Hello Again Everyone

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Viewing 15 posts - 1 through 15 (of 23 total)
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  • July 18, 2011 at 6:45 pm #50974
    gavin
    Moderator

    Dear Mari,

    I am so very sorry to hear of your brothers passing. Please accept my sincere condolences. My thoughts are with you and your family right now.

    Gavin

    July 18, 2011 at 4:03 pm #50971
    pcl1029
    Member

    Hi,Mari,
    sorry to hear your brother’s passing.
    If you can,please e mail or just answer WEN888 for me.(her’s is a just few entry above this entry that I write to you) .

    She wants to know where your brother got help,(names of hospital and the doctors) in Phillipines. And what is your opinions about their care.(Is it up to standard,expensive and effective?).
    Her dad has CC,so please give her some pointers and help her out;you know when you first hit with the news that someone had CC in the family you really like a ton of bricks hitting on your head and want any kind of help you can get;
    I am in the States and I don’t know that much in that area.
    So,if I may request you to see whether you can email Wen888 after you settling down from travelling .I will really appreciated. (I think she is also a Filipino too).
    Thanks for your thoughts and prayers for me. As you can see ,it works.
    and please keep us informed and come back often,You can be one of us to help other people too. We all are volunteers ,caregivers like you to your brother and patients like me.
    God bless.

    July 18, 2011 at 7:25 am #50973
    mares0311
    Spectator

    Hi,

    I am so glad to hear that you are recuperating from your surgical procedure. You are always in my thoughts and prayers too. We were not able to write you anymore when I got home, as my brother was weak.

    Thank you so much for your advices and I shall keep in touch.

    Mari

    July 18, 2011 at 7:23 am #50972
    mares0311
    Spectator

    Thanks Lainy. He was a fighter throughout the end, and had not given up. You are right, he will never be forgotten. I am so blessed to have even spent a few days with him. I miss my brother so much. It seemed like he was just waiting for me.

    Mari

    July 18, 2011 at 4:28 am #50970
    lainy
    Spectator

    Dear Mari, I am so sorry about your Brother’s Passing. He is now at Peace but never forgotton. My prayers and sympathy go out to you and your family.

    July 18, 2011 at 1:52 am #50969
    mares0311
    Spectator

    Hello All,

    Sorry for not having gone to this site for quite some time. I went home to the Philippines and spent a few days with my brother until he passed away on July 11.
    I would like to say thank you for all the support and prayers that you have given us, but rest assured that my brother is resting in peace, and free of pain. My heart and prayers go out to all those afflicted with cc, I shall always be here.

    Mari

    July 15, 2011 at 4:12 am #50968
    wen888
    Spectator

    Hi mares311, I am wendy and my dad was recently diagnosed with cc ..
    PCL1029 recommended me to talk to you as you may have insights on what works and what kind of treatment and which places are known to have expertise on this area (in Philippines or somewhere in Asia like HK, SG, ?)….. my dad is based in philippines too…
    If you dont mind, where did your brother have his treatment and what kind of treatment?
    Thanks/Wendy

    June 29, 2011 at 9:38 pm #50967
    marions
    Moderator

    Mari….you will want to discuss with the treating physicians the possibility of an external or internal biliary drainage catheters.
    All my best wishes,
    Marion

    June 29, 2011 at 4:00 am #50966
    mares0311
    Spectator

    again, when there is no possibility of using a stent to drain the bile, what other options does one have?

    thanks again.

    Mari

    June 29, 2011 at 3:40 am #50965
    mares0311
    Spectator

    Hello,

    I am back again writing to you in the hope of getting some advice.

    I will be leaving for Asia, to spend time with my family, most especially with my brother.

    He has been taking some diuretics to relieve him of some discomfort, and fluid in his legs and feet named Lasix and Aldactone. They worked well in the beginning, but have not been doing so recently. Any suggestions would be appreciated.

    Thank you so much.

    Mari

    June 21, 2011 at 8:46 pm #50962
    mares0311
    Spectator

    thank you. I shall.

    June 21, 2011 at 8:18 pm #50961
    pcl1029
    Member

    Hi,
    Please read my e mail reply to you ASAP.
    I will be out for a few days from this board if you need information From me after today.
    God bless.

    June 21, 2011 at 8:09 pm #50960
    mares0311
    Spectator

    Hello,

    He is not constipated. 5.5 liters came from the abdomen. although his visit yesterday had no indication of fluid. he feels bloated though. His bowel movements are fine. He has edema on his ankle area. he has hepatic cc.

    thank you.

    God bless.

    Mari

    June 21, 2011 at 7:52 pm #50963
    pcl1029
    Member

    Hi,
    Hilar cc is a subgroup of ductal cc under extra hepatic cc.
    Did he has fluid in the abdomen instead of stomach?
    Is he constipated?Did he pass gas? 5 liters of fluids from the stomach instead of abdomen? Did his doctor give him lasix and or Aldactone(diuretics)to relieve the swelling of the legs and abdomen ?
    Again consult doctor first before making any change .
    God bless

    June 21, 2011 at 5:19 pm #50964
    mares0311
    Spectator

    Hello All,

    I will be going home to Asia to visit my brother and family soon. Although his doctors have basically have said that not much can be done, my brother still remains hopeful with his faith much stronger. Has any one heard of instead of feeling bloated because of liquid in his stomach, its gas and discomfort? The last time, the doctors had drained out about 5 liters of fluid, but this time, there was none. Is there anything that can be done to alleviate this feeling?

    My brother does not have ductal CC but the other one…hera? Can’t even remember the name…He is in stage 3b.

    Also, my brothers legs and feet are swollen. He has difficulty walking because of this. Any suggestions?

    Thank you all for your support and concern. My prayers and support are also with you.

    Sincerely,

    Mari

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