Here’s how it works

If you would like to be connected, please provide us your contact information by clicking the BECOME A MENTOR button below.

We will respond to your request within 48 hours by emailing you a profile questionnaire to get an idea of your personal experience with cholangiocarcinoma, your disease history, treatments and demographic information or those of your loved ones. We will strive to connect patients with mentors who share similar medical profiles. All information is kept confidential and is never shared with anyone except the CholangioConnect Program Manager.

Once you return the questionnaire we will email you a volunteer training manual and arrange for a personal telephone call or video conference with the Program Manager to welcome you to the program and to discuss your roles and responsibilities as a volunteer mentor.

If you are contacting CholangioConnect for a friend or family member, please ensure you have received authorization from the patient or caregiver prior to contacting us on their behalf.

About CholangioConnect mentors

CholangioConnect is comprised solely of patients, caregivers, and mentors experienced in cholangiocarcinoma. Through CholangioConnect, newly diagnosed patients caregivers have the best chance of connecting with other patients and caregivers with similar circumstances.

The service is free and is not intended to put people in contact with individuals who give medical advice or recommendations. Any information shared between mentors and patients concerning treatments, medications or therapies should be discussed with a physician.

We’re available to answer any of your questions.

FAQs

What is CholangioConnect?
CholangioConnect offers patients, caregivers, family members and friends the opportunity to ask questions and receive support from mentors who volunteer.

Who are the mentors?
A diagnosis of cholangiocarcinoma (bile duct cancer) can be both stressful and confusing.  Mentors volunteer their time to help callers.  Volunteers are cholangiocarcinoma survivors, patients, caregivers, family members or friends of a cholangiocarcinoma patient.

Do mentors give medical advice?
Mentors may share their personal diagnosis and treatment experiences if asked by a caller. However, the volunteers will not give medical advice or assist patients in contacting medical professionals.

Information shared between mentors and patients concerning treatments, medications or therapies should be discussed with a physician.

My loved one passed away.  Can I still be a mentor?
Our mission of supporting the cholangiocarcinoma community does not stop when patients lose their battle with this disease.  CholangioConnect has a group of volunteers who have lost a loved one to cholangiocarcinoma and are willing to offer support.

How does CholangioConnect work?
Patients or caregivers request a mentor by completing a questionnaire on the CholangioConnect web page.

We will then connect that person with a mentor who shares a similar profile.  We will respond to requests, then begin the process of connecting patients with a mentor experienced in cholangiocarcinoma.

Will my personal information remain confidential?
Yes.

I’d like to request a mentor.  What is the next step?
Please provide us your contact information by clicking here or the REQUEST A MENTOR button.

I’d like to volunteer as a mentor.  What is the next step?
Please begin the general volunteer application here. After completing volunteer training, you will be connected to the CholangioConnect team and receive training specific to the mentoring program. Your training will be complete following a virtual meeting with program staff to answer any questions you may have about your volunteer service.