What is CholangioConnect?
CholangioConnect offers patients, caregivers, family members and friends the opportunity to ask questions and receive support from mentors who volunteer.
Who are the mentors?
A diagnosis of cholangiocarcinoma (bile duct cancer) can be both stressful and confusing. Mentors volunteer their time to help callers. Volunteers are cholangiocarcinoma survivors, patients, caregivers, family members or friends of a cholangiocarcinoma patient.
Do mentors give medical advice?
Mentors may share their personal diagnosis and treatment experiences if asked by a caller. However, the volunteers will not give medical advice or assist patients in contacting medical professionals.
Information shared between mentors and patients concerning treatments, medications or therapies should be discussed with a physician.
My loved one passed away. Can I still be a mentor?
Our mission of supporting the cholangiocarcinoma community does not stop when patients lose their battle with this disease. CholangioConnect has a group of volunteers who have lost a loved one to cholangiocarcinoma and are willing to offer support.
How does CholangioConnect work?
Patients or caregivers request a mentor by completing a questionnaire on the CholangioConnect web page.
We will then connect that person with a mentor who shares a similar profile. We will respond to requests, then begin the process of connecting patients with a mentor experienced in cholangiocarcinoma.
Will my personal information remain confidential?
I’d like to request a mentor. What is the next step?
Please provide us your contact information by clicking here or the REQUEST A MENTOR button.
I’d like to volunteer as a mentor. What is the next step?
Please provide us your contact information by clicking here or the BECOME A MENTOR button. Complete the profile questionnaire to get an idea of your personal experience with cholangiocarcinoma.
Once you return the questionnaire, we will arrange for a telephone or video conference call with the Program Manager.