Our Blog...Cholangio-what??

The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements.  Contributors like patients Sarah Bennett, Cait Telaak, Helen Scott, Susan Braden, George Riddle, Lisa Layton, and Marcia Van Gorden share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation.  Keep an eye out for new posts as together we explore the world of Cholangiocarcinoma and the tireless work towards a cure!

We're always looking to share good news.  If you have something you'd like to share, please reach out to Allison Deragon at allison.deragon@cholangiocarcinoma.org.

Cholangiocarcinoma Foundation celebrates FDA’s Breakthrough Therapy Designation for Zanidatamab in Patients with Biliary Tract Cancer

By Allison Deragon | December 10, 2020

The Cholangiocarcinoma Foundation (CCF) celebrates the November 30, 2020 FDA breakthrough therapy designation for Zanidatamab in patients with previously-treated HER2 gene-amplified biliary tract cancer. A…

Alie Plouff and Candles for the Cure

By Jordan Giles | December 9, 2020

My name is Alie Plouff, and I am a volunteer and former caregiver with the Cholangiocarcinoma Foundation. I first discovered the Cholangiocarcinoma Foundation when my parents returned home from the Annual Conference in Salt Lake City in 2016.

Survey Opportunity – Patient experiences of living with CCA

By Cholangiocarcinoma Foundation | December 8, 2020

Researchers at Emory University are studying quality of life among patients with cholangiocarcinoma (CCA). Please consider taking this brief survey to help them better understand patient experiences for those living with CCA.

Five for Friday – 5 ways you can get involved in Candles for the Cure

By Allison Deragon | December 4, 2020

This holiday season, we are asking everyone to take part in our annual year-end holiday campaign called #CandlesForTheCure by lighting a virtual candle in honor or memory of friends or family who have been affected by cholangiocarcinoma.

Your Year-End Giving Can Make A Long-Term Impact

By Laura Hnat | December 4, 2020

Three impactful ways you can make a year-end gift As 2020 comes to a close, there are a number of opportunities to support the work…

Cholangiocarcinoma Foundation celebrates FDA’s Acceptance Of New Drug Application For Infigratinib For The Treatment Of Cholangiocarcinoma

By Allison Deragon | December 3, 2020

On behalf of patients and families impacted by cholangiocarcinoma, the Cholangiocarcinoma Foundation (CCF) celebrates the December 1, 2020 FDA acceptance of Infigratinib. QED Therapeutics, is…

We’re planning the 2021 Annual Conference and we need your feedback!

By Dawn Scott | December 3, 2020

Home / Blog / We are hard at work planning our virtual Annual Conference, to be held March 31-April 2, 2021. One of the key…

Survivor Highlight: Libby Wolfe

By Jordan Giles | December 2, 2020

My name is Libby Wolfe. I live in Pewaukee, Wisconsin. I grew up in Connecticut, went to college in Virginia, and moved to Chicago in the 1970s. In Chicago, I worked as a property manager for a Real Estate firm.

Patient Support Group

By Rick Pollock | November 30, 2020

Each week we present the latest information and updates relevant to the CCF community. Support Groups will be held the 1st (Patient) and 3rd (Caregiver)…

Five for Friday – 5 sales that will be going on this weekend

By Allison Deragon | November 27, 2020

Holiday sales events are happening from November 27th – December 1st. Need a housewarming gift? A sweatshirt or hat to keep you warm this winter? A stocking stuffer? Look no further than the CCF Awareness Store.

Stacie Lindsey to Receive Luminary Award for Advances in GI Cancers

By Allison Deragon | November 20, 2020

Stacie C. Lindsey, Chief Executive Officer & Founder of the Cholangiocarcinoma Foundation is one of five leading individuals who will receive a Luminary Award in…

Five for Friday – 5 ways you can give back to CCF

By Allison Deragon | November 20, 2020

The reason the holidays are “the most wonderful time of the year” is that we’re reminded to be thankful, reflect on our blessings, and do acts of kindness that bless us in return. As the holiday season approaches celebrate the spirit of the season by giving back.