Our Blog...Cholangio-what??

The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements.  Contributors like patients Sarah Bennett, Cait Telaak, Helen Scott, Susan Braden, George Riddle, Lisa Layton, and Marcia Van Gorden share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation.  Keep an eye out for new posts as together we explore the world of Cholangiocarcinoma and the tireless work towards a cure!

We're always looking to share good news.  If you have something you'd like to share, please reach out to Allison Deragon at allison.deragon@cholangiocarcinoma.org.

Should I get a Second Opinion?

By Allison Deragon | October 6, 2020

Mike Shane Memorial Fund (MSMF) just recently turned one! In the past year MSMF has helped 7 cholangiocarcinoma patients get a second opinion. All donations they receive go to second opinions.

Biomarker reveals how aggressive biliary tract cancer is in patients

By Rick Pollock | October 5, 2020

As biliary tract cancer (BTC) patients typically survive less than one year on standard-of-care chemotherapy, adapting prognostic biomarkers to guide their management remains challenging.

Five for Friday – a few ways you can easily give back to the Cholangiocarcinoma Foundation

By Allison Deragon | October 2, 2020

Every contribution, regardless of size, makes a difference and is an investment in education, research, and advocacy to find a cure for cholangiocarcinoma.

Five for Friday – 5 resources that will help find the right clinical trial for you

By Allison Deragon | September 25, 2020

Finding a cure is at the heart of all we do for our patients and clinical trials are essential to our mission. This week we’d like to share 5 resources that will help find the right clinical trial for you!

Webinar: Clinical Trial Finder

By Rick Pollock | September 24, 2020

CCF and Ciitizen launch first of it’s kind Clinical Trial matching powered by a patient’s complete medical history, automatically.

Lisa’s Rare Cancer Story

By Lisa Craine | September 23, 2020

When I thought of the word rare I envisioned something precious, beautiful and exceptional, like an amazing piece of art in a museum; something that brought joy and smiles to people. I didn’t think of diseases until I was diagnosed with Stage IV Cholangiocarcinoma in 2010.

Five for Friday – 5 ways YOU can get involved in Rare Cancer Day to help us spread awareness

By Allison Deragon | September 18, 2020

We cannot do this without your help! This week we’d like to share 5 ways YOU can get involved in Rare Cancer Day to help us spread awareness.

Rare Cancer Day 2020

By Allison Deragon | September 18, 2020

Don’t forget to mark your calendar for Rare Cancer Day, on September 30th. The Cholangiocarcinoma Foundation (CCF) partners with NORD every year to join together and raise awareness for rare cancers, specifically cholangiocarcinoma.

Five for Friday – 5 ways to use nutrition to fight cancer

By Allison Deragon | September 11, 2020

This week we’d like to share 5 resources that explain the benefits of nutrition while being treated for cancer.

Webinar: Modified Immune Cells and a Vaccine After High-Dose External Beam Radiation

By Rick Pollock | September 10, 2020

The Mayo Clinic presents Modified Immune Cells (Autologous Dendritic Cells) and a Vaccine (Prevnar) After High-Dose External Beam Radiation.

Grateful Patient Day 2020

By Allison Deragon | September 10, 2020

On September 7th, 2020 the Cholangiocarcinoma Foundation (CCF) participated in Grateful Patient Day. Each year, Grateful Patient Day spotlights stories of gratitude for doctors, nurses, researchers, medicines and procedures that help patients.

Green Out for Our Baseball Coach

By Kristen Hall | September 7, 2020

Cancer doesn’t just change the life of the patient; it changes the life of a community. And that is what we are in Palmyra, Pennsylvania, a community. Coach Geoff Good, a father, husband and a friend, was diagnosed with Cholangiocarcinoma.