New here. Intro and questions.
- This topic has 8 replies, 8 voices, and was last updated 14 years, 1 month ago by
.
-
Posts
-
Hi RDH,
Welcome to the site. Sorry that you had to find us all but I’m glad that you have joined us all here. I’m sorry that I can’t help you with your question but I just wanted to join in with the others in welcoming you here. Please feel free to ask any questions that you have and we will all help if we can.
Looking forward to hearing more from you and please let us know how your dad gets on.
My best wishes to you and your dad,
Gavin
Hi RDH,
I would just like to join all the others in welcoming you to ‘our family’.
Hope your Dad’s recovery goes well, come back and let us know how he is doing.
Katie
Thanks, everyone.
Dad is recovering well from the Whipple. Today is his first day home and he’s feeling a little rough. It’s only been just over a week, though, so I’m sure it’ll take awhile. It’s been quite a rollercoaster ride.
Thank you all so much for your comments and support.
My mother had the same situation and was diagnosed with CC August 10.
She had 27 lymph nodes taken – 2 came back positive. She has decided against chemo at this time. She feels good and is enjoying her life.Rdh,
my dad’s case was exactly the same as yours. He had his whipple (clean margins, 7 nodes with microscopic traces) and entered the bilcap trial to test xeloda as adjuvant therapy. Standard treatment in uk would have been just ‘wait and see’. We are glad he got the chemo on a trial but then who knows whether it’ll work?
It’s been a year since my dad started looking a little yellow and he’s now back to work, and really valuing each day (we all are).
Please feel free to ask any questions. Congratulations to your dad, I hope he is recovering well from the whipple?
KateDear RDH – It sounds like you were one of the luckier ones to have received a diganosis a little earlier before a lot of spread and treatments are available. So happy for you as this is not the case for so many with cholangiocarcinoma. Our thoughts and prayers are with you as you take this journey. Visit with us often and let us know how things are going. Many have said, and I have found it to be true, that this is often a roller coaster ride. Blessings, Susan
Hello RDH and welcome to our wonderful family. I congratulate your Father on coming through the huge Whipple Surgery. My husband had the Whipple 5 years ago at the age of 73. His margins and nodes were clear so not sure about the chemo after a Whipple as he didn’t have it. I am sure you will get more answers and a game plan after seeing the ONC. Where is your Father being treated? I am also sure you will get more replies on this but as you know the Whipple is also not a common surgery. Try to read up on the Whipple as the more information you have the better armed you will be. Wishing your Father a good recovery and please keep us posted.
Sorry, I don’t have any insight to offer regarding your question but I wanted to welcome you, you are among friends and some of the most helpful and caring people I have ever come across.
Patty
Hello,
My father (65) was diagnosed with cc in Sept. 10 after presenting with jaundice (among other things.). He had a stent placed, followed by a Whipple procedure a week ago. He had clean margins after the procedure. They removed a small tumor in his bile duct. However, he was told that they found that 7 of the 39 nodes tested came back positive. The surgeon also said that right now, it had not spread to other organs (and he was essentially cancer free), but because it was in the nodes, the liklihood was there that it would spread (likely to the liver.) I’m leaving out a lot of details, I know. Anyone been in this situation where it has been in the nodes, but not spread yet? My parents have an appt. with an Oncologist in a few weeks to discuss chemo etc.
Thanks so much for any info.
- The forum ‘Introductions!’ is closed to new topics and replies.