Cholangiocarcinoma Foundation Celebrates 15th Anniversary Milestone

Cholangiocarcinoma Foundation (CCF), the leading global resource for research, education, and public awareness for cholangiocarcinoma (CCA) patients, is celebrating important milestone-15 successful years serving CCA patients, caregivers, and others affected by the disease. January 2021 officially marks the organization's 15th year in existence. In 2021, the organization will celebrate its rich history and the many individuals and organizations who have contributed to the organization's growth and the impact it has made in the cancer community.

Stacie Lindsey and her family founded the organization in 2006 after losing her brother Mark Clements to the disease.

"In memory of her brother, Stacie transformed grief and loss into a living legacy in building the Cholangiocarcinoma Foundation and its far-reaching community of scientists, clinicians, patients, and families. Through her tireless leadership and vision, the CCF has become a catalyst across the translational continuum from laboratory science to clinical research to epidemiology, leading to the current renaissance in research and new therapies for cholangiocarcinoma," said Katie Kelley, MD, Scientific & Medical Advisory Board.

In the past fifteen years, CCF has grown from a small grassroots patient support organization to a global cancer advocacy group that convenes the leading scientists and providers in the field of CCA. The Foundation provides a patient voice and perspective to industry partners and established itself as a rare cancer community leader. The organization has funded nearly $2 Million in cholangiocarcinoma-specific research. It also sponsors the International Cholangiocarcinoma Research Network (ICRN), a global collaboration of more than 175 world-renowned scientists and researchers from the world's leading academic medical centers and healthcare institutions.

Stacie Lindsey, Founder, and CEO said, "As I reflect on the past 15 years, I am in awe at how far we have come. We have a large and diverse community made up of patients, caregivers, researchers, healthcare providers, volunteers, donors, and industry partners that work collaboratively to find a cure for this deadly disease."

On January 21, 2021, CCF introduced a year-long celebration in a virtual kick-off involving all community members. CCF announced the theme- Crystal Clear Hope and the goal of raising $150,000 for research. Please view this kick-off to learn how we plan to commemorate this important milestone and how you can participate in the celebrations.