my mother has Cholangiocarcinoma

hi Patty
My mums cancer was discovered by accident. She changed doctors because she moved, She was concerned with a few minior things, 1 being a lump under her eye that she had had for years, The doctor advised her to see a specialist and get it removed as they can be come nasty but looked fine at the time. She also had to see a surgeon about an existing shoulder injury. She was feeling fine, but had some problems eating certain foods. My mum reguarly went for a walk, when she became dissy and slightly out of breath a couple of times, she returned to the doctor, She thought she was just getting worried about the ops, The doctor ordered chest scans etc, and found shadows on the lungs, blood test followed, which were not that bad, but slightly to high in the liver results, this lead to more test, and here we are today, 12 months later, with cancer all through her body. No yellowing, blotting and her colonoscopicy and endoscop were clear.
We have had a pretty busy 12 months of Chemo, but managed some special time too, trips away and lots of talks.

hello to all, Thank you for the kind introductions. Yesterday my mother was told the cancer had ( met) to her shoulder, she is hoping to have radiation this week, & in hospital at present to start serious pain management.
I just wish we all new how to stay I step ahead of this rotten thing.
I have read that a lot of the patients with cc, have had stints in the bile duct, Is this common for later stages of cc, as my mum has no Jarundaise or bowel problems.

thank you tiapatty,
My mum is in Qeensland Aus, She is nearly 61, We are heading to 12months of cc, My mum has secoundary tumors on kidney, lung and surface of head. The primary was not fully diagnosed, but the closest they came was cholangiocarcinoma.

I have been reading quiet a few of the posts am feeling really sad for those of you who are suffering with so much pain and illness. I am feeling lucky that my mother has not felt sick or in pain,which has been managed with medication ( mainly Panadol) My Mother has had Gemcidabean and another chemo drug, this was given every 3 weeks for a 24 hour period. Not to many side effects, and reduced the tumors on her liver and kidney slightly. Now she is having chemo weekly for 6 weedks with a 2 week rest and seems to keep the liver results (blood test) down, but she is becoming weaker. The family have been told the cancer is very aggressive and once chemo stops working my mum will have 2-6 months. I am finding it hard to stay 1 step ahead and be prepared for the illness and side effects of the cancer, but information is limited and the cancer seems so different for every person.