Our Blog...Cholangio-what??

The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements.  Contributors like patients Sarah Bennett, Cait Telaak, Helen Scott, Susan Braden, George Riddle, Lisa Layton, and Marcia Van Gorden share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation.  Keep an eye out for new posts as together we explore the world of Cholangiocarcinoma and the tireless work towards a cure!

We're always looking to share good news.  If you have something you'd like to share, please reach out to Allison Deragon at allison.deragon@cholangiocarcinoma.org.

Charlie Chanaratsopon, CEO and Founder of “Charming Charlie” Cares

By Rick Pollock | September 13, 2016

The abbreviation for cholangiocarcinoma, a rare form of liver cancer is “CC” however, one “CC” patient in Oregon prefers to think of it as “Charming…

Campaign for the CURE: Meet Kris Jacobs

By Rick Pollock | July 31, 2016

My name is Kris and my journey began in Feb. 2011 when my back started hurting. The band of pain from my back to my chest was excruciating. I was vomiting…

Campaign for the CURE – Meet Sarah and her husband Andy

By Rick Pollock | July 26, 2016

Sarah Pieh was born in Adrian, Michigan on New Year’s Eve 1976. From a young age Sarah had a distinctive love of reading, traveling, and…

Campaign for the CURE – Patty Corcoran

By Rick Pollock | July 20, 2016

Hello! My name is Patty Corcoran, and I am 51 years old. In late February 2011, I was diagnosed with intra-hepatic cholangiocarcinoma. Since then, I…

Campaign for the CURE – Meet Danny van Brenk

By Rick Pollock | July 13, 2016

Meet Danny van Brenk, age 34 who lives with his wife and two children Floris (5) and Isabelle (2) in Heukelum, a small town in the…

Photos from ASCO 2016

By Rick Pollock | June 9, 2016

“Collective Wisdom” is the theme for this year’s ASCO’s Annual Meeting in Chicago. Our attending team includes Melinda, Barbara, Jason, Andie, Kathi, Donna, Stacie and Marion. …

Chemo 101

By Sarah Bennett | January 25, 2016

It has been awhile since I last wrote. My apologies. I have good intentions but then I get home from work and sometimes the thought…

Get connected

By Sarah Bennett | November 30, 2015

Cancer is a scary word. Cholangiocarcinoma is an even scarier word. What makes it better is finding other people affected by Cholangiocarcinoma. It’s no easy…

Don’t listen to the statistics.

By Sarah Bennett | October 18, 2015

Awhile ago I asked a group of people and not just ordinary people but cholangiocarcinoma fighters, what’s one piece of advice you’d give about anything…

A Story of Hope

By Sarah Bennett | September 13, 2015

I was asked by the Foundation to share this story. I was more than happy to. It’s an incredible story and full of inspiration. I…

1 year later and treatment woes.

By Sarah Bennett | August 16, 2015

On August 4, 2015, I celebrated my one year anniversary of being “cancer free” or NED (no evidence of disease) as my doctor says. It…

Did that just happen?

By Sarah Bennett | July 20, 2015

I have re-written the first sentence of post three times now. Why is it so hard to get what’s in my head down to my…