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  • October 12, 2015 at 8:54 am #90018
    gavin
    Moderator

    Hi Tony,

    Welcome to the site. Sorry that you had to find us all here and sorry to hear what you are going through with all of this. But I am glad that you have joined us all now and know that you will get tons of support and help from everyone here.

    Please feel free to post away as much as you want to, we don’t bite, honestly! But if you prefer just to lurk and read the posts then feel free to do that as well as I know that is more comfortable for some people. I hope that your scans go well and that you get some good news from them and please let us know how that goes. Please know as well that we are here for you and will help as best as we can.

    My best wishes to you,

    Gavin

    October 11, 2015 at 11:18 pm #90017
    middlesister1
    Moderator

    Hi-
    Welcome to our group Mom was also not able to have surgery with location, but did SIRT after chemo since she only had the one tumor and no mets. we’re at 2 years from diagnosis and treaamen
    free..Do you have a team reviewing your care?
    Best wishes,
    Catherine

    October 11, 2015 at 3:15 am #90016
    tiah
    Member

    That’s great to hear that you seem to be responding well, and of course it’s understandable that you would feel over it. Looking forward to hearing the results of your CT.

    October 11, 2015 at 1:23 am #90015
    kernos
    Member

    Thanks for the welcome Laine.

    Hi Tiah,
    Of ours you may ask,

    I’m on a 9 cycle course of cisplatin and gemcitabine, which I gather from reading here seems to e the common treatment. My cycle is 2 weeks of chemo the a weeks rest.

    I’m handling it better than expected, which has surprised me. I seem to get a wide range of side effects but they are all minor and just require adjustments to my lifestyle.

    I have to keep reminding myself of that as I’m sure you can understand it’s easy to get self absorbed nd I’m a bit over it all atm lol.

    Tony

    October 10, 2015 at 2:25 pm #90014
    lainy
    Spectator

    Hello, Tony and welcome to the best place to be for CC support but sorry you had to join us. WOW! It sounds like your treatments are being successful. Shrinkage is another of our favorite words. Please keep us updated on your progress as we truly care!

    October 10, 2015 at 12:41 pm #90013
    tiah
    Member

    Hello fellow Aussie. My mum was diagnosed with intrahepatic CC and is currently in a position to yours – inoperable due to location and hence on neoadjuvant chemotherapy with the intention of surgery once the tumor has shrunk. May I ask which chemotherapy regime you are on? And how you have been with it so far? Good to hear the tumor markers are decreasing!

    October 10, 2015 at 11:30 am #11761
    kernos
    Member

    Hi all

    I’m in Sydney Australia. Diagnosed with Intrahepatic CC in April this year.

    It’s inoperable due to its position and I must about to commence cycle 9 of my chemo treatment. Hopefully my last or a while at least.

    I go in for my ct scan soon to judge the progress of the treatment but y tumour markers have gone from over 3500 on diagnosis to 1006 about a month ago so my health care team is pretty optimistic.

    Looking forward to lurking nd thanks or having me ☺

    Tony

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