clinician endorsed patient information

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  • June 12, 2014 at 4:03 pm #82944
    lisacraine
    Spectator

    Nicely said! Love this site and the people
    Hugs
    Lisa

    June 12, 2014 at 5:41 am #82943
    gavin
    Moderator

    Thanks for that and well said indeed Marion! You are so right in what you say about the boards and everyone on them, and I know that when my dad was sick everyone helped me enormously and that was invaluable.

    Hugs back at you,

    Gavin

    June 11, 2014 at 11:19 pm #82942
    darla
    Spectator

    Well said Marion. Nothing can compare to the love, support and information that is shared on this board. :)

    June 11, 2014 at 8:03 pm #82941
    lainy
    Spectator

    Beautifully said as usual, Marion. I believe in US!

    June 11, 2014 at 7:57 pm #10147
    marions
    Moderator

    Nothing ever will take the place of our discussion board. It has been established by members like you and it continues to provide the most intimate setting for patients/caregivers/friends and others touched by this disease.

    Given the changes on the updated website, you may also want to peruse the following:

    For general overview:
    ABOUT THE FOUNDATION:
    http://cholangiocarcinoma.org/

    History
    Vision, Mission, Values
    Organization Finances
    Contact us

    WHO WE ARE
    Board of Directors
    Medical Advisory Board

    PARTNERS
    Collaborations
    2014 Stakeholder Meeting

    FOUNDATION NEWS
    Press Releases
    Printed Resources (i.e. brochures and biliary book)

    For clinician endorsed information, our home page provides you with relevant tabs:
    http://cholangiocarcinoma.org/
    CHOLANGIOCARCINOMA
    Overview
    Symptoms
    Staging
    Treatment Options
    Risk Factors
    Key Statistics

    PATIENT AND CAREGIVER
    Newly diagnosed
    Caregiver
    Major Cancer Centers
    Clinical Trials
    Ask Dr. Giles
    Glossary

    PROFESSIONALS
    Patient Registry
    Our Grants
    2014 Stakeholder Meeting
    Research

    GET INVOLVED
    Discussion Board
    Registry
    Volunteer Opportunity
    Fundraising and Events
    Join our Social Network
    Establish a Support Group
    Order Wristbands

    We are in the process of updating with current information. Therefore, please check these tabs periodically. In the near future, tabs will prove a “Nursing” portal for professionals as well as patients.

    We are here to help – you are the reason- please continue feed us information you feel has not been addressed.

    But, most of all please continue to be there for each other. There is nothing that can replace the information you share with all of us.

    Hugs,
    Marion

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