Posts by Jennifer Weaver
‘Think tank’ of multidisciplinary experts develop proposals to leverage precision medicine in improving cholangiocarcinoma patient outcomes
Cholangiocarcinoma Foundation sponsored C2T2 in Las Vegas with funding from a generous donor Twenty-nine expert scientists and clinicians from the world’s leading academic institutions developed potentially transformative project proposals while gathered in Las Vegas for a two-day think tank meeting called, Cure Cholangiocarcinoma Think Tank (C2T2). A white paper summarizing the critical discussion themes and…
Read More🤚🏻 Five for Friday – Meet Some of CCF’s Valued Experts
Home / Blog / 🤚🏻 Five for Friday – Meet Some of CCF’s Valued Experts Collaboration is essential for cholangiocarcinoma research. This month, join us in appreciating our medical professionals. We are recognizing them each week this month. Here are six of those valued experts: Scientific & Medical Advisory Board (SMAB) R. Kate (Katie) Kelley…
Read More🤚🏻 Five for Friday – 5 Questions to Ask Your Doctor About Biomarker Testing + 2 Biomarker Stories
Home / Blog / 🤚🏻 Five for Friday – 5 Questions to Ask Your Doctor About Biomarker Testing + 2 Biomarker Stories Knowing what to ask your doctor after a cholangiocarcinoma diagnosis isn’t always easy. CCF is here to help with five questions you can ask regarding biomarker testing and new videos to explain IDH mutations: Can…
Read MoreGovernor’s Signature Brings Awareness to Rare Cancer
COLUMBUS – Ohio Governor Mike DeWine signed into law this morning House Bill 537, legislation sponsored by State Representative Cindy Abrams (R-Harrison) to designate February 12 as Cholangiocarcinoma (pronounced koh-LAN-jee-oh-KAR-sih-NOH-muh) Awareness Day. “I’m proud to sponsor this important legislation. With more awareness, we hope to give patients and medical providers the foresight to catch this…
Read More🤚🏻 Five for Friday – 5 Ways to Support 21 Miles of Hope
Home / Blog / 🤚🏻 Five for Friday – 5 Ways to Support 21 Miles of Hope In 2016, Jonathan Whiting lost his wife, Lori, to cholangiocarcinoma (CCA). He is swimming across the English Channel in July to honor her memory and raise awareness and research funds for CCA. Tomorrow, he is swimming 12 miles…
Read MoreGlobal patient registry to expand cholangiocarcinoma knowledge worldwide offered by Cholangiocarcinoma Foundation in partnership with Invitae
Global patient registry to expand cholangiocarcinoma knowledge worldwide offered by Cholangiocarcinoma Foundation in partnership with Invitae The Cholangiocarcinoma Foundation (CCF) in partnership with Invitae has updated its global patient registry, offering a unique international data pool for cholangiocarcinoma (bile duct cancer) history and treatment worldwide. The updated International Cholangiocarcinoma Patient Registry (ICPR) is designed to…
Read MoreHappy Retirement to Donna Mayer
The Cholangiocarcinoma Foundation announces the retirement of Donna Mayer. Donna worked tirelessly to help build CCF into a trusted, global source of cholangiocarcinoma information and resources. Her work on the CCF annual conference and research fellowship programs was exceptional and helped to extend the work of CCF across the globe. For nearly a decade, Donna led programs and developed policies that increased awareness about…
Read MoreBill recognizing Cholangiocarcinoma Awareness Day clears Ohio Senate, heads to governor
Rep. Cindy Abrams (R-Harrison) The Cholangiocarcinoma Foundation congratulates Rep. Cindy Abrams (R-Harrison) and the Ohio legislature for the passage of House Bill 537. The legislation sponsored by Abrams designating February 12 as Cholangiocarcinoma Awareness Day unanimously passed the House Health Committee, Senate Health Committee and the Ohio House. On Wednesday, the bill was also favorably…
Read More🤚🏻 Five for Friday – 5 Episodes of Cholangio Heroes
Home / Blog / 🤚🏻 Five for Friday – 5 Episodes of Cholangio Heroes The Foundation is pleased to announce its first-ever video podcast, Cholangio Heroes. A wide array of guests impacted by cholangiocarcinoma are featured in each weekly episode. Cholangio Heroes can be found on CCF’s YouTube Channel, Spotify, Podbean, Frontliners TV, HeroGo TV, Local Now, VivaLive…
Read MoreInnovative ‘think tank’ comprised of cholangiocarcinoma experts to meet to develop concrete project ideas to advance the field
