The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements. Contributors like patients Christy Landon and Bekki Slater, along with caregivers Dave Fleischer and Jessica Thomas, share news and personal anecdotes. The blog serves as a resource to get familiar with the work of the Foundation. Keep an eye out for new posts as together we explore the world of cholangiocarcinoma and the tireless work towards a cure!

We're always looking to share good news. If you have something you'd like to share, please reach out to Allison Deragon.

CCF Presents First-Ever Poster Awards

By Allison Deragon | April 1, 2021

The Cholangiocarcinoma Foundation (CCF) announced the inaugural 2021 Poster Abstract Awards at its virtual annual conference.

CCF is pleased to award the 2021 Mark R. Clements Award to Renuka Iyer and Lisa Craine

By Allison Deragon | April 1, 2021

The Cholangiocarcinoma Foundation (CCF) announced the 2021 Mark R. Clements honorees at its virtual annual conference.

Emory-CCF-Ciitizen Quality of Life Survey

By Cholangiocarcinoma Foundation | March 31, 2021

We are writing to request your participation in a research study. The study is being conducted through the Winship Cancer Institute at Emory University in collaboration with the Cholangiocarcinoma Foundation and Ciitizen.

Five for Friday – 5 tutorial videos to help you learn your way around the platform

By Allison Deragon | March 26, 2021

We encourage you to login before the conference starts to familiarize yourself with the platform. This week we are sharing 5 tutorial videos to help you learn your way around the platform.

Five for Friday – 5 hashtags that you can use to help people learn about our Annual Conference and raise awareness of cholangiocarcinoma

By Allison Deragon | March 19, 2021

CCF’s 8th Annual Conference is around the corner! We encourage you to use hashtags to help friends, family and colleagues know what is happening at this conference.

Five for Friday – Here are 5 ways to prepare for the Annual Conference

By Allison Deragon | March 12, 2021

CCF’s 8th Annual Conference is 19 days away! Join more than 1,000 patients, caregivers, scientists, researchers, and healthcare providers from around the globe.

Five for Friday – 5 highlights from Awareness Month

By Allison Deragon | March 5, 2021

Awareness Month 2021 has been the most impactful yet! Thank you to all those that participated in shining a light on cholangiocarcinoma this year.

Cholangiocarcinoma Foundation Hails Milestone in Effort to Advance new Treatment for IDH1-positive Cholangiocarcinoma Patients as Agios Announces New FDA Filing for TIBSOVO®

By Allison Deragon | March 1, 2021

“This is an important milestone for this community and specifically for patients with an IDH1 mutation.”

Five for Friday – 5 ways you can join Annual Conference fun

By Allison Deragon | February 26, 2021

Our conference is jam-packed with fun games, trivia and more. We’ve created several ways for you to feel involved and connect with other CCF friends.

Cholangiocarcinoma Foundation partners with Japan Cholangiocarcinoma Association to Increase Global Advocacy for Bile Duct Cancer

By Allison Deragon | February 23, 2021

CCF has partnered with the newly formed Japan Cholangiocarcinoma Association to serve patients, raise awareness, fund and create a network for research and healthcare providers in Japan and throughout Asia.

Five for Friday – 5 patient-friendly videos

By Allison Deragon | February 19, 2021

We teamed up with Mill Pond Communications, with support from QED Theraputics and Bayer to create several patient-friendly videos explaining important topics about CCA.

‘I Can’t Believe Your Gone’: The Story Behind the Song

By Amy Modesti | February 15, 2021

Josh Bloomfield was a top blues drummer and vocalist who contributed so much to his 41 years of life. Although short in stature, his large personality and musical talents made a splash in the Capital Region.