Dear Heather, welcome to the best place to be for support for CC. You are so right, none of us really know what is to happen and with that we have HOPE. We have had quite a few DX like your Dad and they have had some success by getting other opinions and having a great team of Doctors who have had lots of experience with CC. We know it is the most painful thing ever to hear this DX but I can tell you that when the treatment begins the fright turns to fight. Please keep us update on your Dad as we truly care and you are not alone in this Journey.