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  • #55687
    pamela
    Spectator

    Oh Susie, I am so sorry your scans didn’t turn out as well as you would have liked. Hopefully, it’s because it was done too soon. I will keep my fingers crossed and say some prayers. As for a 109 lb. person having love handles, you have got to be kidding me. You are so tiny. I am glad you are putting on some weight. Try not to worry about things. Wishing you all the best.

    Love, -Pam

    #55686
    marions
    Moderator
    #55685
    pcl1029
    Member

    Hi,

    “Tumor (<7mm in diameter )may not be detected by PET because the amount of FDG uptake by the lesions cannot be resolved reliably.

    PET has a greater sensitivity in detecting recurrence in a previously irradiated part of the body than CAT or MRI. The increased uptake of FDG beyond eight weeks after the completion of radiation therapy represents probable recurrent or persistent tumor,rather than an effect of radiation.”
    -PET literature review version.17.3 uptodate .com
    Therefore PET/CT will be a good choice next time than CAT to solve the unanswered problem.
    God bless

    #55684
    lainy
    Spectator

    Susie I don’t care what those findings are my findings are that you are one terriffic gal! LOL I am also thinking that perhaps the Scans were done too soon. I had to laugh about your weight distribution down the road. Why don’t you just tell people that what ever you have that is extra has been earned the hard way!Thinking of you as always!

    #55683
    wallsm1
    Spectator

    On a happier note, I am packing on the pounds. Up to 109, which is a 5 lb increase for me! My husband is quite cute. He lifted up the back of my shirt the other day to rub my back and said, ” Wow, you are starting to gain weight!” He was referring to the development of my spare tire aka love handles I am now the proud owner of.
    It is funny because I was always very fit and never had much unwanted fat but all of my weight gain has taken the form of love handles. I will work on gaining weight first and redistributing it later!
    Take care!
    Susie

    #55682
    wallsm1
    Spectator

    Eli,

    I think this is a good example of lack of communication. My oncologist ordered the scan because I get scans every 3 months and it was time. Then I saw the radiation oncologist, actually only the resident because my Dr was sick that day. He said they like to wait 6 wks after radiation to do a scan but since I already have it ordered, it is ok. So, I got scanned about 3 1/2 wks after radiation. I will ask. Maybe I will get another scan before 3 months.

    Thanks for the feedback!

    Susie

    #55681
    marions
    Moderator

    Susie….yes, we have seen changes post radiation similar to some of what you report. Often times it is due to formation of scar tissue.
    Fingers are crossed.
    All my best wishes,
    Marion

    #55680
    Eli
    Spectator

    Dear Susie,

    I am so sorry to hear about these new developments. Here’s what I’m wondering though… is it possible they scanned you too soon? I know you finished radiation around Nov 26th. When did they scan you?

    FYI… my wife finished radiation on Oct 20th. We did CT scan on Dec 2nd. We tried to move up the date of her scan; our hospital refused to do it. They said they have to wait 6 weeks after radiation ends. They said that radiation causes a lot of inflammation. Inflammation “clouds” CT images and makes them harder to read. They wait 6 weeks to let inflammation settle down.

    In your case, it doesn’t look like they waited 6 weeks. Something you might want to ask them about.

    Wishing you the best,
    Eli

    #6066
    wallsm1
    Spectator

    So, I wish I had better news, but here is my CT scan report.
    My oncologist attached a message that she has seen this happen from time to time after radiation and the spots are too tiny to biopsy or know if they are significant at this time. Could be changes caused by radiation. Anyone else have liver changes after radiation? I will meet with her on Monday and will probably start chemo soon. I was supposed to get another 3 cycles of Gem/Cis for adjuvant treatment after resection, so I’m sure I will get that and then maybe re-scan to see if these grow. Any suggestions? I am going to ask if I need a PET or MRI but I think the spots are too small to light up on a PET.

    History: Restage resected cholangiocarcinoma.

    Comparison: 9/12/2011.

    FINDINGS:

    CHEST: Tunneled right jugular port tip lies near cavoatrial junction.
    Heart and mediastinal vessels are normal. There is no thoracic
    adenopathy, pleural, or pericardial effusion. Small hiatal hernia
    incidentally noted. Lungs remain clear.

    ABDOMEN: Stable postsurgical changes of left hepatectomy and
    cholecystectomy are noted. No abnormal soft tissue recurrence within
    the surgical bed. Contracting patchy focus of geographic subcapsular
    hypoattenuation along the hepatic margin of resection image 103
    measuring up to 7 x 4 mm. A few new non-arterial phase enhancing
    patchy subcentimeter hepatic lesions are noted for example anterior
    segment image 94, 99, 109, 111, and 123 concerning for possible
    developing metastases to which close attention on follow up
    suggested. Unchanged mild posterior right lobe intrahepatic biliary
    duct dilation extending to the liver hilum possibly due to underlying
    variant biliary anatomy. Pancreas, spleen, adrenal glands, and
    kidneys are unremarkable.

    PELVIS: Bladder, uterus, and right ovary are normal with physiologic
    corpus luteum cyst. Enlargement of unilocular hyperattenuating
    nonaggressive 4.2 x 5.1 cm cystic left adnexal lesion,, possibly a
    hemorrhagic cyst or endometrioma, for which sonographic follow-up
    suggested. Small amount of free fluid in the pelvis is likely
    physiologic. No suspicious peritoneal/mesenteric implants. There is
    no bowel obstruction. Osseous structures are intact.

    IMPRESSION:

    Development of few poorly defined subcentimeter hepatic lesions,
    concerning for metastases, to which close attention on follow up
    suggested. Otherwise stable postsurgical changes of left hepatectomy
    and cholecystectomy. Enlargement of unilocular nonaggressive
    hyperattenuating cystic left adnexal lesion as discussed above

    Take care!
    Susie

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