New to this cancer that I had never heard of
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Hi Ed’s Family,
Welcome to the site. Sorry that you had to find us all here but I am glad that you have joined us. As you have come to the best place for support and help and you will get tons of both of these from us all. And I know that you will have a load of questions to ask, so please feel free to go ahead and ask them and we will do our best to help in answering them.
As Lainy and Marion have said to you, not everyone who is diagnosed with CC gets the jaundice, itching etc. My dad started to show signs of jaundice and that was his first symptom that started showing. It turned out that his ducts were blocked causing the jaundice and he had a stent placed to deal with that.
That is good to hear that Ed’s chemo is going well and I will keep my fingers crossed for that to continue. Also good to hear that Ed is not having issues with nausea that can sometimes come with the chemo. I know what you mean about being uncertain of what the future may or may not hold, we all go through that. All I would say to you about this is to stay strong and focus on the present. And please know that we are all here for you. Keep coming back and please keep us update on how things go.
My best wishes to you and Ed,
Gavin
Ed’s family, welcome. I cannot add much to what Marion and Lainy have said, but wish you both well in this journey. You are an angel to be doing what you are doing. God bless and keep us up to date.
-Byron
Hello Ed’s family….welcome to our special place. This cancer is considered terminal however, many are living with this terminal disease and they continue to treat it like a chronic illness. Our motto is
Dear Ed’s Family, welcome to our wonderful family where you will find the most courageous and caring people in the world. I am so happy that Ed is tolerating the chemo so well. A CC patient only gets jaundice is if the bile ducts are ‘clogged’. That is good that Ed has not had that happen so I assume he has not been given a stent, apparently not needed. We do not listen to time tables or stastistics as so many have different outcomes with CC and treatment and yes we have some doozy MIRACLES on here. Had one today of an 83 year old woman where it seems to have disappeared! Have you sought out another opinion? We are huge believers in that. Attitude helps a lot and you sound like a wonderful family. Be strong and realistically optimistic, it seems that is the best thing we can do for our loved ones. Please keep us posted, we care.
Hello everyone,
I have just recently started reading and studying up on CC at this website. My exhusband has been diagnosed-stage 4-after going from doctor to doctor for a few months. We were married for 27 years and have 2 grown children-one that is in college and still lives at home with me. I have taken my exhusband into my home and I have become his caregiver. We have so much to be thankful for because he has tolerated the Gemzar/Cisplatin so well. He had his port put in and started treatment in July. After 5 treatments, his port became infected and they had to remove it. He just received a new one last week. He only missed one treatment. He has a 6 inch tumor in his liver and is inoperable. He has lesions in the abdominal lymph nodes and lungs. No change on his last CT Scans but we are happy that it hasn’t worsened. I’m confused by the diagnosis of cholangiocarcinoma as he has not been jaundice at all. He has had diarrhea and abdominal pain. His liver is so large and he had lost about 30 pounds. Since he began treatment, he has gained 18 pounds-has had zero nausea and feels really good for a few days after treatment thanks to decadron.
We are so thankful for Winship Cancer Institute but have been told that he is terminal. The worse thing about this disease is being uncertain of what the future may hold. We try to remain optimistic and know that miracles still happen everyday. Thank you for this site and the public forums for discussion.
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