Our Blog...Cholangio-what??

The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements.  Contributors like patients Sarah Bennett, Cait Telaak, Helen Scott, Susan Braden, George Riddle, Lisa Layton, and Marcia Van Gorden share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation.  Keep an eye out for new posts as together we explore the world of Cholangiocarcinoma and the tireless work towards a cure!

We're always looking to share good news.  If you have something you'd like to share, please reach out to Allison Deragon at allison.deragon@cholangiocarcinoma.org.

Repurposing Drugs for Cholangiocarcinoma

By Helen Scott | August 9, 2019

Over three years ago I was diagnosed with an incurable cancer, at the age of just 39 when my 3 children were under the age…

Cholangiocarcinoma Foundation Awards $365k in Research Fellowship Grants in Largest Funding Cycle to Date

By Rick Pollock | August 6, 2019

Since 2015, the Foundation has awarded more than $1.9 million in funding for innovative, high-quality research. SALT LAKE CITY, UTAH, USA, August 6, 2019 —…

The Cancerbet – or What Cancer Does and Does NOT do – from A to Z

By Susan Braden | August 1, 2019

A          Cancer AGES us but isn’t aging what we long for?! B          It BLINDS us to far away, future concerns. It brings us to a “near- sighted” living where…

Free Webinar: TAS 120 Clinical Trial in Cholangiocarcinoma Updates

By Rick Pollock | September 6, 2018

This free webinar provided updates on the TAS 120 clinical trial and also served as a  question and answer forum for patients and caregivers.  

Thoughts and Memories of Marion Schwartz

By Rick Pollock | August 24, 2018

Marion and I worked together daily for over 10 years building the foundation and we’ve talked often since her retirement. She worked with many of…

Mouse Models and Avatars

By Cait Telaak | March 20, 2018

According to the U.S. Bureau of Labor Statistics, in 2008, healthcare positions accounted for 12% of all private-sector jobs, a number that has consistently been…

How to Sign Up for Google Alerts

By Cait Telaak | March 6, 2018

My recent(ish) surgery knocked me down a little more than expected, so I won’t be tackling the complex topic of mouse models/mouse avatars (with a…

Love and Hope

By Cait Telaak | February 20, 2018

Reading this blog you get a lot of one person’s perspective, but so many lives have been impacted by cholangiocarcinoma.  When I asked fellow patients…

Patients, Physicians, Progress

By Cait Telaak | February 6, 2018

Science has never been my forte.  That’s not to say it disinterests me, but it never held my attention like the humanities.  For someone who…

Empowerment – Helen Scott’s Story

By Cait Telaak | January 30, 2018

It’s natural for cancer patients to, at some point in their journey, indulge their curiosity.  When you are diagnosed with a disease as rare as…

Even Keel – Andy Tebbutt’s Story

By Cait Telaak | January 23, 2018

I can’t speak for other rare cancer populations, but the cholangiocarcinoma community is fairly tight knit.  In some ways, we are like members of the…

Roller Coaster – Barry Cohen’s Story

By Cait Telaak | January 16, 2018

Written by Cait with edits of style and flair by Barry Cohen Depending on your perspective, roller coaster might have a negative connotation.  For Barry…