Mom diagnosed-lots of questions!
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I am so excited for you, I can never say enough about this man. His doctoring skills are the worlds greatest, but it is soul that will move you.
The day before my story was in the paper I received a hand written note from him telling me how wonderful I was and how priveleged he was to take care of me and my family!!! Have you ever heard of anything so crazy. I will always say he is who you want your children to grow up to be-he is a hero!
Good luck and please contact me if you want to talk. Thanks to him I am taking my first vacation in 21/2 years. I am headed to Miami to enjoy sun, sand and my daughter. I remember when I didn’t know if this would ever happen again, but Dr. Chapman did!!!-Lots of prayers and hope-Cathy
jrdunnagan@gmail.com 618-567-3247Dear Milli, welcome to our wonderful family but sorry you had to find us.
Glad you got in to see Dr. Chapman. You might go to our Search Engine at the top of the page and type in Oklahoma and see what older posts appear. We will be waiting to hear what Dr. Chapman has to say. Best of luck!Thank you so much for the responses. I have contacted Dr Chapman in St Louis for a 2nd opinion and will be mailing everything to him next week. Hopefully he can take the tumor OUT!
I also wanted to ask again if there is anyone in the Oklahoma City or surrounding area also dealing with this…just putting it out there!
Thanks againDear Milli –
You are a member of a new family now – our family – here on this CC website. Please come often, post comments, ask questions, vent, share, whatever you need. We understand and we care.
Blessings,
SusanHi- and like everyone else, sorry you had to find this amazing group of people. I am a CC survivor. I am alive because of Dr. William Chapman. I can never post enough about this incredable man. He saved my life twice. I was lucky because I was diagnosed by the best and was always given hope. My tumor was in the bile duct and inoperable. My only hope was a transplant. You can google my story and read it at the telegraph.com under christmas miracle.
I am sure there are good oncologist in Oklahoma City, but our cancer is so rare you need a major institution. Most of those are usually teaching hospitals also. My advice is to head to St. Louis, MO to Barnes-Jewish. Geographically it is your best choice.
Please feel free to contact me (jrdunnagan@gmail.com). I know you will get great advice and hope from Dr. Chapman.
Lots of prayers and hope!!-CathyHi Milly….welcome to our site. Definitely, I would look for one more opinion. As Houston appears to be fairly close a consultation with MD Anderson might easily be achievable for you. Additionally, I would like to add a link established by our members re: physicians and treatment centers:
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3126&p=1
Others may chime in real soon and share their thoughts with you also.
I am glad that you have found us but, wish for the reasons to be of a different nature. But, we are in this together and will do anything possible to help you along.
All my best wishes,
MarionI am writing this on my Mom’s sign in- we will probably both be posting under this name.
My Mom was diagnosed in March with inoperable adenocarcinoma in her bile ducts. We do not know the sizes or exact locations of the tumors as of now. She has external bile drains and unfortunately, they have become infected twice.
She is being treated at OU Medical Center in Oklahoma City. Because surgery is not on option (they say) they want to start her on the “standard treatment” of chemo. 8 cycles. We have been happy with her treatment so far, but are looking for a second opinion, what is the best way to go about this?? I’ve seen so many posts about Dr Kato and Dr Chapman in NY and St Louis…
Is there anyone in the Oklahoma City area also diagnosed with this? Would love to have someone else for Mom to talk to since this is so rare…
Thanks so much!
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