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  • March 30, 2009 at 2:19 am #27336
    marions
    Moderator

    Karen…. thanks so much for posting this. If you would like to and be so kind to post this link under Clinical Trials, also. This way we are sure that this won’t get lost in the threads.

    http://clinicaltrials.gov/ct2/show/NCT00708877

    Thanks again,
    Marion

    Criteria: Exclusion criteria will include:

    previous chemotherapy or radiotherapy,
    uncontrolled infection,
    a previous malignance other than non-melanoma skin cancer or in situ cervical cancer within the last five years,
    medical conditions precluding transplantation,
    metastatic disease (including N2 disease), and
    patients with hilar tumors extending below the cystic duct.

    Patients with extrahepatic metastases, local spread of disease to adjacent organs, and N2 nodal disease (metastasis to peripancreatic, periduodenal, periportal, celiac, superior mesenteric, and / or posterior pancreaticoduodenal nodes) will be excluded as will patients with extension of tumor into the main portal vein.

    March 30, 2009 at 2:14 am #27335
    barbara
    Spectator

    Amanda,
    Just curious. With PSC, does Aime have colitis or Crohn’s?

    March 22, 2009 at 12:56 pm #27334
    karen
    Spectator

    Amanda,
    My husband did not qualify for the Liver Transplantation for Cholangiocarcinoma clinical trial, but perhaps Aime will. Following is the link for the trial…http://clinicaltrials.gov/ct2/show/NCT00708877. I pray he can become a candidate.
    Karen

    March 22, 2009 at 3:58 am #27333
    marions
    Moderator

    Hello Amanda….I am repeating Peter’s comments: Welcome to the club no one wants to belong to. However, I am so glad that you have found us. Most likely there are several physicians familiar with bilary bypass but personally, I only know of Dr. Roger Jenkins at the Lahy Clinic who performed this surgery on a dear friend of mine. Others may have more names to contribute.
    I am sending my best wishes to your and your husband,
    Marion

    March 22, 2009 at 2:06 am #2112
    mandabun
    Spectator

    My name is Amanda. My husband is Aime and he has BDC. He was diagnosed last July. We were in the process of becoming candidates for liver transplantation. The transplant was necessary because of liver failure brought about by primary sclerosing cholangitis. As part of the transplantation process, my husband had to endure a barrage of tests, including screens for cancer. An ERCP performed July 3 showed malignant cells. We were declared ineligible for transplantation. Since that time my husband has had radiation. It seems to have worked as two subsequent scans have not shown any growth. Doctors in Michigan have been hesitant to administer chemo because of his elevated bilirubin levels. We went to the Mayo Clinic this week to get a second opinion. Doctors there tried inserting a stent but were unable to do it because of the intense scarring caused by the PSC. The Mayo docs said there was no other palliative surgeries. I have been doing some research and am interested in learning about biliary bypasses. Have any of you on here received the biliary bypass as a means of providing relief? I am not sure why the Mayo docs did not recommend it. I plan to follow up with them on Monday but in the meantime thought I would float the question to you all.
    I look forward to corresponding with everyone and sharing information.
    Until soon,
    amanda

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