hi.. first time here

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  • #14929
    kate-g
    Member

    Good luck Serap!

    #14928
    serap
    Member

    hi
    you can check the web site http://www.sibiono.com
    I think this kind of cancer does not have a fix treatment..And as far as i know who has cholangia are very few amount of people..2 people in 100.000… we have a friend who we lost from this type just this morning altough they tried everything,all the cemos and treatments..We were socked when learned about my aunt 57 2 weeks ago..has the same type.. luckliy we had the surgery..19 tumors in the left part..the dr.had taken the half of the liver..the pathology shows that there is no metastas so far.. but we know that thşs does not mean it is gone.. we know it is going to come back..so start to investigate..
    That is how we found about the tongren hospital..Now send our reports and get the answers.. They are doing well on many types like %64 recovery.. but he had only 2 carsinoma so far altough he is an liver specialist.And he wrote he was succesful on that 2.. They have got other methods other than gendicine..And we can go on cemo as well.. so there is nothing to loosee for us.. there is no side efects of gendicine.
    if you have a big tumor tha can not be operated than they use a way called hifu as well that makes the tomur smaller which our friend tried before..And his 9 cm tumor was 4 cam after the treatment.. But he did not know about this gendicine.he just treid the hifu..
    But he was on the last stage when he went to china.. after all the cemos here.. So we dont want to wait that long .. as my aunt is in better condition now at least she is in the 2 nd stage ..
    i will share everything here.. and i am so glad to find a forum about this..
    take care

    #14927
    stacie
    Member

    Serap,

    We are so glad you have found us. We haven’t had much information from China. We will be very interested to hear how your Dr’s there work with cholangiocarcinoma. Please keep us informed.

    Thanks,
    Stacie

    #301
    serap
    Member

    hi
    i want to learn if anybody knows anything about the treatment in china?Tongren hospital.

    We are searching this.. we have sent our reports and waiting for the answer

    thanks

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