The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements. Contributors like patients Christy Landon and Bekki Slater, along with caregivers Dave Fleischer and Jessica Thomas, share news and personal anecdotes. The blog serves as a resource to get familiar with the work of the Foundation. Keep an eye out for new posts as together we explore the world of cholangiocarcinoma and the tireless work towards a cure!

We're always looking to share good news. If you have something you'd like to share, please reach out to Allison Deragon.

Five for Friday – 5 ways volunteers lead the change

By Allison Deragon | April 1, 2022

Home / Blog / It’s time to celebrate how volunteers serve with #ccahope. The Foundation is thankful to all of the incredible volunteers who inspire…

Racing for Hope Journal Entry 13

By Delorean Ostrom | March 28, 2022

We sit here a little over 3 weeks past marathon #3 and a little less than a month from marathon #4. The podcast I was…

Five for Friday – 5 CCF Resources

By Cholangiocarcinoma Foundation | March 25, 2022

Home / Blog / The Foundation’s website is full of important educational information for cholangiocarcinoma patients. Here are five (5) resources at your disposal. For…

Five for Friday – 5 ways to use nutrition to fight cancer

By Allison Deragon | March 18, 2022

Home / Blog / Happy National Nutrition Month! “Nutrition is an important thing to consider when you’re getting cancer treatment. Eating healthy foods before, during,…

Racing for Hope Journal Entry 12

By Delorean Ostrom | March 11, 2022

Race #3 was awesome, and it was followed by 3 days of some incredible rest! On the third day of rest, I was interviewed by…

Five for Friday – 5 Annual Conference Sessions

By Allison Deragon | March 11, 2022

Home / Blog / The 9th Annual Cholangiocarcinoma Foundation Conference was a tremendous success! Attendees helped to assemble 1,500 care kits for newly diagnosed patients, 200+ people…

60-year-old St. Louis man trains to swim the English Channel to honor his late wife who died from cholangiocarcinoma

By Jennifer Weaver | March 8, 2022

Jonathan Whiting raises rare bile duct cancer awareness with ’21 Miles of Hope’ fundraising campaign to benefit the Cholangiocarcinoma Foundation For nearly two years, Jonathan…

Racing for Hope Journal Entry 11 – Marathon #3

By Delorean Ostrom | March 6, 2022

Just a couple days after finishing marathon #2, I was back to running and training for the next race. Five days after race #2, we…

Five for Friday – 5 pages to review in the CCF Annual Report

By Allison Deragon | March 4, 2022

Home / Blog / Thanks to your support, the Cholangiocarcinoma Foundation community has continued to grow with its core value of putting patients first. Here…

Monthly Scientific Update – March 2022

By Cindy Thomas | March 3, 2022

Carl Scheitrum spent more than 1,000 volunteer hours in 2021 updating the International Cholangiocarcinoma Patient Registry. Carl’s information technology experience played a crucial role in…

Racing for Hope Journal Entry 10 – Marathon #2

By Delorean Ostrom | March 2, 2022

So, it has been 2 weeks since marathon #2, and I’ve had some time to reflect on it. I need to be transparent. The couple…

$550,000 in research grants awarded by the Cholangiocarcinoma Foundation to fund early-career investigators at renowned institutions

By Cholangiocarcinoma Foundation | February 25, 2022

Research grants were made to Amsterdam University Medical Center, Duke University, Icahn School of Medicine at Mount Sinai, Johns Hopkins University School of Medicine, Khon…