Our Blog...Cholangio-what??

The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements.  Contributors like patients Sarah Bennett, Cait Telaak, Helen Scott, Susan Braden, George Riddle, Lisa Layton, and Marcia Van Gorden share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation.  Keep an eye out for new posts as together we explore the world of Cholangiocarcinoma and the tireless work towards a cure!

Breast cancer survivor speaks out about being your own advocate

By Rick Pollock | October 9, 2019

In a segment from this NBC’s Today Show, Karen Peterson discusses her experience with breast cancer. She has been an advocate for herself and others…

Rare Cancer Day

By Lisa Layton | October 1, 2019

October 1 is Rare Cancer Day as proclaimed by the National Organization for Rare Disorders (NORD). The NORD website ​shares the goal is “To shine…

Minneapolis Meetup

By Marcia Van Gorden | September 26, 2019

As the “instigator” who 11 years ago blissfully started getting mothers of active-duty Marines and eventually Marine vets to meet together to share experiences, information,…

Suggested Reading – Graeber

By George Riddle | September 20, 2019

Charles Graeber, The Breakthrough: Immunotherapy and the Race to Cure Cancer, Twelve, 2018. “Cancer kills millions of people every year and is one of humanity’s…

Why Jan & Dean Meyer Gave $125,000 to the Cholangiocarcinoma Foundation, and why they hope others will too

By Jordan Giles | September 17, 2019

“Cholangiocarcinoma sucks, it’s a tough, tough cancer.  Being difficult to diagnose, often diagnosed in later stages, and having limited treatment options, we knew we wanted to…

University of Chicago Regional Symposium

By Rick Pollock | September 4, 2019

Join us for an afternoon dedicated to the science of cholangiocarcinoma. The symposium will include presentations from the University of Chicago’s hepatobiliary team highlighting their…

Webinar: CCF & Ciitizen-Take Control of Your Health Data

By Rick Pollock | August 29, 2019

On August 12, the Cholangiocarcinoma Foundation announced a partnership with Ciitizen. This partnership is formed around the belief that you should have full access to…

Repurposing Drugs for Cholangiocarcinoma

By Helen Scott | August 9, 2019

Over three years ago I was diagnosed with an incurable cancer, at the age of just 39 when my 3 children were under the age…

Cholangiocarcinoma Foundation Awards $365k in Research Fellowship Grants in Largest Funding Cycle to Date

By Rick Pollock | August 6, 2019

Since 2015, the Foundation has awarded more than $1.9 million in funding for innovative, high-quality research. SALT LAKE CITY, UTAH, USA, August 6, 2019 —…

The Cancerbet – or What Cancer Does and Does NOT do – from A to Z

By Susan Braden | August 1, 2019

A          Cancer AGES us but isn’t aging what we long for?! B          It BLINDS us to far away, future concerns. It brings us to a “near- sighted” living where…

Free Webinar: TAS 120 Clinical Trial in Cholangiocarcinoma Updates

By Rick Pollock | September 6, 2018

This free webinar provided updates on the TAS 120 clinical trial and also served as a  question and answer forum for patients and caregivers.  

Thoughts and Memories of Marion Schwartz

By Rick Pollock | August 24, 2018

Marion and I worked together daily for over 10 years building the foundation and we’ve talked often since her retirement. She worked with many of…