Folfox
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Sheila…welcome to our site. Many others have been treated with Folfox. Perhaps someone will come forward and answer you directly, but if not so then please follow Lainy’s directions.
I am wondering: has your tumor tissue been biopsied and has it been tested for DNA and protein alterations?
Hugs
MarionDear Sheila, Welcome to our remarkable family and the best place to be for CC support. We know when you hear the word Cholangiocarcinoma it is a whole lot to take in at one time. Knowledge is the most important tool to fight CC. When you have a chance, read some of our Members posts or if you have a question you can use our Search Engine at the top of the page. Type in a word or 2 and many posts will appear on that subject. If you type in fOLFOX QUITE A FEW POSTS WILL APPEAR TO HELP.
Make sure that the Oncologist you choose and the Hospital for treatment, are very experienced with CC. Don’t be shy about getting 2, even 3 or 4 opinions. This is a very rare Cancer and no Doctor will mind you wanting more opinions. Keep a folder of all test and LAB results.
Here is a site you may find helpful: http://cholangiocarcinoma.org/newly-dx/
Please do keep us updated on your progress as we truly care.Has anyone had any response to a trial of Folfox. That is what is recommended for my next attempt. I was diagnosed one year ago. I had 3 months of Xeloda with good initial response then markers started back up. I then did 6 months of Gemzar and Cisplatin. Now markers are going back up and CT shows mass enlargement. Next t try is Folfox.
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