are working hard to make it the best conference yet. This week we are sharing 5 ways you can get involved with the 2021 Annual Conference now.
Read MoreCholangiocarcinoma Foundation celebrates FDA’s Breakthrough Therapy Designation for Zanidatamab in Patients with Biliary Tract Cancer
The Cholangiocarcinoma Foundation (CCF) celebrates the November 30, 2020 FDA breakthrough therapy designation for Zanidatamab in patients with previously-treated HER2 gene-amplified biliary tract cancer. A HER-2 or Human Epidermal Growth Factor Receptor 2 mutation occurs when cancer causes the HER-2 cell to produce too much protein, resulting in cells dividing and growing too fast. HER-2…
Read MoreFive for Friday – 5 ways you can get involved in Candles for the Cure
This holiday season, we are asking everyone to take part in our annual year-end holiday campaign called #CandlesForTheCure by lighting a virtual candle in honor or memory of friends or family who have been affected by cholangiocarcinoma.
Read MoreCholangiocarcinoma Foundation celebrates FDA’s Acceptance Of New Drug Application For Infigratinib For The Treatment Of Cholangiocarcinoma
On behalf of patients and families impacted by cholangiocarcinoma, the Cholangiocarcinoma Foundation (CCF) celebrates the December 1, 2020 FDA acceptance of Infigratinib. QED Therapeutics, is a subsidiary of BridgeBio, which is focused on precision medicine for FGFR-driven cancers. Infigratinib is an oral FGFR1-3 selective inhibitor, for individuals with cholangiocarcinoma, or cancer of the bile ducts.…
Read MoreFive for Friday – 5 sales that will be going on this weekend
Holiday sales events are happening from November 27th – December 1st. Need a housewarming gift? A sweatshirt or hat to keep you warm this winter? A stocking stuffer? Look no further than the CCF Awareness Store.
Read MoreStacie Lindsey to Receive Luminary Award for Advances in GI Cancers
Stacie C. Lindsey, Chief Executive Officer & Founder of the Cholangiocarcinoma Foundation is one of five leading individuals who will receive a Luminary Award in GI Cancers from OncLive and The Ruesch Center at their virtual 11th Annual Ruesch Symposium. The award winners are being honored for their lifetime achievements focused on finding cures for…
Read MoreFive for Friday – 5 ways you can give back to CCF
The reason the holidays are “the most wonderful time of the year” is that we’re reminded to be thankful, reflect on our blessings, and do acts of kindness that bless us in return. As the holiday season approaches celebrate the spirit of the season by giving back.
Read More#GivingTuesday 2020
Giving is not just about making a donation, it’s about making a difference! Last year on Giving Tuesday, people came together on Facebook to raise more than $120 million to support the causes they care about. This year, you can participate in #GivingTuesday by sharing a UNselfie, which tells the world why it’s important to…
Read MoreFive for Friday – 5 projects that you can participate in
In our most recent November Volunteer Meeting, we discussed the newest projects that we are working on and how YOU can get involved. No matter your skills or availability, we have a place for you.
Read MoreFive for Friday – 5 of our newest items in the CCF Awareness Store
Need a housewarming gift? A sweatshirt or hat to keep you warm this winter? Look no further than the CCF Awareness Store. This week we’d like to highlight 5 of our newest items!
Read MoreFive for Friday – 5 great ways to support CCF in our mission to find a cure and improve the quality of life for patients
As we approach the end of the year and giving season, here are 5 great ways to support CCF in our mission to find a cure and improve the quality of life for patients.
Read MoreFive for Friday – 5 ways you can get involved with CCF
The Holiday Season is approaching us and will be here before we know it. This week we’d like to share 5 ways you can get involved with the CCF community and help make a difference.
Read MoreCCF wants you to join it’s first ever Turkey Trot
Join the Cholangiocarcinoma Foundation’s first Virtual Turkey Trot Run/Bike/Walk! TeamCCF and the Cholangiocarcinoma Foundation are hosting their 1st Annual Virtual Turkey Trot. It is open to different physical activities such as running, biking, or walking. The goal is to encourage participation in healthy and fun physical activity while raising funds for cancer research. Participants choose…
Read MoreFive for Friday – 5 of our latest blog posts
The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements. Patients share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation.
Read More2021 Cholangiocarcinoma Foundation’s Annual Conference
We are pleased to announce that the 8th Annual Cholangiocarcinoma Foundation Conference will be held virtually March 31st- April 2nd, 2021. John Bridgewater, MD, PhD of the UCL Cancer Institute, London and Funda Meric-Bernstram, MD of MD Anderson Cancer Center will Co-Chair the event.
