Not giving up!
Discussion Board › Forums › General Discussion › Not giving up!
- This topic has 4 replies, 5 voices, and was last updated 8 years ago by marions.
-
AuthorPosts
-
November 19, 2016 at 6:40 pm #23151gavinModerator
Hi Reacher,
Many thanks for sharing everything that you both have been through with all of this. That sure is quite a lot to share as well! Many thanks for this as I so know that it will be of great help to many many other people around the world who come here but perhaps do not post etc.
Nothing is impossible indeed, I so love that attitude!
My best to you both,
Gavin
November 17, 2016 at 2:57 am #23152darlaSpectatorDear Theresa,
I also would like to thank you for you positive and informational post. Michael’s story will bring hope and encouragement to others dealing with this disease. Take care and keep in touch. Hoping to hear more positive things from the two of you in the future.
Darla
November 17, 2016 at 2:11 am #23153lainySpectatorDear Reacher, thank you for posting Michael’s inspiring story. I am sure there will be many chapters of good news to come. Love the name of your Giap Zap book!! Life is to be lived and that is just what you are doing, good for you! Also your story give so much hope for others on our site and we thank you for that. Let’s hear it for Miracle Mike on his Bike! (Hmm maybe another book?)
November 16, 2016 at 10:30 pm #23154marionsModeratorReacher….thank you for sharing this incredible journey of hope and survival. You have overcome the impossible and are here to share it with us. Congratulations. Everything fell into place as it so should. Watch the road, here comes Michael cruising along on his bicycle with his wonderful wife.
Hugs and love to you both,
Marion
November 16, 2016 at 8:26 pm #1595reacherMemberMy husband is not giving up until this cholangiocarcinoma is conquered.
29+ months and going strong!
My greatest prayer is for those battling this disease is that it can be cured
and people are restored to full health.Without a doubt we know this….
Jesus the divine physician is healing Michael. It is Jesus who provided the talented medical Doctors, wonderful nurses, staff, medicines, funding and facilities for Michael’s treatment and care.
He has been beyond generous with accommodation, surrounding us with family & friends , and
dear ones who pray for us.
Jesus is looking after our needs.
His love knows no bounds!
Turn to hm when you are in your darkest hours, when you feel weak and when you feel there’s no hope.
Jesus is filled with compassion, love and mercy.
Life with Jesus is never boring if you trust and believe.
Patients, caregivers and the medical community should know the name of JesusMy husband has had all three pillars of traditional Western cancer treatment:
Surgery, ( double gastric bypass) chemotherapy and radiation more specifically Proton Therapy.
Truthfully, it has been a multidisciplinary team of doctors and specialists that have been instrumental in keeping my husband alive from this lethal and aggressive cancer.
Together we ‘re better!The chemotherapies Mike has had include the first line of defence which was Gemcitibine &
Cisplatin over a period of three months 2014. It failed.
Being disenchanted with what the BC Cancer agency provided I pursued Proton Therapy treatment with an exceptionally brilliant doctor at Scripps in San Diego
Dr Huan Giap along with his stellar nurse, Angie and all the team there.
Mike received pencil beam proton therapy treatment at their new facility in October and November 2014 over a period of five weeks in the healing sunshine of Southern California. There was no money or funding provided for this rare cancer so we paid out-of-pocket.
Mike was also sent to an oncologist at Torrey Pines, Dr. Darren Segal and was put on Xeloda
His platelets tanked on two treatments and so we just continued with Proton Therapy alone with bloodwork and weekly visits to the oncology at Greens Hospital.
At that time , I asked the oncologist in Torrey Pines if he had heard of Keytruda or Pembrolizumab which he had not.
After we finished proton treatment we returned and pursued naturaopathic treatment from Dr Lorne Swetlikoff which was totally new to us. We embraced it and have never looked back!
Once again this was not funded.
In February 2015 outr Hipatabilary surgeon
Dr A Buczkowski took Mike’s case to the tumour meeting at the agency to see if he was a candidate for resectioning and surgery. It was declined.
The tumour markers started to rise in the spring of 2015 and a cath o port was put in Mike’s chest in June 2015 as the veins in his arms were wearing out.
Working with our oncology team Dr Paul Klimo and Dr John Yun
it was decided to try a new chemo Abraxane which was not funded again for bile duct cancer,as well as ,5FU worn over a period of 48 hours in an IV infusion system.
Michael had other medical issues dealing with stents being replaced from plastic and finally to metal in June 2015.
In addition, Mike was battling kidney stones and needed several ESWL treatments.
Our life consisted of a daily Doctor dance ;sometime seeing two or three doctors in one day.
It is worth mentioning, Michael developed a metastasis in his abdominal area in June 2016. Thanks to the talents and gifts of the physicists and nurse Angie and Dr. Huan Giap
at San Diego Scripps proton therapy Center this second tumour was zapped by Dr.Giap ; which will be the title of my children’s book!
Dr Giap (yap) gave me a zap!
And we travelled to Rome and on a cruise with our dear friends
walking on holy ground in Rome, Corinth, Ephesus and through the holy doors of extraordinary divine Mercy in Italy. (August-September 2016)Mike ‘s story is very lengthy ( as there’s more to share…
Like endocarditis that he survived Iin October 2012)
and for the sake of keeping ithis short I will say that
Michael is now on the immunotherapy
Keytruda or Pembrolizumab thanks to our exceptional oncology care at Richmond Hospital with Dt John Yun , his nurse Lisa and with the support of Dr. Klimo.
We have tried various treatments including hyperthermia
and others.
I need to mention that all our MRIs have had to be privately paid.
We are thankful to Dr Raj Attariwala for his incredible gift of radiology and reading scans.
We have many other Drs and medical staff to thank as well.
He noted in the MRI from October 2016 that there was a blockage in the metal bile ductt stent and thanks to Dr Charles Scudamore at VGH he cleared it with yet another ERCP.
Our story is far from over.
We firmly believe it is under the divine physician ‘s care,
prayers and love of family & friends that Michael is here to
testify and witness.
With Faith
I have always stood by the name…
Miracle Michael.
He is still here and active.
The only place he’s going
Is on more trips!
Yesterday he rode 4 miles on his bicycle…. In Kauai.
Believe in the mercy and grace of God
For with Him
Not one thing
Nothing
Is impossible.Remain strong!
Do not be afraid.
Together we ‘re better!Love and prayers.
-
AuthorPosts
- The forum ‘General Discussion’ is closed to new topics and replies.