Information for New patient easier to Navigate on this Site
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- This topic has 8 replies, 4 voices, and was last updated 12 years, 7 months ago by gavin.
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May 11, 2012 at 6:37 pm #60501gavinModerator
Thanks Percy. I would take my mum out for Mothers Day on Sunday, but Mothers Day here in the UK was in March! Dunno why it is different to you guys over on your side of the pond as I think that Fathers Day is the same day for us both. Weird!
Take it easy Percy!
Gavin
May 11, 2012 at 4:33 am #60500pcl1029MemberHi,
Thanks ,Eli. Thanks for your effort and quick reply, now is the time to spend more time with your wife; hope she regains energy by the day in time for a mother’sday celebration. I forgot, do you have any kids,Eli.?
Gavin ,don’ worry, I think the list is good enough for the new members who would like to learn about this disease in the condensed quick version.
God bless, say hi to your mum for me Ok. Take her out on mother day this Sunday,I know you will do so for a good son like you.
God bless all of you.May 10, 2012 at 6:34 pm #60499gavinModeratorHi Percy,
I’ll havbe a look round when I get a bit more time, but I don’t have any book marked.
Thanks,
Gavin
May 10, 2012 at 4:48 am #60498EliSpectatorHi Percy,
Here’s what I have in my bookmarks.
Full Text Articles
Multimodality therapy for locoregional extrahepatic cholangiocarcinoma: a population based analysis
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2783824/Adjuvant Radio-chemotherapy for extrahepatic biliary tract cancers
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3141778/Adjuvant concurrent chemoradiation therapy (CCRT) alone versus CCRT followed by adjuvant chemotherapy: Which is better in patients with radically resected extrahepatic biliary tract cancer?
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2761944/Abstracts Only
full articles require payments
Extrahepatic bile duct adenocarcinoma: patients at high-risk for local recurrence treated with surgery and adjuvant chemoradiation have an equivalent overall survival to patients with standard-risk treated with surgery alone
http://www.ncbi.nlm.nih.gov/pubmed/18754070Concurrent chemoradiotherapy in resected extrahepatic cholangiocarcinoma.
http://www.ncbi.nlm.nih.gov/pubmed/18805651Radiotherapy and chemotherapy as therapeutic strategies in extrahepatic biliary duct carcinoma
http://www.ncbi.nlm.nih.gov/pubmed/21136029Is adjuvant radiotherapy needed after curative resection of extrahepatic biliary tract cancers?
http://www.ncbi.nlm.nih.gov/pubmed/21652148Benefits of adjuvant radiotherapy after radical resection of locally advanced main hepatic duct carcinoma
http://www.ncbi.nlm.nih.gov/pubmed/10701737Radiation Enteritis (major side effect of radiation therapy)
http://www.cancer.gov/cancertopics/pdq/supportivecare/gastrointestinalcomplications/HealthProfessional/page6I also highly recommend NCCN Guidelines document:
http://www.nccn.org/professionals/physician_gls/pdf/hepatobiliary.pdfYou need to register for a free account to download the PDF. The Guidelines discuss all available adjuvant treatments: chemo, radiation, chemo-radiation.
May 10, 2012 at 4:04 am #60497pcl1029MemberHi,Gavin and Eli,
Do you have any links of research articles about RADIATION treatments that I can add to the above message for extrahepatic CCA.
Thanks both of you,
God bless.May 7, 2012 at 10:38 pm #60495marionsModeratorNice job, Percy. Thanks for all you do. Now, if we could just slow you down a bit.
Hugs,
MarionMay 7, 2012 at 10:34 pm #60494pcl1029MemberHi,gavin,
It is a lot of work to revise this threat,by I think it worth the time spent.
When I was new at this site,it was so confused as to where to find the info that was related to my type of cancer and the general knowledge of it.
i hope the new members will have a better experience.
as always,please say hi to your mum for me.
God bless.May 7, 2012 at 8:27 pm #60496gavinModeratorThanks very much for this Percy!! I am sure that it will be of help to many people. Thanks again, and make sure that you are taking good care of yourself as well.
Gavin
May 7, 2012 at 6:40 pm #6744pcl1029MemberHi everyone,
(Revised as of 5/14/2012)
Add links to help understanding key parts of the list.Hi, for the new members who just have registered in the past weekend or so; below are the little map that may help you to get the info you need faster for your specific needs.
(But most important,you need to know what TYPE of bile duct cancer you have:
1 . Intrahepatic CCA( cancer started in the liver) or ;
2. Extrahepatic CCA ( cancer started in the common bile duct and/or in the left or right hepatic ducts leading to the liver ie: Hilar cholangioCA is extrahepatic CCA) for general understanding about this disease please read the follow link in FULL TEXT if you want details..
http://www.ncbi.nlm.nih.gov/pubmed/21491796 and
http://www.canliv.org/Get-The-Facts/Bile-Duct-Cancer.aspx
http://www.ncbi.nlm.nih.gov/pubmed/21460876
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=55166#p551661. Below are the most common chemotherapy agents targeted therapy agents and chemotherapy REGIMENS, used both under traditional and in clinical trials settings.
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=7843
2. for side effects of a chemo,please read the message under the forum discussion title “Adverse reaction and side effects.” such as
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=6470
http://www.cholangiocarcinoma.org/punbb/search.php?action=show_user_posts&user_id=5579&p=25
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=6503
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=7001
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=6588
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=6733
3. for radiation options,which now are pretty much a very hot and useful treatment option;check out this web site under discussion forum “radiation treatment and options etc”Options like radioembolization, RFA,IBRT, SMRT, chemoembolization ,cyberknife,,nano knife,SBRT ,EBRT,IMRT and the link
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=7534
http://www.docstoc.com/docs/119742686/Overview-on-clinical-studies-on-SIR-Spheres
http://www.veithsymposium.org/pdf/aim/3068.pdf
http://www.macmillan.org.uk/Cancerinformation/Cancertreatment/Treatmenttypes/Othertreatments/Radiofrequencyablation.aspx
http://www.ncbi.nlm.nih.gov/pubmed/21136029
http://www.ncbi.nlm.nih.gov/pubmed/17679460
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2761944/
4. For understanding about the possibility of surgical options,resections,liver transplant; read the experience forum on this subjects and the links below.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3095469/ and
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2504384/
5.for the understanding of how CAT scan ,MRI and PET scan works;please read the message re-print which provide personal insight and info on this subject.and the following link
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=7841
6.For complimentary and alternative treatment, please refer to the experience forum under”Complimentary and alternative treatment” CAM.
http://www.cancer.net/patient/All+About+Cancer/Treating+Cancer/Complementary+and+Alternative+Medicine+%28CAM%29/About+Complementary+and+Alternative+Medicine
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=6273
7. for understanding about biliary stent procedure and complications, read
http://www.surgeryencyclopedia.com/A-Ce/Biliary-Stenting.html http://www.ncbi.nlm.nih.gov/pubmed/7530177
http://www.thelancet.com/journals/lancet/article/PIIS0140-6736%2887%2992733-4/abstract
http://www.thelancet.com/journals/lancet/article/PIIS0140-6736%2887%2991141-X/abstract
8. for nutrition, go to the experience forum under nutrition.
God bless. -
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