Patient Registry – the greater the participation, the more “you” learn
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Information entered by participants in the International Cholangiocarcinoma Patient Registry falls under the protection of the HIPPA Law.
Registrants have the opportunity to obtain de-identified information on others in regards to the various treatment options and pre-existing conditions as well as a history of diseases not clinically proven to be linked to this cancer.
It offers a wealth of information; you may find some similarities to your very own condition.
Hugs,
Marion
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