Introduction
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Posts
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Hi,
I grew up on Long Island, so realize there is a long distance between Buffalo and “NY”. I did the search and no hits came up for Buffalo (maybe Syracuse?) I also am so fortunate to have two sisters, so your being here makes me happy that you found us, but also so very sorry that you had to.
I think many have gotten second opinions remotely. Even if no one has information on Buffalo, can you chime in and give advise on best ways to get a second opinion from out of area?
Take care,
CatherineHi there,
Welcome to the site. Sorry that you had to find us all here and I am sorry also to hear about your sister. But I am glad that you have joined in with us all here as you are in the best place for support and help and will get a load of each from everyone here.
Have you used the search forum function at the top of the page to search for posts that will help find experience from people in the Buffalo area? If not that would be something you could try and we also have this thread here that was created by our members as well. It has info about doctors, oncologists etc that have treated some of our members and their loved ones and was created by the members here.
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3126
Please keep on coming back here as well. You are not alone in this now, we are here for you and we care.
My best wishes to you and your sister,
Gavin
wkaymaloney……welcome to our special group. Is your sister treated. Your sister is fortunate to have you on her side and advocating for her. Have you consulted with a physician at Roswell Park Cancer Institute. Which hospital did she end up with for a one week?
You may also want to take a look at this important link:
http://cholangiocarcinoma.org/newly-dx/Hugs,
MarionHi Everyone, I am posting from Buffalo, NY. My sister was recently diagnosed and I am looking for a good network for advice, etc. She has has a rough start for treatment. Initially became part of a clinical trial, which in retrospect, was not a good fit for her. She was so sick from the trial, she was removed after one week. Started the treatment plan of Gemzar and Cisplatin. Got one treatment on top of the trial treatment and ended up in the hospital for a week. I would like to know if anyone has a recommendation for a physician in Buffalo, NY. We don’t have a 2nd opinion at this point, but would appreciate hearing if anyone has experience with someone in Buffalo. Thanks!
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