Y90
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Laura,
One other thought- you didn’t mention where your husband is being treated but I see your home listed as Alexandria. Although we have JHU close by, my mother’s IR at UMD might be worthwhile to contact for a second opinion on Y-90 (Dr. Fred Moeslein). He’s very responsive and I credit him with us be in the position we are today. He even took the time to convince Mom’s ONC at the time that giving the xeloda in conjunction would give us better results (ONC was against it as unproven and could be harmful). I guess only time will tell, but stability for this long seems to indicate he was correct.
Catherine
Laura,
I’m sorry to hear that your husband has been diagnosed with CC, but very happy you found us. I’ll have to look into why I couldn’t get Marion’s link to work (I hope you did- if not let us know).
My mother has had tremendous success with Y-90, but she had one tumor (4×6 cm when started) and no other mets. After 3 cycles of GEM/CIS, she had first treatment in Feb 2014 and second in Nov 2014. Second time she was given xeloda for 2 weeks before and after to help effectiveness of radiation. Main side effect was extreme fatigue. First time fatigue lasted 4 weeks and second time closer to 6. However, since the second treatment scans have shown no viable disease so she is treatment free and goes for periodic scans. We’re hoping her next scan in August still shows no evidence of disease.
Best wishes,
CatherineLaura….a warm welcome to our site. I hope for others to chime in on your question, but here is a previous posting referring to success of the Y-90 treatment. Please scroll down.
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=14948Y-90 is also referred to as radioembolization. Enclosed please find the link to the numerous discussion:
http://www.cholangiocarcinoma.org/punbb/search.php?search_id=1591642093I hope for others to chime in as well. In the meantime, good luck and please stay with us, we care and we are in this together.
Hugs
MarionHi
My name is Laura. Husband has CC. Diagnosed Jan ’15. Had resection on right lobe. Unfortunately had already spread to shoulder. Had tumor there removed and 2 ribs. Also has HCC but two TASEs have stopped its growth. Systemic chemo gem/cin (sp?) not able to tolerate. Now on Zeloda. Recently learned there are numerous very small lesions in liver. Onc is suggesting Y90. We are concerned it could be more debilitating than helpful. He still has very good quality of life and good liver function and we are worried that Y90 could take him down. Would welcome input from those who have done Y90 – was it worth it? Were the side affects dibilitating? How many times can you have it done? Thank you for any and all thoughts.
Laura
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