Cholangiocarcinona metastatsized to celiac region
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Dear MMG,
I want to welcome you to our group. I’m so sorry it returned.
Best wishes to you and your husband-
CatherineDear MGG, Welcome to the best place to be for CC support along with our remarkable family. I can’t help on your question but wanted to say you will receive a ton of support here as we are all family. You might go to our Search engine at the top of the page and type in Celiac and see if any posts appear. I am also posting a site for you that you may find helpful. Please keep us updated on your husband’s progress.
http://cholangiocarcinoma.org/newly-dx/mgg….. Genomic profiling of a patient’s tumor can expand treatment options. A patient’s tumor tissue must be tested to determine whether or not an appropriate faulty gene contributes to cancer growth and for which there may be a drug targeting this alteration (fault.) Please discuss with your physician. On another note, have you consulted with a center treating a high volume of cholangiocarcinoma patients?
Hugs,
Marionmgg……welcome to our group. Some time back I recall a few reports on nodal spread to the celiac axis, but it has not been discussed often on this site. Hoping for someone else to chime in on this question. I am wondering, dear mgg, has your husband been tested for molecular alterations?
Hugs
MarionMy husband had surgery 3 years ago in February 2013 removing half the liver, gall bladder and reconstruction of the bile duct. Some lymph nodes were shown to be infected in biopsies done at surgery. No Chemo or Radiation was deemed necessary at the time. We were told it was not cured and would reappear at some point. Two years. later in February 2015 there was 2 tumors discovered in the Celiac region. Due to the location, radiation was not an option. He started Chemo with Gemzar and Oxiplatin and ended up in the hospital a few times. Then he had Gemzar with Xeloda with side effects of Hand and Foot syndrome and mouth sores. The Xeloda was reduced but side effects still bad. He now has a port due to his veins wearing out and the next step may be 5FU. The tumors are small and have not increased in size or number.
We were wondering if anyone had it metastatsize to the celiac region?
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