Stage IV CC diagnosed March 18th
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Oh Connie, my heart is breaking for you. I tried to reach you a few times and when I didn’t hear back I suspected things where not going well. You have every right to be angry, I know I am. I will pray that you have the strength to get through this incredibly difficult time. I’m crying along with you. email me if you want. L.
Dear Connie,
I am so very sorry indeed to hear of Jerry’s passing. Please accept my sincerest condolences. I lost my dad to this cancer in 2009 and I share the anger that you have towards it. My thoughts are with you and your family right now.
Gavin
Connie, So sorry to hear about the passing of your husband Jerry. He sounds like a wonderful man. I don’t blame you for being mad; this disease takes so much from us. We will keep fighting this evil until a cure is found. May the wonderful memories of your dear husband help you through this most difficult time of your life. Sending healing thoughts to you and your children. Hold onto each other. Nancy
Lainy, thanks for a very comforting poem…I still remember how a pretty lady you are and how you cried about Teddy and now I can relate to it, I cried about Jerry because I lost my bestfriend, my love and my life. Jerry had influenced a lot of people that on his funeral everyone who loved and knew him showed up and paid their last respect and I can literally see big men crying out loud to have lost a very dear friend, co-worker and an amazing, incredible man…I miss him every second of my life…And Pam thanks as well..
I am so very sorry to hear about Jerry. I understand how you feel. Please accept my heartfelt sympathies.
If I should be the first to go,
And leave you alone, my Dear,
Let not your heart be lonely,
Nor in your eyes a tear.
Grieve not for me, my Darling,
II am so sorry you lost your husband, Jerry, and your kids lost a terrific dad. My thoughts and prayers are with you and your family. Take care and I hope the great memories you have will be a comfort to you soon.
My beloved Jerry died bravely last July 8th, 2011 fighting this horrible disease. He’s only 49 and I discouraged chemo on any stage 4 CC, it’s useless, it’s horrible and painful and I’m not even sure if the doctors have a thorough knowledge of this disease, they seem to have made my husband a guinea pig for a month…I can’t believe how mad I am at the medical side of CC, I am sorry to be very ill-mannered about all these but I wish I could turn back the hands of time and said no to chemo and have my one and only Jerry died naturally of the pain this disease had caused all our family esp. my kids. -Jerry was diagnosed March 18th and died July 8th; the love of my life was taken away from me because of this evil cancer, so I pray someday they can find a cure, a real cure, to help save people like Jerry who is I know the most precious and the greatest creature God has ever made.
Connie….good luck with the visit and of course, we would love to hear the results of this meeting.
Thank you so very much for also sharing the wristbands with others. As mentioned in on of my previous posts awareness to this disease is of utmost importance. There is a distinct feeling of unity when encountering someone with our bands. In fact, at all medical conferences attended the wristbands have become a hit. Physicians from all over the world take these bands to their homelands. We are united in this fight against this cancer and we will continue to be a force in the fight against this disease.
All my best wishes are heading your way,
MarionThanks Nancy…we will defeat this disease somehow, we need to start now. I will definitely post our experiences once we get to that treatment stage. Your comments are greatly appreciated and I’m so sorry about your loss. Connie
nur1954 wrote:Connie – All the things you are feeling right now are very normal under the circumstances. Please come by often for support and answers to questions. We are a great website for venting and screaming, when necessary! All our thoughts are with you and your husband…..NancyHi Marion, we are going to MUSC Hollings Cancer Center tomorrow for that 2nd opinion and we should start weighing all our options once we get to see the Oncologist. We have very good support from my husband’s work and also a very strong family support as well…lots of love and prayers. We have 4 kids, 2 college graduates, a 19yr old and a 16yr old in hs.
Thx for taking your time to comfort us. — I’m wearing the cc bracelet that I ordered from the foundation and giving it to all my friends and family to start supporting the foundation for more research and cure for cc just as much as we support the Breast cancer cause.
‘Will keep everyone posted and Peony thanks for your concern and I’ll keep your husband in my prayers as well…keep me posted with regards to his treatment. Good luck and God bless!Thanks for the response, Connie…Fingers are crossed for a positive second opinion. Are you seeing a physician at MUSC Medical Center? And, is this oncologist familiar with this disease in fact, you might want to ask how many have been in his/her care.
All my best wishes,
MarionHi 2,
My husband is also young (47) and stage IV diagnosed 6 months ago. I can relate to your state of shock and disbelief. Once you start treatment you will probably be more focused on the fight like Lainy says. Sometimes on his off weeks from Chemo I can hardly belief he is sick.. He is Gemzar/Cis and its working fairly well though very tough on him.
I’m sending you lots of prayers and well wishes. Keep us posted.Peony
Hello Marion…we are in Charleston, SC. The doctor said the tumor is inoperable, no liver resection was mentioned and his cancer spread to his stomach and parts of the lymph nodes and yes radiotherapy has been ruled out, he only mention chemo as the only treatment; that’s why we are working on getting a second opinion to make sure we have all our t’s crossed and i’s dotted. Thanks for your concern and i’ll be glad to update everyone after his first treatment or while he’s on treatment so we can gather more info regarding this horrible disease.
I’ll be glad to talk to anybody re:CC since I am still in a state of shock and disbelief. My husband is a good man and can’t even hurt a fly and I love him so very much that it’s tearing me apart just to think about CC in his body.
Hi Connie,
Welcome to the site. Sorry that you had to find us all but glad that you have joined in with us here. I know how you feel right now but you are not alone any more, we are all here for you. Please feel free to come here as much as you want and post away, vent and ask any questions that you have and we will all do what we can to help you through this.
Here is the link that PCL mentions –
http://clinicaltrialsfeeds.org/clinical-trials/show/NCT01320254
Please let us know how everything goes and I will keep you and your husband in my thoughts. We are all here for you.
My best wishes to you and your husband,
Gavin
Hi,
Base on “the Basis of Clinical Pharmacotherapeutics”” text book, tumor growth on average double its size in 2-3 month on average,some are faster and some are slower; that is why I think the oncologists like to schedule CT or PET every 3 months or so to monitor the progress of treatment. So I donot think it makes a difference if the chemo is delated for a couple weeks.
Base on your description,your husband has stage IV CC;so the recommendation choice is systemic chemo therapy as your oncologist suggested is correct.
I recommend you to read the”detailed clinical trial description” section under the PiCCA study (Panitumumab in Combination with Gem/cis) put up by Gavin in the Clinical Trial board here.It will provide you a general understanding of the current systemic treatment -the percentages of responses of each treatment group of chemo agents and the trend of current and future chemo treatment ideas.
Current recommendation by uptodate.com is that they prefer patients enroll in clinical trials whenever possible. Your husband is young so this is one advantage if you choose clinical trial for your husband.
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