From Kuwait….
Discussion Board › Forums › Supportive, Palliative & Hospice Care › From Kuwait….
- This topic has 9 replies, 3 voices, and was last updated 9 years, 6 months ago by lainy.
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June 2, 2015 at 1:39 pm #88394lainySpectator
Dear Shaikha, you are so right, life is too short and too precious and I have said that if the world took a look at our ‘family’ on this Board the world would be a better place. So, many people from so many countries and so many religions and here we are one big family showing love and caring with every post. World, take a good look at us! Hang in there and be strong.
June 2, 2015 at 6:11 am #88393shaikhaSpectatorMy dear KrisV
Am sorry for your husband
But you know he is lucky to Pass away without
having theise all signs …Because my husband have all of Lainy’s signs and he is so suffering
Now we are at hospital from three weeks
They can’t discharge him because of his situationIts hard for you and all of us .. the life is too short!
June 2, 2015 at 5:43 am #88392kvollandSpectatorShaikha –
I do understand what you are going through. I lost my husband just a month ago. We had been married for 13 years. He was me best friend. Tears are so very normal. I have had many myself of the last couple of months. I am only 45, We are both too young.
My hsuabnd went so quickly from being healthy and fine to passing on that he did skip some of Lainy’s signs but as a nurse I can tell you most people follow them closely. I like the fact that he see!s to have his pain controlled. If he is not already taking oxygen you may have him start some…the docs can order it. As the fluid builds up in his tummy it can cause some shortness or breath. Don’t worry too much about the swelling in his legs while it is ugly it will not really harm him. You said his balls were swollen….just make sure he is passing urine. So!etimes that swelling can make passig urine difficult and he may need a catheter.
As Lainy said too You don’t know how strong you are until strong is your only choice. I have said that many times.KrisV
June 2, 2015 at 5:01 am #88391shaikhaSpectatorMost of these sypmtoms was already happen for my husband month a go ,,,
Only the swallon on feet and abdomen is new, just 5 days ago
Am so sad for all of us
Because we had a very painful experience ..Am sure all of you understand what exactly am feeling …
June 2, 2015 at 4:46 am #88390lainySpectatorI just sent it and just so you know my Teddy followed it pretty closely starting at about 2 weeks before the last of his journey. I believe that the more we prepare and know the less frightening it is. You are very brave and to do this in a strange country adds fright to the situation but know we are all here for you.
June 2, 2015 at 4:37 am #88389shaikhaSpectatorThanks lainy for your reality and the best thing that you told me and i feel better
And strong is….(( the more one knows the less frightening it i))
am waiting for your email
Thanks alot …
June 2, 2015 at 4:22 am #88388lainySpectatorDear Shaikha, what a terrible and frightening journey you are on. Mayo Clinic is one of the best places to be. I am a firm believer that the more one knows the less frightening it is and if you want, I have a list of what to look for when the end is near. If you email me from this forum just click on my name to the left and my email will appear and ask me and I will send the list. You are not alone as we are all with you. You never know how strong you are until “strong” is the only choice you have!
June 2, 2015 at 3:04 am #88387shaikhaSpectatorThanks kvolland for replay
Yes also smells strong and taste that i forget to mention
But really i cant imagine how bad this disease
He said if there is no pain he want to go back home to see his family and friends
Put he can’t, we need to send him by bed and doctor
Its hard dision because in kuwait they will dont know how to deal with pain!
So we are stuck in hear and wait!Thanks for support me
we just married from 5 years ago
At this years He took me every where in the world
Every year we travel twice
You cant imagine how much i was happy!my tears didnt dry from September until now
I cant stop crying and cant believe how i will live without him and my doughter only two yearsAnd i didnt see any one died front of me
Am only 26 years oldSo afraid from the future and this day when he will leave me and go to the god
My heart is breaking…
June 2, 2015 at 2:49 am #88386kvollandSpectatorShaikha –
Wow, you have been through a lot and to be so far away from home too. I am sorry that you are not going to be able to donate. I am very sorry that you had to find this family but we will be good support for you as you both go through this.You posted in hospice and palliative care so I am really hoping that you have someone coming in from hospice or palliative care to help you through this. It sounds like his disease has gotten much worse over the past few months. You are doing the right thing in keeping him well medicated with the morphine and dilaudid. Those are both good meds.
It is possible that he is seeing someone that you can not see. It may be a hallucination which can be caused by the pain medications. As long as he is not getting very upset about them. A lot of people have them and they can be ones you see or hear but it can also be smells, taste or touch. For the most part they are memories that are being seen over reality. My husband had a few of them close to the end but they weren’t too bad.
Hope this helps. If you need you can email me at dazoo3563@comcast.net
KrisV
June 2, 2015 at 2:16 am #11331shaikhaSpectatorHello every one
Am so sad because my husband have a Cc
He is only 34 years old, he is army ,
We had only one girl she is now 2 years oldFirst of all
He have ulceraitive colits from 2007,
Before two years he was tired and fever we went to hospital for three weeks
No body knows what he have!
Every time when i remember i cry because if we know at that time he had chance to live!
But hospital at kuwait very bad diagnosedso he lived normal but he have a left shoulder pain
At September last year they diagnose him cancer liver
And we make his papers to go for rochester,mn
Mayo clinic!And we are now at mayo clinic from November!
They said he have a bile duct cancer
And there is alot of spots at his liver we will take a piopsy
And the result is abscess We are so happy because they said he will have a liver transplantHe goes with their protocol!
Chemo and radiation firstThey said if you will wait for liver you will wait loooong time
But if there a family donor you will finish quickly and go back home safelySo at march i make my tests and all its matching with him!
After they said sorry!
We found cancer in your liver !
It was hiding with abscess when abscess goneaway there is two spots doesnt go away they took piopsy and they said cancer, So you cant make a liver transplant….We had a such bad days because we are thinking alot of our future
After this bad news he hospital admission for one month with alot of pain!They gave him morhpine and deloaded and evey time they increase for him
After he discharge the doctors said if you want chemo or not thats ur choice
I told him if they tell us you have only one day to live we will not give up!
We have god and hope ,,!!
Because without hope he will die!Last month he went to the ICU because he have 140 heart rating
And chest pain.. Cant breath normally
So they said he have blood cluts in his lungsAlready he have cluts in his arms… So they increase the levonax ..
But the sad thing is …
Last week he have a swalling feet and abdomen! He cant walk and all the time tired
He have a dry mouth! Cant lay down he slept like when he is setting . . He had hard time
And told me sometimes unsence words like he is seeing somethingThey said he have fluids and must drainage
So they drain twice in one week
And the swalling in his feet doesn’t go away! Also his abdomen Everyday becomr bloatedAlso his balls! Become big than normal and everything in this area become larger
He is bothering from gases he cant take it out normally
Am very afraid from this days
I feel this is the end!He lost 12 kilos skin and bone
And with swalling he gain 6 kilo
Please tell me who is like me see all this symptoms and like this scenario and what to expect after this????
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