Our Blog...Cholangio-what??

The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements.  Contributors like patients Sarah Bennett, Cait Telaak, Helen Scott, Susan Braden, George Riddle, Lisa Layton, and Marcia Van Gorden share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation.  Keep an eye out for new posts as together we explore the world of Cholangiocarcinoma and the tireless work towards a cure!

We're always looking to share good news.  If you have something you'd like to share, please reach out to Allison Deragon at allison.deragon@cholangiocarcinoma.org.

New Weekly CCF Webinar Series

By Rick Pollock | April 28, 2020

You spoke and we listened! The Cholangiocarcinoma Foundation CCF is excited to announce our newest series of webinars. Each week we will bring you the…

A Clinical Trial Saved My Life

By Melinda Bachini | April 27, 2020

Diagnosed with stage IV cholangiocarcinoma, I enrolled in a study investigating tumor-infiltrating lymphocyte therapy. That was 10 years ago.

Five for Friday – Benefits of Volunteering

By Rick Pollock | April 24, 2020

Each week, we’re going to offer five ways you can fight COVID-19, overcome the fear of the unknown and deal with the uncertainty of this situation.

This week, 5 Benefits from Volunteering.

High-Five for Volunteers

By Cindy Thomas | April 19, 2020

“Volunteers do not necessarily have the time, they have the heart.”  Today CCF celebrates what volunteers do year-round. To our volunteers, you truly make an…

FDA Approves Pemigatinib for Advanced Cholangiocarcinoma

By Rick Pollock | April 18, 2020

FDA Approves Incyte’s Pemazyre™ (pemigatinib) as First Targeted Treatment for Adults with Previously Treated, Unresectable Locally Advanced or Metastatic Cholangiocarcinoma WILMINGTON, Del.–(BUSINESS WIRE)–Apr. 17, 2020– Incyte (Nasdaq:INCY)…

The Beginning

By Penny Castle | April 9, 2020

Around 9 o’clock on a Saturday night in January 2017, I heard weird noises in the bathroom. I opened the door to find my son…


By Rick Pollock | April 8, 2020

Our friends at D2 Creative and Mill Pond Communications answered the #UNOpenBrief to help #STOPTHESPREAD of #COVID19. Their answer: an ILLUMINATION to help reduce face touching in the form of a playful 30-second PSA.

CDC Guidelines for Cloth Face Coverings

By Rick Pollock | April 6, 2020

CDC recommends wearing cloth face coverings in public settings where other social distancing measures are difficult to maintain (e.g., grocery stores and pharmacies), especially in areas of significant community-based transmission.

Volunteer Appreciation Month!

By Cindy Thomas | April 1, 2020

Today CCF celebrates what volunteers do year-round. To our volunteers, you truly make an incredible difference in the work, and we thank you! Happy Volunteer Appreciation Month!

Live Webinar: Navigating Your Care in Uncertain Times

By Rick Pollock | March 31, 2020

During these unprecedented times Dr. Javle and Dr. Kelley will answer your questions to help address the specific care, treatment, and access needs of our community during the COVID-19 pandemic.

Coronavirus: What People with Cancer Should Know

By Rick Pollock | March 30, 2020

Some types of cancer and treatments such as chemotherapy can weaken your immune system and may increase your risk of any infection, including with SARS-CoV-2, the virus that causes COVID-19.

Three Tips for Reluctant Superheroes

By Penny Castle | March 28, 2020

Home / COVID-19 / Three Tips for Reluctant Superheroes None of us wanted it, Cholangiocarcinoma has thrust us, kicking and screaming into the role of…