Read MoreFive for Friday – 5 exciting events that are happening soon
We want to make sure you’re in the know. This week we’d like to share 5 exciting events that are happening soon. Be sure to add these events to your calendar and share them with your friends and family.
Read More2021 Cholangiocarcinoma Annual Conference to be held March 31 Through April 2, 2021
Drs. Bridgewater and Meric-Bernstram to Chair The 8th Annual Cholangiocarcinoma Foundation Conference will be held virtually March 31st- April 2nd, 2021. John Bridgewater, MD, PhD of the UCL Cancer Institute, London and Funda Meric- Bernstram, MD of MD Anderson Cancer Center will Co-Chair the event. Dr. Bridgewater specializes in gastrointestinal oncology, with a particular interest…
Read MoreShould I get a Second Opinion?
Mike Shane Memorial Fund (MSMF) just recently turned one! In the past year MSMF has helped 7 cholangiocarcinoma patients get a second opinion. All donations they receive go to second opinions.
Read MoreFive for Friday – a few ways you can easily give back to the Cholangiocarcinoma Foundation
Every contribution, regardless of size, makes a difference and is an investment in education, research, and advocacy to find a cure for cholangiocarcinoma.
Read MoreFive for Friday – 5 resources that will help find the right clinical trial for you
Finding a cure is at the heart of all we do for our patients and clinical trials are essential to our mission. This week we’d like to share 5 resources that will help find the right clinical trial for you!
Read MoreFive for Friday – 5 ways YOU can get involved in Rare Cancer Day to help us spread awareness
We cannot do this without your help! This week we’d like to share 5 ways YOU can get involved in Rare Cancer Day to help us spread awareness.
Read MoreRare Cancer Day 2020
Don’t forget to mark your calendar for Rare Cancer Day, on September 30th. The Cholangiocarcinoma Foundation (CCF) partners with NORD every year to join together and raise awareness for rare cancers, specifically cholangiocarcinoma.
Read MoreFive for Friday – 5 ways to use nutrition to fight cancer
This week we’d like to share 5 resources that explain the benefits of nutrition while being treated for cancer.
Read MoreGrateful Patient Day 2020
On September 7th, 2020 the Cholangiocarcinoma Foundation (CCF) participated in Grateful Patient Day. Each year, Grateful Patient Day spotlights stories of gratitude for doctors, nurses, researchers, medicines and procedures that help patients.
Read MoreFive for Friday – 5 ways you can share your gratitude
In preparation for Grateful Patient Day, we’d like to share 5 ways you can share your gratitude for those that have helped in your cholangiocarcinoma journey – whether it be doctors, nurses, researchers, therapists, or technicians.
Read MoreFive for Friday – 5 Resources to Help Navigate Depression.
During our 2020 Annual conference, Incyte shared the results from a 700 patient survey. The survey found that the quality of life for patients with cholangiocarcinoma is heavily impacted by a host of symptoms and side effects, including depression that may be severe.
This week we’d like to offer 5 reliable resources to help navigate through depression.
Read MoreFive for Friday – 5 Events to Add to Your Calendar
We have some amazing events planned in the future that you’re going to want to be a part of. Whatever your personality or interest there is something for you.
This week we are sharing 5 upcoming events that you’ll want to add to your calendar.
Read MoreFive for Friday – 5 tips on how to get behind Biomarkers Matter
Cholangiocarcinoma Foundation (CCF) is a proud member of The Working Consistent Group. Together with 41 other advocacy organizations, we committed to clarifying and promoting consistent use of common terms for biomarker and germline genetic testing.
Read MoreFive for Friday – 5 fundraising events
We are SO thankful for all of our volunteers who work tirelessly to support CCF in any way they can. “One of the greatest gifts you can give is your time.” This week we would like to highlight 5 events that our amazing volunteers put together.
Read MoreFive for Friday – 5 highlights from the Annual Conference
Each week, we’re going to offer five tips that will help you stay educated, informed and hopeful about all things cholangiocarcinoma.
Our 2020 Annual Conference was unforgettable! We would like to extend our sincerest thanks to all those who joined us online during the 2020 Virtual Annual Conference. Over 1,600 individuals from 49 states and 44 countries registered, which is 3x more than our previous conference!
During the conference, we presented exciting new research collaborations, programs, and more crucial information that will continue to move us toward better treatment options for patients.
If you missed it, we’d like to share 5 highlights from the conference.
Read MoreThe 2020 Annual Conference was a Success!
