Went to Roswell today with Mom
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Hi Trish. My husband was 73 at the time of the Whipple. That was August of 2005. He passed last December 6th at 78 years old but you cannot go by that. We have had members on here who survived longer and in these last 6 years more treatments have become available. Please do not think in time limits. We need to live each day at a time. First of all the best news in the world is that Mom is able to have the surgery, that is wonderful. I can’t think of any other disease where everyone gets so excited to hear the word, “yes” to surgery as that is the best way to beat this CC. Please keep us posted on how Mom is doing and when the sugery date is scheduled. Best wishes and good luck to you both.
Thank you so much for the positive words of support. It means so much to us. Lainy, how is your husband dealing 6 yrs after the whipple? They gave us a limited chance of a 5 yr survival after the whipple.
Dear Trish, my husband had a Whipple 6 years ago and while it is the biggest surgery to the body, it is not life threatening. It will take a lot of care and patience on everyone’s part as the recovery time after a Whipple can take a few months. The Doctors really cannot tell what is “inside” until they get inside and that is why they cannot predict a game plan for after recovery. My husband had ONC visits every 3 months with LABS and he never had Chemo. I hope all the preliminary tests go well and let us know, we care.
Trish…. everything has gone quite well today and I am hopeful for it to continue. Scans and blood test can only provide so much information therefore, the true extent of the disease can only be determined during surgery, which in turn is the only curative option for this cancer. Fingers are crossed for the preliminary testing to clear your Mom and for the surgery to be scheduled real soon. If by any chance it turns out to be pancreatic cancer rather than cholangiocarcinoma then you might also want to reach out to the John Hopkins discussion board
http://pds17.pathology.jhmi.edu/N/n.web?EP=N&URL=/MCGI/SEND1^WEBUTLTY(199,
/1398762003
Treatments are similar however, some things are unique to each disease and you would want to make sure to have the most accurate information available to you.
All my best wishes are heading your way. Please, keep us posted. We are in this together.
MarionWe met Dr Kuvshinoff today. He was very nice. He told us that mom is going to have the whipple operation. She is high risk due to her pre existing medical conditions so he set up quite a few pre surgical tests to make sure her body will be able to handle the surgery. He did not give us a stage as he wants to biopsy the lymph nodes before he stages it. He also said he is not sure yet if it is cancer of the bile duct or cancer of the pancreas. He ordered a ca19-9 blood test to see if it is elevated. He did say that she will most likely need post surgical chemotherapy and possibly radiation depending on what they find during surgery. Dr Kuvshinoff said he has performed hundreds of whipples, at least 35 a year and the mortality rating is 2.6% in a 30 day period following surgery. His confidence was very reassuring. We are cautiously optimistic.
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