How can I tell when the end is near?

Discussion Board Forums General Discussion How can I tell when the end is near?

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  • #30155
    pauline
    Member

    This is very hard for me to speak about but I think a rattling noise in the throat is a sign of the last few days as well as swollen legs and feet, changes in breathing and confusion.
    Thinking of you and hoping for calm amd peace for your dad.
    With love
    Pauline

    #30157
    roma35
    Member

    I think all the responses have been completely accurate and the truth is, one just doesnt know when a person is going to breath their last breath. My father had been bedridden and unable to walk for atleast 2 months before he died, he had no energy to sit up on his own or feed himself and he barely spoke his last few months. The last two weeks of his life he didnt eat a thing(just sponged water on his mouth), and slept constantly. He would awake and gasp in pain and we would give him morphine. This heartbreaking process went on for 2 weeks….The day of his death however, his breathing changed. It had become more labored and very loud(I guess it is called the death rattle, but I really dont like the phrase) That started about 1:00 in the afternoon, and lasted til 5:10. All his kids were there, we tried to keep the grandkids out, but they insisted(almost throwing fits) that they wanted to be there, so they were there as well, hugging, kissing, him, telling him how much they love him. They say that people intentionally either wait for people to be there when they die, or they dont, and I think there is symbolism in both. My dad was our glue that kept our family together, maybe he wanted us to see that he will still be with us, even though he is gone from site. Whatever the reason, for our family, his passing over was an incredibly beautiful memory, and I think a final gift that he gave us. However, if he had died alone, I would have felt that is what he wanted as well, to spare us the gut wrenching finality of the loss.
    I guess what i am saying none of us caregivers should beat ourselves up if we are not present when our loved one passes. They know how much we love them and how much we are going to miss them. Do tell your loved one everything you want to say now, they are present, and they hear and understand everything. I kept telling my dad it was ok to go and we would meet again in paradise, and I truly do believe that.
    Peace and Prayer
    xoxo
    Barbara

    #30156
    magic
    Spectator

    Hi this is a good question but one that is impossible to answer.As a registered nurse for 30 years I have been asked many times.You certainly know when things are terminal,drawing to the end but it is not easy to predict how close to the actual end so I think you need to say what you need to and stay close and gather your supports because the end of life can vary and sometimes take you by suprise kind regards from Janet

    addit sometimes people can lapse into a coma lasting several days .While some fluids are still being taken life can continue but once no food or drink is taken it is usually not long .

    #30158
    devoncat
    Spectator

    Deb,
    If you look in the hospice/pallative care section there are many posts that discuss the end..

    Kris

    #30160
    daddysgirl-2
    Member

    Deb,

    I am so sorry for what you are going through. I’m not sure that there is a guide to determine when the end is near. I feel now, after my dad died, that each experience of living and dying is unique. Like you, I googled everything I could between caring for my dad, and what to expect at the end. I thought that I would prepare myself, so then I wouldn’t be surprised, and would better handle dad’s passing. I bought the grieving books to read after, the suggested journal, I told my husband I wanted to go away, alone, for a few days to work through my feelings, etc. “Be Prepared” is still this Girl Scout’s motto.

    I didn’t count on my dad getting this horrific infection on top of his CC. I didn’t count on him not returning to my house when he had the fever. I didn’t count on him passing away 30 minutes after I left to freshen up after staying with him at the hospital 24/7. I didn’t count on my noticing mom’s parkinson’s disease to be so advanced after dad passed. My point> all my prep work was null and void.

    All I can advise you is follow your instinct. Prepare yourself as you are able, and just enjoy the minutes you have left with him. The hospital social worker, the nurses, etc became invaluable to me during the final days. They brought special music to his room, brought us treats, coffee etc without even asking. On their breaks, they came in and just sat with dad, talking to him about his beloved Pittsburgh Steelers and country music. Family came in and out, I literally moved in! We brought dad’s favorite pictures, Bible, M/D’s wedding crucifix, posters etc to make his room comfortable.

    There are things that I noticed that seemed odd with my dad: he stopped watching television (he LOVED to watch tv), wasn’t as hungry anymore, didn’t seem as happy and jovial as he normally was – more cranky, slept more often. All this I noticed about a month before his death. I personally believe that with a change in his pain medication, dad would’ve been less irritable, more himself. Wishful thinking? Maybe. Doesn’t matter now. I do feel that the infection that creeped up on us was the true precipitor to dad’s passing. His body was just too weak to keep fighting. (Dad was also a diabetic).

    The locations of your dad’s cancer and the swelling of his legs is spot on with my dad’s experience. But, as I’ve mentioned, each experience is unique.

    Hope this helps somewhat. I’m thinking of you and sending you and your family prayers.

    Peace,
    Jolene

    #30159
    tess
    Member

    Hi Deb, I am so sorry to read your post. I was there just few months ago, with my own Dad and there are no words to describe the heartbreak. A friend of mine loaned me the Hospice book “Gone From My Sight”. Because this publication is fee based, I can’t post the contents here due to copyright restrictions- but would be happy to share with you the highlights of this document, specific to ‘what to expect in the final days/months’, a fellow cc friend has captured it in digital format and I can forward that to you at your request. My family could not talk hospice, as my Dad would have no part of such conversations & never believed he was going to die- but I (privately) had the small book and Dad’s final days unfolded just as it said.

    There is no way of knowing exactly when, you may not be there Deb. I can only speak to my own experiences, but I quietly said goodbye to Dad constantly- as he slept, in his final days, sensing his time was near. My own Dad was not as sick as yours, in fact he got out of his chair and walked on his own across the room to the dining room chair that Tues. AM- where he died in the arms of my brother and I. My Mom, his wife of 40 yrs., can not forgive herself for leaving the house for a 1 hour doc. appointment that morning. She was by his side always, but that is how it happened and it is certainly no fault of hers, as Dad could just as readily have survived another couple of weeks. I also contacted the Sacred Dying Foundation- in Dad’s final 24 hours, for suggestions on keeping vigil at the deathbed.

    A final thought…. consider whispering to him everything that you have ever wanted to tell him, it is my sense that as our loved ones start to detach- their hearts hear our words.

    You and your Dad are in my prayers Deb, and I’m sending you love in this most difficult time.

    Tess

    #2490
    debdanielson
    Spectator

    I know that this is probably not a nice question or a proper question or whatever. But it is so hard watching my dad getting worse day after day and still really having no idea how much MORE worse it is going to get.

    He sleeps mostly all of the day now. He is eating less daily, even though he is still on the appetite stimulant. He doesn’t want to talk to anybody on the phone when they call. And if by chance he does he only starts coughing and can’t speak anyway due to the tumor mass in his right lung.

    This cancer now is in his liver, his pancreas, his right kidney, his right lung, the lymph nodes, the pericardial area, his spine and his hip. And now his right leg is swelling up to about twice it’s normal size… he is finally on some diuretics to help with that at least. How long can someone survive this?

    My dad was a big strong guy but he has lost about fifty pounds so far. He shakes and trembles all the time when he is awake.

    I have read the American Cancer Society page on knowing when the end is near but it all sounds pretty generic to me. How can I know more so that I can be prepared and be there? When it gets to that point I want to be with him around the clock so that he won’t happen to be alone for any reason.

    He is still talking to us when we talk to him, but he sometimes falls asleep in the middle of a conversation.

    Well, I just wanted to know if anyone could give me a little more insight into this part of the process. I do not want my dad to die either, but I know for sure he has no quality of life right now and that he is not happy. Although I am thankful that he spends most of his time sleeping now as I am sure he is miserable when he is awake.

    Thanks in advance for any help.

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