Twenty-nine expert scientists and clinicians from the world’s leading academic institutions are convening in Las Vegas for the first time in a three-day meeting, Cure Cholangiocarcinoma Think Tank (C2T2). The working meeting, May 12-14, was made possible through generous donations to the Cholangiocarcinoma Foundation, the premier global resource in research, education, and public awareness of…
Read MoreEnjoy any activity, anywhere, and raise money to help fund a cure for cholangiocarcinoma, a rare cancer of the bile ducts
SALT LAKE CITY, UT – TeamCCF is inviting athletes who want to fundraise for the Cholangiocarcinoma Foundation to do so in a fun and positive way. Moving for the Cure takes place July 24-30, 2022, and involves participants of all ages, and any athletic ability, raising money through a fitness event of their choosing. Participants…
Read MoreAnnual Conference & Cholangiocarcinoma Awareness Month Highlights
The 9th Annual Cholangiocarcinoma Foundation Conference was a success. More than 50 guest speakers, 40 poster presentations, and several networking events was attended by more than 250 in-person attendees and more than 900 virtually from around the world. The three-day gathering was thanks to sponsors and the leadership of co-chairs Jesper Anderson, PhD, and Lipika…
Read More60-year-old St. Louis man trains to swim the English Channel to honor his late wife who died from cholangiocarcinoma
Jonathan Whiting raises rare bile duct cancer awareness with ‘21 Miles of Hope’ fundraising campaign to benefit the Cholangiocarcinoma Foundation For nearly two years, Jonathan Whiting has been training to swim the English Channel in honor of his late wife, Lori Whiting, and to raise awareness and funds for the Cholangiocarcinoma Foundation. The rare bile…
Read More2022 Annual Conference Photography & Videography
Thank you for being willing to have your photograph taken and to be interviewed during the 9th Annual Cholangiocarcinoma Foundation Conference. WHERE TO GO Please be prepared to receive text messages informing you to come to room 255A for your photo and interview. You can access the room by entering the meeting area of 255, then…
Read More9th Annual Cholangiocarcinoma Foundation Conference features expert speakers, 40 poster presentations from around the world
The 9th Annual Cholangiocarcinoma Foundation Conference begins on Wednesday, Feb. 23rd, and takes place at the Salt Palace Convention Center. The three-day conference is presented by the nonprofit Cholangiocarcinoma Foundation and is also offered virtually. Attendees and presenters from around the world represent healthcare, industry, advocacy organizations, patients, caregivers, academia and regulatory bodies. Registration is…
Read MoreFive for Friday – CCF in the news
Home / Blog / Five for Friday – CCF in the news Raising awareness about cholangiocarcinoma can save lives. The Cholangiocarcinoma Foundation is grateful for its community members who help spread awareness about this rare cancer. Below are five (5) pieces of media coverage about cholangiocarcinoma: Cholangiocarcinoma Foundation on KTVX – ABC4 A Veterans Day…
Read MoreFive for Friday – 5 milestones to cherish in 2021
Home / Blog / Five for Friday – 5 milestones to cherish in 2021 Join us in welcoming 2022! It is going to be extraordinary. The Foundation is working on many more collaborative opportunities. Every project, partnership, and initiative the Foundation is involved with centers around patients. Supporting patients to render cholangiocarcinoma a treatable disease…
Read More15th Anniversary of Cholangiocarcinoma Foundation commemorated for #GivingTuesday with a $50,000 match from a donor
The Cholangiocarcinoma Foundation has been celebrating its 15th anniversary throughout 2021 and is continuing to observe the milestone by participating in #GivingTuesday. The global giving movement began in 2013 and is the world’s largest generosity movement. It is also considered by many as the opening day of the giving season. The generosity of donors to…
Read MoreFive for Friday – 5 Caregiver Resources
Home / Blog / Five for Friday – 5 Caregiver Resources Celebrated every November, National Family Caregivers Month (NFCM) is a time to recognize and honor family caregivers across the country. The Cholangiocarcinoma Foundation is proud to recognize NFCM and the individuals who support their loved ones through the cancer journey and beyond. Thank you,…
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