Our Blog...Cholangio-what??

The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements.  Contributors like patients Sarah Bennett, Cait Telaak, Helen Scott, Susan Braden, George Riddle, Lisa Layton, and Marcia Van Gorden share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation.  Keep an eye out for new posts as together we explore the world of Cholangiocarcinoma and the tireless work towards a cure!

We're always looking to share good news.  If you have something you'd like to share, please reach out to Allison Deragon at allison.deragon@cholangiocarcinoma.org.

Even Keel – Andy Tebbutt’s Story

By Cait Telaak | January 23, 2018

I can’t speak for other rare cancer populations, but the cholangiocarcinoma community is fairly tight knit.  In some ways, we are like members of the…

Roller Coaster – Barry Cohen’s Story

By Cait Telaak | January 16, 2018

Written by Cait with edits of style and flair by Barry Cohen Depending on your perspective, roller coaster might have a negative connotation.  For Barry…

Radiation Part II

By Cait Telaak | January 2, 2018

And we’re back!  I meant to have this up last week, but between the holidays and family in town, that ambition crashed and burned in…

Treatment Modalities: Radiation

By Cait Telaak | December 19, 2017

I began the last treatment modality post with a tease about controversial cholangiocarcinoma treatments.  Liver transplant is arguably one of the more misunderstood modalities, but…

Persistence – Jess Maher’s Story

By Cait Telaak | December 5, 2017

Imagine for a second that there is a checklist that describes the ‘typical’ cholangiocarcinoma patient.  An impossible task, I know, as we are all so…

Top Ten Tips for an Easier Holiday Season

By Cait Telaak | November 21, 2017

It’s no surprise that the holidays come with a mixed bag of emotions and experiences.  In the best of circumstances this time of year, while…

Treatment Modalities: Liver Transplant

By Cait Telaak | November 7, 2017

This post marks the first in a series reviewing different cholangiocarcinoma treatment modalities.  Moving forward, one post each month will look at the present state…

C.A.R.E. Team Launches in Chicago

By Cait Telaak | October 24, 2017

Melinda Bachini is a familiar face within the Foundation.  An 8-year survivor, she is on the front line of introducing the newly diagnosed to the…

Team CCF Takes on the Chicago Marathon

By Cait Telaak | October 10, 2017

Assuming you haven’t tackled one before, have you ever really thought about what it takes to run a marathon?  If a runner maintains a 12-minute…

Event in memory of Kathy Plouff

By Rick Pollock | September 27, 2017

Event in memory of Kathy Plouff I am so happy to update you to tell you the Fundraiser we had in memory of my Mom…

Sneak Peek at the New Discussion Boards – the Foundation’s Hidden Gem

By Cait Telaak | September 26, 2017

The Foundation’s discussion boards have long been a gathering place for patients and caregivers to share information and offer support.  When it was first created…

The Strader Strong Triathlon raises $28,000!

By Rick Pollock | September 21, 2017

Click here to see an interview with Herb Lavery, the Organizer of the Strader Strong Triathlon.