We would like to extend our sincerest thanks to all those who joined us online during the 2020 Virtual Annual Conference on July 22-24th. More than 1,600 individuals from 49 states and 44 countries representing healthcare, industry, patient advocacy organizations, patients, caregivers, academia, and supporters logged in for 3 days of connection through inspirational stories…
Read MoreCholangiocarcinoma Foundation Consortium Moves to Clarify and Promote Consistent Use of Common Terms for Biomarker and Germline Genetic Testing
Improved Communication Is Vital Between Patients and Providers About Testing Needs WASHINGTON, DC (July 7, 2020) — A LUNGevity Foundation-led consortium of 41 leading patient advocacy organizations, professional societies and industry partners has published a white paper detailing recommendations for the use of testing terminology in precision medicine for patient education throughout the cancer community.…
Read MoreFive for Friday – 5 things to do before the conference
Each week, we’re going to offer five tips that will help you stay educated, informed and hopeful about all things cholangiocarcinoma.
CCF’s Annual Conference has gone virtual, that means EVERYONE can attend!
In preparation, we’d like to share 5 things to do before the conference.
Read MoreFive for Friday – 5 ways you can win prizes at this year’s Annual Conference
Each week, we’re going to offer five tips that will help you stay educated, informed and hopeful about all things cholangiocarcinoma.
CCF’s Annual Conference has gone virtual, that means EVERYONE can attend!
This week we present 5 ways you can win prizes at this year’s Annual Conference.
Read MoreFive for Friday – 5 ways you can get involved with Moving for the Cure
Each week, we’re going to offer five tips that will help you stay educated, informed and hopeful about all things cholangiocarcinoma.
CCF is holding it’s first athletic fundraiser: Moving for the Cure! Enjoy any activity, anywhere, and raise money for the Cholangiocarcinoma Foundation. All ages and athletic abilities can participate.
This week we present 5 ways you can get involved with Moving for the Cure.
Read MoreFive (really, eight) for Friday – 5(+3) reasons why this is a can’t miss conference
For this week’s “5 for Friday”, we changed it up a little bit! We’re proud to present 5 (+3) reasons why this is a can’t-miss conference!
Read MoreFive for Friday – 5 ways to stand up against racism and injustice
Five for Friday was created as a way to provide tips to help navigate you through these difficult times. We are saddened by the recent death of George Floyd, Breonna Taylor, Ahmaud Arbery and others.
In an effort to adapt to the current events we have decided to share 5 ways to stand up against racism and injustice.
Read MoreFive for Friday – Get moving safely now that restrictions are being lifted
Each week, we’re going to offer five ways you can fight COVID-19, this week we’d like to share 5 ways to get moving safely now that restrictions are being lifted.
Read MoreFive for Friday – Getting Involved with Research (from Home!)
Each week, we’re going to offer five ways you can fight COVID-19, overcome the fear of the unknown and deal with the uncertainty of this situation.
This week, 5 ways you can get involved with research (from home!)
Read MoreFive for Friday – Dealing with Financial Worries
Each week, we’re going to offer five ways you can fight COVID-19, overcome the fear of the unknown and deal with the uncertainty of this situation.
This week, 5 things to do if you’re worried about your finances during COVID-19.
Read MoreFive for Friday – Grocery Shopping
Each week, we’re going to offer five ways you can fight COVID-19, overcome the fear of the unknown and deal with the uncertainty of this situation.
This week, 5 Tips for Grocery Shopping During a Pandemic.
Read MoreFive for Friday – Working from Home
Each week, we’re going to offer five ways you can fight COVID-19, overcome the fear of the unknown and deal with the uncertainty of this situation.
This week, 5 Tips for Working Remotely.
Read MoreCOVID-19 Guide for CCA Patients
The Cholangiocarcinoma Foundation (CCF) has been closely monitoring the global Coronavirus (COVID-19) situation and its potential impact on cholangiocarcinoma patients.
Read MoreMusically Inclined Patients & Survivors- This is for you!
We wanted to share an exciting new program that our friends at Stand Up To Cancer (SU2C) recently launched. The SU2C Canada Kate McGarrigle Fund Music As Healing Grant Program is an initiative that encourages songwriter cancer patients and survivors to share their cancer journey through original music compositions. Applications for the program are open…
Read MoreEverything Happens for a Reason
About a month ago my dad got a Facebook message from Carlos, a good friend living in Guatemala. He mentioned that he was coming to the United States with his family soon and was asking about places he should visit in Utah. My dad recommended Zion National Park, Arches National Park and a few other…
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