Campaign for the Cure: Meet Patty, Our Clinical Trial Hero!

Discussion Board Forums General Discussion Campaign for the Cure: Meet Patty, Our Clinical Trial Hero!

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  • #92729
    marions
    Moderator

    Shellie…..I don’t recall you mentioning, but molecular testing had to show a tumor with a FGFR genetic alteration.
    Patty’s study: A Phase II, Single Arm Study of BGJ398 in patients with advanced cholangiocarcinoma is not open for accrual. In fact, it has discontinued. Current patients on this study will complete the trial.
    https://clinicaltrials.gov/show/NCT02150967

    Novartis is conducting another study for solid tumors (not specifically advanced cholangiocarcinoma) but with same FGFR alteration:
    https://clinicaltrials.gov/ct2/show/NCT02160041

    It is recruiting in a few States only:

    Horizon Oncology Research, Inc.
    Lafayette, Indiana, United States, 47905
    Contact 765-446-5777
    Principal Investigator: Wael Harb

    United States, New Mexico
    New Mexico Cancer Care Alliance Oncology Dept Recruiting
    Albuquerque, New Mexico, United States, 87106
    Contact 505-925-0357
    Principal Investigator: Melanie Royce

    Carolina Oncology Specialists, PC Recruiting
    Hickory, North Carolina, United States, 28602
    Contact 828-324-9550
    Principal Investigator: Richard Orlowski

    Northwest Cancer Specialists Northwest Cancer
    Portland, Oregon, United States, 97210
    Contact 360-449-6522
    Principal Investigator: David A. Smith

    United States, Washington
    Providence Regional Cancer Partnership Providence Reg. Cancer (2)
    Everett, Washington, United States, 98201
    Contact 425-297-5500
    Principal Investigator: Jason Lukas

    MultiCare Health System Institute for Research & Innovation MultiCare – Gig Harbor Recruiting
    Tacoma, Washington, United States, 98405
    Contact 253-530-8060
    Principal Investigator: John A. Keech

    Hugs,
    Marion

    #92728
    lainy
    Spectator

    Hi, Shellie, and it is so good to see you! I am thrilled you are looking in to BGJ398 in New York and hope it all gets approved! Great step to take. Got to have lots of HOPE and an abundance of strength. Miracles do happen here. Please keep us posted on the latest and I will pray for the greatest posts to come!

    #92727
    shelliec
    Member

    This gives me so much HOPE! Love this article we are looking into the BGJ398 in New York hoping we get good results!

    #92726
    gavin
    Moderator

    Thanks for posting this Kathi.

    Go Patty. As Patty says at the end of the piece, never, ever stop believing!!

    Gavin

    #12611
    kathiwagner
    Spectator

    Hello! My name is Patty Corcoran, and I am 51 years old. In late February 2011, I was diagnosed with intra-hepatic cholangiocarcinoma. Since then, I have received numerous chemotherapy medications, undergone three rounds of radiation, and even had a 15 month break from all treatment because I was doing so well.

    I have participated in two clinical trials, including the one I am on currently. In March 2015, I enrolled in a Phase II trial for the Novartis BGJ398 at MD Anderson. I experienced few ill effects, aside from diet restrictions and losing a few toenails, and the drug kept my cancer stable for about eight months.

    Read more of Patty’s story on our website:

    http://cholangiocarcinoma.org/campaign-for-the-cure-2016/

    To contribute to the Campaign for the Cure today, visit: http://cholangiocarcinoma.org/c4c-form
    Patti_and_her_Beautiful_Daughters.jpg

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