The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements. Contributors like patients Christy Landon and Bekki Slater, along with caregivers Dave Fleischer and Jessica Thomas, share news and personal anecdotes. The blog serves as a resource to get familiar with the work of the Foundation. Keep an eye out for new posts as together we explore the world of cholangiocarcinoma and the tireless work towards a cure!
We're always looking to share good news. If you have something you'd like to share, please reach out to Allison Deragon.
3rd Annual A Hike for Jill. A Hike for a Cure
In memory of his wife, Jill, Kevin Coyle hosted the 3rd annual “A Hike for Jill. A Hike for a Cure.”
Five for Friday – 5 CCF Collaborations with Industry
Partnership and collaboration are vital to our mission to find a cure and improve the quality of life for those affected by cholangiocarcinoma.
Cholangiocarcinoma Foundation CEO named as a finalist in Cancer Community (C2) Awards
Cholangiocarcinoma Foundation CEO and Founder Stacie C. Lindsey has been named a finalist of the Cancer Community (C2) Awards in the category of C2 Catalyst Change.
Five for Friday – 5 CholangioConnect Updates
The Foundation recently celebrated its 500th mentor/mentee relationship with the CholangioConnect program. This week we are sharing a more in-depth look into the CholangioConnect Program.
CholangioConnect Update – Patty Maxin
Just shy of the fourth anniversary of CholangioConnect, there was a celebratory enthusiasm as the administrative entry registered its 500th connection through the Foundation’s mentoring platform.
Cholangiocarcinoma Foundation commends FDA approval of new therapy for cholangiocarcinoma patients
CCF provided patient insights into Servier’s development of TIBSOVO® as a treatment for individuals with IDH1-mutated cholangiocarcinoma.
CholangioConnect Mentee Testimonials – Jessica Thomas
CholangioConnect was my mooring in a hurricane. Life seemed impossibly full of information and emotions, and I was so grateful for my mentor.
Shaun Hope: ‘It Could Be Worse’
Shaun Hope was diagnosed with extrahepatic cholangiocarcinoma in August 2019. He faced his diagnosis with courage and his famous mantra, “It could be worse.” Shaun…
CholangioConnect Mentee Testimonials – Rob Howard
Within hours of my dad’s cholangiocarcinoma diagnosis, I was online doing research trying to learn about this type of cancer. I soon found my way to the comforting and informative website for the Cholangiocarcinoma Foundation.
Five for Friday – 5 CCA Survivor Stories
In anticipation of our upcoming Newly Diagnosed program, we would like to recognize several friends of the Foundation who have been willing to share their survivor stories.
Team Sarah Newton
Sarah Newton of Galena, Illinois has been dealing with bile duct cancer since her diagnosis in July 2020. She has endured four-plus months of chemo, two procedures involving implanting Y90 in both lobes of her liver and is currently taking gene therapy medication.
2nd Annual Moving for the Cure Recap
TeamCCF sponsored its 2nd Annual Moving for the Cure, July 18 – 24. Families and individuals accepted the challenge to raise at least $200 and perform any physical movement during that week in July. In the end, the Moving for the Cure participants and sponsors raised more than $96,000!