The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements. Contributors like patients Christy Landon and Bekki Slater, along with caregivers Dave Fleischer and Jessica Thomas, share news and personal anecdotes. The blog serves as a resource to get familiar with the work of the Foundation. Keep an eye out for new posts as together we explore the world of cholangiocarcinoma and the tireless work towards a cure!

We're always looking to share good news. If you have something you'd like to share, please reach out to Allison Deragon.

Journey of Hope: Day 10

By Dave Fleischer | May 29, 2021

It was a beautiful, cool, cloudless morning when Linda and I departed Rochester, MN, today. Our first official stop was about 275 miles away, fairly close to Milwaukee.

Journey of Hope: Day 9

By Dave Fleischer | May 28, 2021

Departing from Watertown, SD, we headed in a southeasterly direction to Hope, MN., over a variety of roads, including interstates, two-lane state and county roads, plus an added bonus of dirt! It’s amazing what supposed shortcuts GPS will produce at times!

CCF Celebrates FDA Approval of TRUSELTIQ™ for Cholangiocarcinoma Patients Developed by BridgeBio Pharma Affiliate QED Therapeutics

By Allison Deragon | May 28, 2021

This is an important milestone for this community and specifically for patients with CCA harboring an FGFR2-fusion.

Five for Friday – 5 social media platforms that you can follow us on

By Allison Deragon | May 28, 2021

Our social media platforms allow us to tell your stories. Messages can help increase awareness, promote programs and initiatives and spread the word about our mission.

Journey of Hope: Day 8

By Dave Fleischer | May 27, 2021

As we departed Dickinson, ND, this morning, we were greeted with a windy 35°, and snow showers! Quite a difference for those in New England talking about how hot it is at 90°. Driving east on I-94 our first stop was to see Salem Sue, the world’s largest Holstein cow!

Journey of Hope: Day 7

By Dave Fleischer | May 26, 2021

We started our A.M. drive in Livingston, MT, and proceeded to Billings, MT. to pick up Melinda Bacchini, a CC Warrior who is also on the staff of the foundation. Melinda is Director of Patient Advocacy and an 11½ year survivor.

Journey of Hope: Day 6

By Dave Fleischer | May 25, 2021

We saw a lot of gorgeous scenery today, including Sandpoint and Hope, ID, as well as East Hope, and believe it or not, an area known as Beyond Hope! The beauty continued into MT. with diverse scenery and weather conditions along MT Route 200 and I-90 eastbound before the pouring rain started in Anaconda, MT.

Journey of Hope: Day 5

By Dave Fleischer | May 24, 2021

This morning, Linda and I had the opportunity for a meet-up outside the Fred Hutch Cancer Center in Seattle. Our mission was to thank doctors who are improving the lives and finding a cure, for cholangiocarcinoma patients, now and in the future.

Webinar: Patient Centered Partnerships

By Allison Deragon | May 24, 2021

Have you ever wondered about how CCF engages with Industry Partners? Join our webinar on May 27th to learn about the partnerships and collaboration we have with industry.

Journey of Hope: Day 4

By Dave Fleischer | May 23, 2021

This morning Linda and I had the opportunity to meet in the Vancouver, WA area, with one of my ex-colleagues, his wife, and daughter, Sara. Two years ago, Sara was a recipient of the Sarah Fleischer Bennett memorial scholarship.

Journey of Hope: Day 3

By Dave Fleischer | May 22, 2021

Day three of the JoH was another day full of fulfilling visits, beautiful scenery and variations in weather, including rain, heavy fog on the curvy roads of the Cascades, then sunshine.

Journey of Hope: Day 2

By Dave Fleischer | May 21, 2021

Day two of our journey had Linda and I heading west from Twin Falls to Boise, ID for a scheduled meet up with Cindy Thomas of the Cholangiocarcinoma Foundation staff, and Steven Banks, a local cholangiocarcinoma warrior.